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Paper Details

Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey.
AJOB Empir Bioeth
18
2018
Participants, child, children, parents, patients
Biological Specimen Banks, Biomedical Research, Child, Child, Preschool, Electronic Health Records, Female, Health Knowledge, Attitudes, Practice, Humans, Information Dissemination, Informed Consent, Male, Parental Consent, Parents, Pilot Projects, Research Subjects, Tissue Donors
Author NameAffiliation
Armand H Matheny Antommariaa Ethics Center , Cincinnati Children's Hospital Medical Center.
Armand H Matheny AntommariaUniversity of Cincinnati College of Medicine.
Kyle B BrothersUniversity of Louisville.
John MyersUniversity of Louisville.
Yana FeyginUniversity of Louisville.
Sharon Aufoxd Center for Genetic Medicine , Northwestern University.
Murray H Brilliante Center for Human Genetics , Marshfield Clinic Research Institute.
Pat Conwayf Essentia Institute of Rural Health.
Stephanie M FullertonUniversity of Washington.
Stephanie M FullertonUniversity of Washington.
Nanibaa' A Garrisonh Treuman Katz Center for Pediatric Bioethics , Seattle Children's Hospital and Research Institute.
Nanibaa' A GarrisonUniversity of Washington.
Carol R HorowitzIcahn School of Medicine at Mount Sinai.
Gail P JarvikUniversity of Washington.
Gail P JarvikUniversity of Washington.
Rongling LiNational Human Genome Research Institute.
Rongling LiNational Human Genome Research Institute.
Evette J Ludmanm Kaiser Permanente Washington Health Research Institute.
Catherine A McCartyn University of Minnesota Medical School.
Jennifer B McCormicko Biomedical Ethics Program, Mayo Clinic.
Nathaniel D MercaldoVanderbilt University.
Melanie F MyersUniversity of Cincinnati College of Medicine.
Melanie F MyersCincinnati Children's Hospital Medical Center.
Saskia C SandersonIcahn School of Medicine at Mount Sinai.
Martha J ShrubsoleVanderbilt University Medical Center.
Jonathan S SchildcroutVanderbilt University.
Janet L Williamsu Genomic Medicine Institute
Maureen E Smithv Center for Genetic Medicine , Northwestern University.
E Claytonw Center for Biomedical Ethics and Society, Vanderbilt University Medical Center.
Ingrid A Holmx Division of Genetics and Genomics and the Manton Center for Orphan Diseases Research , Boston Children's Hospital.
Ingrid A HolmHarvard Medical School.
Ingrid A Holmx Division of Genetics and Genomics and the Manton Center for Orphan Diseases Research , Boston Children's Hospital.
Ingrid A HolmHarvard Medical School.
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