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Paper Details

Using social media listening to understand barriers to genomic medicine for those living with Ehlers-Danlos syndromes and hypermobility spectrum disorders.
Health Expect
1
2023
EDS, Ehlers-Danlos syndromes, HSD, hypermobility spectrum disorders, patients, rare diseases
Author NameAffiliation
Catherine A BrownsteinBoston Children's Hospital, Harvard Medical School
Catherine A BrownsteinBoston Children's Hospital, Harvard Medical School
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