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Paper Details

Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results.
Genet Med
29
2017
PIGSR, Patients, children, intellectual disabilities, participant, participants, patient, patients
Adult, Aged, Choice Behavior, Comprehension, Female, Focus Groups, Genetic Testing, Genome, Genomics, Health Knowledge, Attitudes, Practice, Humans, Incidental Findings, Intellectual Disability, Male, Middle Aged, Parents, Patient Preference, Sequence Analysis, DNA, Surveys and Questionnaires
Author NameAffiliation
Kyle B BrothersUniversity of Louisville School of Medicine
Kyle B BrothersInstitute for Bioethics, University of Louisville
Kelly M EastHudsonAlpha Institute for Biotechnology
Whitley V KelleyHudsonAlpha Institute for Biotechnology
Martha F WrightVanderbilt University School of Medicine
Matthew J WestbrookSaint Louis University School of Law and College for Public Health & Social Justice
Carla A RichUniversity of Louisville School of Medicine
Kevin M BowlingHudsonAlpha Institute for Biotechnology
Edward J LoseUniversity of Alabama at Birmingham
Elizabeth Martina BebinUniversity of Alabama at Birmingham
Shirley SimmonsUniversity of Alabama at Birmingham
John MyersUniversity of Louisville School of Medicine
Gregory S BarshHudsonAlpha Institute for Biotechnology
Gregory S BarshStanford University
Richard M MyersHudsonAlpha Institute for Biotechnology
Richard M MyersHudsonAlpha Institute for Biotechnology
Gregory M CooperHudsonAlpha Institute for Biotechnology
Gregory M CooperHudsonAlpha Institute for Biotechnology
Jill M PulleyVanderbilt University Medical Center
Mark A RothsteinInstitute for Bioethics, University of Louisville
E ClaytonCenter for Biomedical Ethics and Society, Vanderbilt University Medical Center
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