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Paper Details

A systematic literature review of evidence-based clinical practice for rare diseases: what are the perceived and real barriers for improving the evidence and how can they be overcome?
Trials
51
2017
Rare diseases, participants, patient, patients, rare, rare diseases
Author NameAffiliation
Ana RathInstitut National de la Sante et de la Recherche Medicale (INSERM)
Ana RathInstitut National de la Sante et de la Recherche Medicale (INSERM)
Edmund NeugebauerBrandenburg Medical School, and Witten/Herdecke University
Jacques Demotes-MainardEuropean Clinical Research Infrastructure Network (ECRIN)
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Release 1.2