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Author Details

Laura M Beskow
Center for Biomedical Ethics and Society, Vanderbilt University Medical Center
2001
89
27
PMIDPaper TitleJournal TitlePublished Year
36699305Landscape of pediatric cancer treatment refusal and abandonment in the US: A qualitative study.Front Pediatr2023
37638811Overcoming refusal of treatment in pediatric cancer without legal involvement: A descriptive case series from interviews with pediatric oncologists.Pediatr Blood Cancer2023
37171717The lived experience of prostate cancer: 10-year survivor perspectives following contemporary treatment of localized prostate cancer.J Cancer Surviv2023
36585534ASO Visual Abstract: Patient Perspectives on Perioperative Supportive Care Needs Surrounding Major Abdominal Operations for Cancer.Ann Surg Oncol2023
36463355Patient Perspectives on Perioperative Supportive Care Needs Surrounding Major Abdominal Operations for Cancer.Ann Surg Oncol2023
34962834Trauma Surgeons' Perceptions of Resuscitating Lethally Injured Patients for Organ Preservation.Am Surg2022
35479264Perspectives on choice of law challenges in multistate precision medicine research.J Law Biosci2022
35709825Use of pragmatic and explanatory trial designs in acute care research: lessons from COVID-19.Lancet Respir Med2022
35496982Addressing choice of law challenges in multi-state precision medicine research: experts' assessment of key factors.J Law Biosci2022
36335955The approach to informed consent in acute care research - Authors' reply.Lancet Respir Med2022
35931047"Choice of law" in precision medicine research.Am J Hum Genet2022
33436273Regional ethics of surgeon resuscitation for organ transplantation after lethal injury.Surgery2021
35529681Certificates of Confidentiality: Mind the Gap.Utah Law Rev2021
33843799Psychosocial Stress Before Major Oncologic Operations: A Qualitative Content Analysis of Palliative Care Provider Documentation.Ann Surg2021
34843533Direct-to-consumer genetic testing: Prospective users' attitudes toward information about ancestry and biological relationships.PLoS One2021
32342752Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations.J Law Med Ethics2020
33948255EHR phenotyping for research recruitment: Researcher, IRB, and physician perspectives on approaches to contacting patients.J Clin Transl Sci2020
33136329Thought Leader Comparisons of Risks in Precision Medicine Research.Ethics Hum Res2020
32677867Consent for Acute Care Research and the Regulatory "Gray Zone".Am J Bioeth2020
32338567Research Use of Electronic Health Records: Patients' Views on Alternative Approaches to Permission.AJOB Empir Bioeth2020
32414333Developing model biobanking consent language: what matters to prospective participants?BMC Med Res Methodol2020
32550652The Project Baseline Health Study: a step towards a broader mission to map human health.NPJ Digit Med2020
32342774Protecting Participants in Genomic Research: Understanding the "Web of Protections" Afforded by Federal and State Law.J Law Med Ethics2020
32342756Ethical Considerations in the Conduct of Unregulated mHealth Research: Expert Perspectives.J Law Med Ethics2020
32342753Expert Perspectives on Oversight for Unregulated mHealth Research: Empirical Data and Commentary.J Law Med Ethics2020
30994064Thought Leader Perspectives on Participant Protections in Precision Medicine Research.J Law Med Ethics2019
31957580Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations.J Law Med Ethics2019
31829237A randomized trial of a specialist palliative care intervention for patients undergoing surgery for cancer: rationale and design of the Surgery for Cancer with Option of Palliative Care Expert (SCOPE) Trial.Trials2019
31239559Genomic databases, subpoenas, and Certificates of Confidentiality.Genet Med2019
31541540Improving Translation and Cultural Appropriateness of Spanish-Language Consent Materials for Biobanks.Ethics Hum Res2019
30808279Patient perspectives on use of electronic health records for research recruitment.BMC Med Res Methodol2019
31068107Exploring Understanding of "Understanding": The Paradigm Case of Biobank Consent Comprehension.Am J Bioeth2019
30475858Thought leader perspectives on benefits and harms in precision medicine research.PLoS One2018
30106660New and Improved? 21<sup>st</sup> Century Cures Act Revisions to Certificates of Confidentiality.Am J Law Med2018
29962827Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance.J Law Med Ethics2018
29986107Research use of electronic health records: patients' perspectives on contact by researchers.J Am Med Inform Assoc2018
30008546Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.J Law Med Ethics2018
30295050Developing informed consent materials for non-English-speaking participants: An analysis of four professional firm translations from English to Spanish.Clin Trials2018
27735922Improving biobank consent comprehension: a national randomized survey to assess the effect of a simplified form and review/retest intervention.Genet Med2017
28328375Genotype-Driven Recruitment and the Disclosure of Individual Research Results.Am J Bioeth2017
29657859A survey of practices for the use of electronic health records to support research recruitment.J Clin Transl Sci2017
26979405Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.Annu Rev Genomics Hum Genet2016
27800531Patients' Views Concerning Research on Medical Practices: Implications for Consent.AJOB Empir Bioeth2016
25144889Informed consent for biobanking: consensus-based guidelines for adequate comprehension.Genet Med2015
26479569Certificates of Confidentiality: Protecting Human Subject Research Data in Law and Practice.J Law Med Ethics2015
26479560Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families.J Law Med Ethics2015
26479559Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles.J Law Med Ethics2015
26479555Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.J Law Med Ethics2015
26374677Use of altered informed consent in pragmatic clinical research.Clin Trials2015
24459038Proposed regulations for research with biospecimens: responses from stakeholders at CTSA consortium institutions.Am J Med Genet A2014
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Collaborators

Kathleen M Brelsford
Center for Biomedical Ethics and Society, Vanderbilt University Medical Center
Co-authored papers 18
Kevin P Weinfurt
Center for Health Measurement, Duke University
Co-authored papers 9
Wylie Burke
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 7
Benjamin S Wilfond
University of Washington School of Medicine.
Co-authored papers 7
Patricia Pearl O'Rourke
Harvard Medical School
Co-authored papers 6
Stephanie M Fullerton
University of Washington School of Medicine
Co-authored papers 6
Robert C Green
Brigham and Women's Hospital, Broad Institute Ariadne Labs and Harvard Medical School
Co-authored papers 4
Myrick C Shinall
Vanderbilt University Medical Center
Co-authored papers 4
Mark A Rothstein
University of Louisville
Co-authored papers 4
Susan M Wolf
Law School and Medical School, University of Minnesota
Co-authored papers 4
Barbara A Koenig
University of California-San Francisco.
Co-authored papers 4
Gail E Henderson
University of North Carolina-Chapel Hill
Co-authored papers 3
Bonnie S LeRoy
University of Minnesota
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Gloria M Petersen
Mayo Clinic
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Marsha Michie
Case Western Reserve University School of Medicine
Co-authored papers 3
Sharon F Terry
Icahn School of Medicine at Mount Sinai
Co-authored papers 3
Eugene Wesley Ely
Vanderbilt University Medical Center
Co-authored papers 3
Brian Van Ness
University of Minnesota
Co-authored papers 3
Amy L McGuire
Baylor College of Medicine.
Co-authored papers 3
Muin J Khoury
Centers for Disease Control and Prevention Atlanta GA USA.
Co-authored papers 3
E Clayton
Harvard Medical School, Vanderbilt University, Yale University Yale Law School
Co-authored papers 3
Noralane M Lindor
Mayo Clinic
Co-authored papers 2
Carmen Radecki Breitkopf
Mayo Clinic
Co-authored papers 2
Laura Lyman Rodriguez
Patient-Centered Outcomes Research Institute
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Mayur B Patel
Vanderbilt University Medical Center
Co-authored papers 2
Jeremy Sugarman
Johns Hopkins University, Berman Institute of Bioethics
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Karen J Maschke
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Richard R Sharp
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