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Paper Details

The complexity of diagnosing rare disease: An organizing framework for outcomes research and health economics based on real-world evidence.
Genet Med
4
2022
Author NameAffiliation
Taila HartleyChildren's Hospital of Eastern Ontario
Wendy J UngarThe Hospital for Sick Children (SickKids), Canada Institute of Health Policy, Dalla Lana School of Public Health, The University of Toronto
Kym M BoycottChildren's Hospital of Eastern Ontario, Canada Children's Hospital of Eastern Ontario Research Institute, University of Ottawa
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