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Author Details

Robert J Graham
Boston Children's Hospital
1999
76
22
PMIDPaper TitleJournal TitlePublished Year
36938610Hospital Access Patterns of Children With Technology Dependence.Pediatrics2023
37607094Tracheostomy Timing During Pediatric Cardiac Intensive Care: Single Referral Center Retrospective Cohort.Pediatr Crit Care Med2023
37280644Real-world analysis of healthcare resource utilization by patients with X-linked myotubular myopathy (XLMTM) in the United States.Orphanet J Rare Dis2023
36448249Early childhood developmental skills of children with tracheostomies and ventilators recently discharged home.Pediatr Pulmonol2023
36897092Child Opportunity Index and Emergent PICU Readmissions: A Retrospective, Cross-Sectional Study of 43 U.S. Hospitals.Pediatr Crit Care Med2023
36661425A Call for Defining Pediatric Chronic Critical Illness: Moving Beyond I Know It When I See It.Pediatr Crit Care Med2023
34355408Tele-mental health intervention for caregivers of children on home ventilation: A randomized control trial.Child Care Health Dev2022
35767569Airway Bacterial Colonization, Biofilms and Blooms, and Acute Respiratory Infection.Pediatr Crit Care Med2022
35694931INCEPTUS Natural History, Run-in Study for Gene Replacement Clinical Trial in X-Linked Myotubular Myopathy.J Neuromuscul Dis2022
35687103Outcomes for Children With Pulmonary Hypertension Undergoing Tracheostomy Placement: A Multi-Institutional Analysis.Pediatr Crit Care Med2022
34893971Clinical Characteristics and Outcomes of Children with Acute Catastrophic Brain Injury: A 13-Year Retrospective Cohort Study.Neurocrit Care2022
34366366Intrahepatic Cholestasis Is a Clinically Significant Feature Associated with Natural History of X-Linked Myotubular Myopathy (XLMTM): A Case Series and Biopsy Report.J Neuromuscul Dis2022
34055702Chronic Illness in Pediatric Critical Care.Front Pediatr2021
33847017Clinical, neuroimaging, and molecular spectrum of TECPR2-associated hereditary sensory and autonomic neuropathy with intellectual disability.Hum Mutat2021
33822657Dysphagia Phenotypes in Spinal Muscular Atrophy: The Past, Present, and Promise for the Future.Am J Speech Lang Pathol2021
33843254Costs and health resource use in patients with X-linked myotubular myopathy: insights from US commercial claims.J Manag Care Spec Pharm2021
33666349"New Trach Mom Here⿦": A qualitative study of internet-based resources by caregivers of children with tracheostomy.Pediatr Pulmonol2021
34277522Outcome Measures Following Critical Illness in Children With Disabilities: A Scoping Review.Front Pediatr2021
34185224Health-related quality of life outcome measures for children surviving critical care: a scoping review.Qual Life Res2021
31484632Mortality and respiratory support in X-linked myotubular myopathy: a RECENSUS retrospective analysis.Arch Dis Child2020
32949218Home nursing for children with home mechanical ventilation in the United States: Key informant perspectives.Pediatr Pulmonol2020
32896358Patient and caregiver experiences at a Multidisciplinary Tracheostomy Clinic.Int J Pediatr Otorhinolaryngol2020
32780599Discharge Practices for Children with Home Mechanical Ventilation across the United States. Key-Informant Perspectives.Ann Am Thorac Soc2020
32212321Readmission drivers for children with medical complexity: Home nursing shortages cause health crises.Pediatr Pulmonol2020
32267725"This Is How Hard It Is". Family Experience of Hospital-to-Home Transition with a Tracheostomy.Ann Am Thorac Soc2020
32482844Ethical decision-making for children with neuromuscular disorders in the COVID-19 crisis.Neurology2020
30664592Bridging the Stressful Gap Between ICU and Home: Medical Simulation for Pediatric Patients and Their Families.Pediatr Crit Care Med2019
31495930X-linked myotubular myopathy and pulmonary blebs: Not just a muscle disorder.Muscle Nerve2019
31536099Association of a Multidisciplinary Care Approach With the Quality of Care After Pediatric Tracheostomy.JAMA Otolaryngol Head Neck Surg2019
30461228Pediatric patients with home mechanical ventilation: The health services landscape.Pediatr Pulmonol2019
30591237Pre-Nusinersen Hospitalization Costs of Children With Spinal Muscular Atrophy.Pediatr Neurol2019
29290580Diagnosis and management of spinal muscular atrophy: Part 1: Recommendations for diagnosis, rehabilitation, orthopedic and nutritional care.Neuromuscul Disord2018
29699728Comprehensive nutritional and metabolic assessment in patients with spinal muscular atrophy: Opportunity for an individualized approach.Neuromuscul Disord2018
29462107Tracheal Microbiota in Patients With a Tracheostomy Before, During and After an Acute Respiratory Infection.Pediatr Infect Dis J2018
29406371Pediatric Specialty Care Model for Management of Chronic Respiratory Failure: Cost and Savings Implications and Misalignment With Payment Models.Pediatr Crit Care Med2018
29305137Diagnosis and management of spinal muscular atrophy: Part 2: Pulmonary and acute care; medications, supplements and immunizations; other organ systems; and ethics.Neuromuscul Disord2018
29228163Ethical Challenges Confronted When Providing Nusinersen Treatment for Spinal Muscular Atrophy.JAMA Pediatr2018
28629924Predicting Health Care Utilization for Children With Respiratory Insufficiency Using Parent-Proxy Ratings of Children's Health-Related Quality of Life.J Pediatr Health Care2017
28369555Understanding the Relationship Between Child Health-Related Quality of Life and Parent Emotional Functioning in Pediatric Hematopoietic Stem Cell Transplant.J Pediatr Psychol2017
29757321Leveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss.J Patient Rep Outcomes2017
28668199Chronic respiratory failure: Utilization of a pediatric specialty integrated care program.Healthc (Amst)2017
28796800The temporal dynamics of the tracheal microbiome in tracheostomised patients with and without lower respiratory infections.PLoS One2017
27060012Two-year mortality, complications, and healthcare use in children with medicaid following tracheostomy.Laryngoscope2016
27289498The Impact on Family of Pediatric Chronic Respiratory Failure in the Home.J Pediatr2016
26803333Nutritional Status and Nutrient Intake Challenges in Children With Spinal Muscular Atrophy.Pediatr Neurol2016
25444009Metabolic assessment and individualized nutrition in children dependent on mechanical ventilation at home.J Pediatr2015
26771040Author response.Neurology2015
25825463Evidence-based guideline summary: evaluation, diagnosis, and management of congenital muscular dystrophy: Report of the Guideline Development Subcommittee of the American Academy of Neurology and the Practice Issues Review Panel of the American Association of Neuromuscular & Electrodiagnostic Medicine.Neurology2015
25944746Impact of Individualized Diet Intervention on Body Composition and Respiratory Variables in Children With Respiratory Insufficiency: A Pilot Intervention Study.Pediatr Crit Care Med2015
23942254Family-centered assessment and function for children with chronic mechanical respiratory support.J Pediatr Health Care2014
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Collaborators

Boston Children's Hospital, Harvard Medical School
Co-authored papers 7
UCL Great Ormond Street Institute of Child Health
Co-authored papers 4
Broad Institute of MIT and Harvard
Co-authored papers 4
Ann & Robert H. Lurie Children's Hospital of Chicago
Co-authored papers 4
Boston Children's Hospital, Harvard Medical School
Co-authored papers 4
Center for Experimental Neurotherapeutics, St. Jude Children's Research Hospital
Co-authored papers 2
Boston Children's Hospital and Harvard Medical School
Co-authored papers 2
Lurie Children's Hospital
Co-authored papers 2
Center for Genetic Medicine Research, Children's National Research Institute
Co-authored papers 2
7Children's Hospital of Philadelphia
Co-authored papers 2
Center for Applied Pediatric Quality Analytics, Boston Children's Hospital
Co-authored papers 2
Bayhealth Medical Center
Co-authored papers 2
IRCCS Bambino Gesu Children's Research Hospital
Co-authored papers 2
Co-authored papers 2
Boston Children's Hospital
Co-authored papers 2
Boston Children's Hospital
Co-authored papers 2
Murdoch Children's Research Institute
Co-authored papers 2
University of Minnesota Masonic Children's Hospital
Co-authored papers 2
University of Washington School of Medicine
Co-authored papers 2
Boston Children's Hospital
Co-authored papers 2
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Co-authored papers 1
Harvard Medical School, Boston Children's Hospital
Co-authored papers 1
Texas Children's Hospital
Co-authored papers 1
NIHR Biomedical Research Centre, University of Oxford
Co-authored papers 1
Dr. Steevens' Hospital
Co-authored papers 1
Children's Hospital of Philadelphia
Co-authored papers 1
Boston Children's Hospital
Co-authored papers 1
Northwestern University Feinberg School of Medicine
Co-authored papers 1
University of Utah
Co-authored papers 1
University of Alabama at Birmingham
Co-authored papers 1