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Paper Details

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Genet Med
133
2016
human, participants, patients
Biological Specimen Banks, Genetic Research, Genomics, Humans, Information Dissemination, National Institutes of Health (U.S.), United States
Author NameAffiliation
Nanibaa' A GarrisonCenter for Biomedical Ethics and Society, Vanderbilt University Medical Center
Nanibaa' A GarrisonVanderbilt University Medical Center
Nila A SatheInstitute for Medicine and Public Health, Vanderbilt University Medical Center
Nila A SatheVanderbilt University Medical Center
Armand H Matheny AntommariaCincinnati Children's Hospital Medical Center
Ingrid A HolmDivision of Genetics and Genomics and The Manton Center for Orphan Diseases Research, Boston Children's Hospital
Ingrid A HolmHarvard Medical School
Ingrid A HolmDivision of Genetics and Genomics and The Manton Center for Orphan Diseases Research, Boston Children's Hospital
Ingrid A HolmHarvard Medical School
Saskia C SandersonIcahn School of Medicine at Mount Sinai
Maureen E SmithNorthwestern University
Melissa L McPheetersInstitute for Medicine and Public Health, Vanderbilt University Medical Center
Melissa L McPheetersVanderbilt University Medical Center
E ClaytonCenter for Biomedical Ethics and Society, Vanderbilt University Medical Center
E ClaytonVanderbilt University Medical Center
E ClaytonVanderbilt University Medical Center
E ClaytonVanderbilt University
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Datasets

Release 1.2