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Paper Details

Development of an international standard set of clinical and patient-reported outcomes for children and adults with congenital heart disease: a report from the International Consortium for Health Outcomes Measurement Congenital Heart Disease Working Group.
Eur Heart J Qual Care Clin Outcomes
13
2021
15, CHD, Congenital Heart Disease, Congenital heart disease, Patients, children, congenital heart disease, congenital malformation, patient, patients
Adult, Child, Heart Defects, Congenital, Humans, Outcome Assessment, Health Care, Patient Reported Outcome Measures, Surveys and Questionnaires
Author NameAffiliation
Kevin HummelUniversity of Utah
Kevin HummelBoston Children's Hospital
Sarah Whittaker
Nick Sillett
Amy Basken
Amy Basken
Malin BerghammerQueen Silvia Children Hospital/Sahlgrenska University Hospital
Malin BerghammerUniversity West
Tom??s Chalela
Julie ChauhanAll India Institute of Medical Sciences
Luis Antonio GarciaKardias A.C. Foundation
Babar S HasanAga Khan University
Kathy J JenkinsBoston Children's Hospital
Laila Akbar LadakAga Khan University
Laila Akbar LadakThe University of Sydney
Nicolas L MadsenCincinnati Children's Hospital
Almudena MarchKardias A.C. Foundation
Disty PearsonBoston Children's Hospital
Steven M SchwartzThe Hospital for Sick Children
James D St LouisMedical College of Georgia
Ingrid M van BeynumErasmus Medical Centre
Ingrid M van BeynumSophia Children's Hospital
Amy Verstappen
Roberta WilliamsChildren's Hospital Los Angeles
Bistra Zheleva
Lisa A HomChildren's National Hospital
Gerard R MartinChildren's National Hospital
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