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Paper Details

Understanding caregiver experiences with disease-modifying therapies for spinal muscular atrophy: a qualitative study.
Arch Dis Child
1
2023
Children, SMA, Spinal muscular atrophy, caregivers, children, motor deterioration, neuromuscular disorder, onasemnogene, patient, patients, respiratory complications, spinal muscular atrophy
Caregivers, Child, Humans, Muscular Atrophy, Spinal, Qualitative Research, Spinal Muscular Atrophies of Childhood, Uncertainty
Author NameAffiliation
Lena XiaoThe Hospital for Sick Children
Lena XiaoUniversity of Toronto
Sohee KangThe Hospital for Sick Children
Sohee KangUniversity of Toronto
Djurdja DjordjevicThe Hospital for Sick Children
Djurdja DjordjevicUniversity of Toronto
Hernan GonorazkyThe Hospital for Sick Children
Hernan GonorazkyUniversity of Toronto
Jackie ChiangThe Hospital for Sick Children
Jackie ChiangUniversity of Toronto
Munazzah AmbreenThe Hospital for Sick Children
Elisa NigroThe Hospital for Sick Children
Eugenia LawThe Hospital for Sick Children
Lauren M WeinstockThe Hospital for Sick Children
Melissa D McCraddenThe Hospital for Sick Children
Melissa D McCradden
Melissa D McCraddenDalla Lana School of Public Health, University of Toronto
Reshma AminThe Hospital for Sick Children
Reshma AminUniversity of Toronto
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Datasets

Release 1.2