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Paper Details

Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues.
Int J Environ Res Public Health
32
2018
Patients, RD, RDs, Rare Disease, Rare Diseases, linked genes, patient, patients, people, rare disease
Author NameAffiliation
Deborah MascalzoniCentre for Research Ethics & Bioethics (CRB), University of Uppsala
Marco RoosLeiden University Medical Centre
Marco RoosLeiden University Medical Centre
Domenica TaruscioNational Center for Rare Diseases, Istituto Superiore di Sanita
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