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Paper Details

Codesigning a community-based participatory research project to assess tribal perspectives on privacy and health data sharing: A report from the Strong Heart Study.
J Am Med Inform Assoc
1
2022
participants
American Indian or Alaska Native, Biomedical Research, Community-Based Participatory Research, Humans, Indians, North American, Information Dissemination, Privacy
Author NameAffiliation
Cynthia TriplettHerbert Wertheim School of Public Health and Longevity Science, University of California
Cynthia TriplettCenter for Empathy and Technology, University of California
Burgundy J FletcherDepartment of Ethnic Studies, University of California
Riley I TaitingfongHerbert Wertheim School of Public Health and Longevity Science, University of California
Ying ZhangA Center for American Indian Health Research, University of Oklahoma Health Sciences Center
Tauqeer AliA Center for American Indian Health Research, University of Oklahoma Health Sciences Center
Lucila Ohno-MachadoVeteran Affairs San Diego Healthcare System
Lucila Ohno-MachadoUniversity of California Health
Lucila Ohno-MachadoVeteran Affairs San Diego Healthcare System
Lucila Ohno-MachadoUniversity of California Health
Cinnamon BlossHerbert Wertheim School of Public Health and Longevity Science, University of California
Cinnamon BlossCenter for Empathy and Technology, University of California
Cinnamon BlossUniversity of California Health
Cinnamon BlossUniversity of California
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Datasets

Release 1.2