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Paper Details

Patients with Ehlers-Danlos syndrome on the diagnostic odyssey: Rethinking complexity and difficulty as a hero's journey.
Am J Med Genet C Semin Med Genet
18
2021
Ehlers-Danlos syndrome, Patients, chronic pain, complex diseases, hereditary disorder of the connective tissue, hypermobile Ehlers-Danlos syndrome, invisible illnesses, odyssey, patient, patients
Ehlers-Danlos Syndrome, Humans
Author NameAffiliation
Colin Michael Egenberger HalversonIndiana University School of Medicine
Colin Michael Egenberger HalversonIndiana University
Colin Michael Egenberger HalversonRegenstrief Institute
E ClaytonCenter for Biomedical Ethics and Society, Vanderbilt University Medical Center
E ClaytonVanderbilt University Medical Center
E ClaytonVanderbilt University
Abigail Garcia SierraIndiana University School of Medicine
Clair A FrancomanoIndiana University School of Medicine
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