Skip to Main Content

Paper Details

Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry.
JMIR Med Inform
2
2020
Author NameAffiliation
Martin BoekerInstitute of Medical Biometry and Statistics, Medical Center, University of Freiburg
Martin BoekerInstitute of Medical Biometry and Statistics, Medical Center, University of Freiburg
Christoph KleinDr von Hauner Children's Hospital, University Hospital, Ludwig Maximilians Universitat Munchen
Gerhard KindleInstitute for Immunodeficiency, Center for Chronic Immunodeficiency, Medical Center, University of Freiburg
Gerhard KindleCenter for Biobanking, Medical Center, University of Freiburg
  • 1 - 5

Datasets

Release 1.2