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Paper Details

A systematic literature review of Native American and Pacific Islanders' perspectives on health data privacy in the United States.
J Am Med Inform Assoc
14
2020
AI, Participants, participants, personal
American Indian or Alaska Native, Attitude to Health, Biological Specimen Banks, Confidentiality, Ethics, Research, Genetic Privacy, Health Records, Personal, Humans, Native Hawaiian or Other Pacific Islander, Privacy, United States
Author NameAffiliation
Riley TaitingfongUniversity of California San Diego
Cinnamon BlossUniversity of California San Diego
Cinnamon BlossUniversity of California San Diego
Cinnamon BlossCenter for Wireless and Population Health Systems, University of California San Diego
Cynthia TriplettQualcomm Institute Calit2, University of California San Diego
Julie A CakiciSan Diego State University/University of California
Nanibaa' A GarrisonInstitute for Society and Genetics, University of California los angeles
Nanibaa' A GarrisonInstitute for Precision Health, David Geffen School of Medicine, University of California los angeles
Nanibaa' A GarrisonDivision of General Internal Medicine and Health Services Research, David Geffen School of Medicine, University of California los angeles
Shelley A ColeTexas Biomedical Research Institute
Shelley A ColeTexas Biomedical Research Institute
Julie A StonerUniversity of Oklahoma Health Sciences Center
Lucila Ohno-MachadoUniversity of California
Lucila Ohno-MachadoUniversity of California
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Release 1.2