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Paper Details

Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.
BMC Med Res Methodol
10
2016
Human, human, participants, patients
Confidentiality, Electronic Health Records, Genome-Wide Association Study, Humans, Information Dissemination, Informed Consent, National Human Genome Research Institute (U.S.), Patient Participation, Patient Rights, Surveys and Questionnaires, United States
Author NameAffiliation
Maureen E SmithCenter for Genetic Medicine, Feinberg School of Medicine, Northwestern University
Saskia C SandersonIcahn School of Medicine at Mount Sinai
Saskia C SandersonUniversity College London
Kyle B BrothersUniversity of Louisville School of Medicine
Melanie F MyersCincinnati Children's Hospital Medical Center
Jennifer B McCormickPenn State College of Medicine
Sharon AufoxCenter for Genetic Medicine, Feinberg School of Medicine, Northwestern University
Martha J ShrubsoleVanderbilt University Medical Center and Vanderbilt University
Nanibaa' A GarrisonSeattle Children's Research Institute
Nathaniel D MercaldoVanderbilt University Medical Center and Vanderbilt University
Jonathan S SchildcroutVanderbilt University Medical Center and Vanderbilt University
E ClaytonVanderbilt University Medical Center and Vanderbilt University
Armand H Matheny AntommariaCincinnati Children's Hospital Medical Center
Melissa A BasfordVanderbilt University Medical Center and Vanderbilt University
Murray H BrilliantMarshfield Clinic Research Foundation
John J ConnollyThe Children's Hospital of Philadelphia
Stephanie M FullertonUniversity of Washington
Stephanie M FullertonUniversity of Washington
Carol R HorowitzIcahn School of Medicine at Mount Sinai
Gail P JarvikUniversity of Washington
Gail P JarvikUniversity of Washington
David KaufmanNational Human Genome Research Institute, National Institutes of Health
Terrie KitchnerMarshfield Clinic Research Foundation
Rongling LiNational Human Genome Research Institute, National Institutes of Health
Rongling LiNational Human Genome Research Institute, National Institutes of Health
Evette J LudmanGroup Health Research Institute
Catherine A McCartyEssentia Institute of Rural Health
Valerie D McManusMarshfield Clinic Research Foundation
Sarah C StallingsVanderbilt University Medical Center and Vanderbilt University
Janet L Williams
Ingrid A HolmBoston Children's Hospital, Harvard Medical School
Ingrid A HolmBoston Children's Hospital, Harvard Medical School
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