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Author Details

Sandra Soo-Jin Lee
Division of Ethics, Department of Medical Humanities and Ethics, Columbia University
2003
49
18
Vardit Ravitsky (CM4AI)
PMIDPaper TitleJournal TitlePublished Year
36724788Trustworthiness matters: Building equitable and ethical science.Cell2023
37442104Rethinking Benefit and Responsibility in the Context of Diversity: Perspectives from the Front Lines of Precision Medicine Research.Public Health Genomics2023
34251046Health equality, race and pharmacogenomics.Br J Clin Pharmacol2022
35663112A scoping review of ethics considerations in clinical natural language processing.JAMIA Open2022
35935917Three decades of ethical, legal, and social implications research: Looking back to chart a path forward.Cell Genom2022
33846877Neighborhood Contexts and Breast Cancer Among Asian American Women.J Immigr Minor Health2022
35123916Corrigendum to "Cancer Health Assessments Reaching Many (CHARM): A clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations" [Contemporary Clinical Trials 106 (2021) 106432].Contemp Clin Trials2022
33984519Cancer Health Assessments Reaching Many (CHARM): A clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations.Contemp Clin Trials2021
34834546Feasibility of a Traceback Approach for Using Pathology Specimens to Facilitate Genetic Testing in the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study Protocol.J Pers Med2021
32597530Excavating the Personal Genome: The Good Biocitizen in the Age of Precision Health.Hastings Cent Rep2020
32089547Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.Genet Med2020
30767860Higher Breast Cancer Risk Among Immigrant Asian American Women Than Among US-Born Asian American Women.Prev Chronic Dis2019
29493583Anticipating uncertainty and irrevocable decisions: provider perspectives on implementing whole-genome sequencing in critically ill children with heart disease.Genet Med2018
29697352Trustworthiness in Untrustworthy Times: Response to Open Peer Commentaries on Beyond Consent.Am J Bioeth2018
27625314A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent.Clin Trials2017
34423150The Ethics of Translational Science: Imagining Public Benefit in Gene-Environment Interaction Research.Engag Sci Technol Soc2017
30146866Research on Medical Practices (ROMP): Attitudes of IRB Personnel about Randomization and Informed Consent.IRB2017
30387977Research on Medical Practices: Why Patients Consider Participating and the Investigational Misconception.IRB2017
28207351Studying "Friends": The Ethics of Using Social Media as Research Platforms.Am J Bioeth2017
29220032Institutional culture is the key to team science.Nat Biotechnol2017
27053683Strategies for recruiting representative samples of Asian Americans for a population-based case-control study.J Epidemiol Community Health2016
34456398Accounting for Complexity: Gene-environment Interaction Research and the Moral Economy of Quantification.Sci Technol Human Values2016
27842524Introduction to the article collection 'Translation in healthcare: ethical, legal, and social implications'.BMC Med Ethics2016
27917391Adrift in the Gray Zone: IRB Perspectives on Research in the Learning Health System.AJOB Empir Bioeth2016
27257125A comparison of institutional review board professionals' and patients' views on consent for research on medical practices.Clin Trials2016
26994357Enacting the molecular imperative: How gene-environment interaction research links bodies and environments in the post-genomic age.Soc Sci Med2016
26832115The Role of Patient Perspectives in Clinical Research Ethics and Policy: Response to Open Peer Commentaries on "Patient Perspectives on the Learning Health System".Am J Bioeth2016
25868119Attitudes Toward Risk and Informed Consent for Research on Medical Practices: A Cross-sectional Survey.Ann Intern Med2015
26305741Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making.Am J Bioeth2015
23728783Views of genetics health professionals on the return of genomic results.J Genet Couns2014
25272613Homogeneity and heterogeneity as situational properties: producing--and moving beyond?--race in post-genomic science.Soc Stud Sci2014
25378251Race and ancestry in the age of inclusion: technique and meaning in post-genomic science.J Health Soc Behav2014
24714474The time is ripe for an ethics of entrepreneurship.Nat Biotechnol2014
23510111Personal genome testing in medical education: student experiences with genotyping in the classroom.Genome Med2013
25562728Attitudes towards Social Networking and Sharing Behaviors among Consumers of Direct-to-Consumer Personal Genomics.J Pers Med2013
24223516Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate.PLoS Biol2013
24214161Race, risk, and recreation in personal genomics: the limits of play.Med Anthropol Q2013
22452476Assessing the pedagogical goals of self-testing in evaluating the consultation needs of different student populations.Am J Bioeth2012
22830179Informational risk, institutional review, and autonomy in the proposed changes to the common rule.IRB2012
19204420Pharmacogenomics and the challenge of health disparities.Public Health Genomics2009
19998112Research 2.0: social networking and direct-to-consumer (DTC) genomics.Am J Bioeth2009
19998097Response to open peer commentaries on "Research 2.0: social networking and direct-to-consumer personal genomics".Am J Bioeth2009
19150830Medicine. Racing forward: the Genomics and Personalized Medicine Act.Science2009
18638359The ethics of characterizing difference: guiding principles on using racial categories in human genetics.Genome Biol2008
17186010The ethical implications of stratifying by race in pharmacogenomics.Clin Pharmacol Ther2007
16257939Racializing drug design: implications of pharmacogenomics for health disparities.Am J Public Health2005
29793238personalized medicine and pharmacogenomics: ethical and social challenges.Per Med2005
15213210Genetic research and health disparities.JAMA2004
14672519Race, distributive justice and the promise of pharmacogenomics: ethical considerations.Am J Pharmacogenomics2003
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Collaborators

Center for Biomedical Ethics, Stanford University School of Medicine
Co-authored papers 17
University of Washington School of Medicine
Co-authored papers 12
University of Washington School of Medicine.
Co-authored papers 12
Stanford Center for Biomedical Ethics, Stanford University
Co-authored papers 8
Seattle Children's Hospital
Co-authored papers 7
Google
Co-authored papers 6
University of California San Francisco
Co-authored papers 5
Gould School of Law & Keck School of Medicine, University of Southern California
Co-authored papers 5
Seattle Children's Hospital, University of Washington School of Medicine
Co-authored papers 5
University of California San Francisco
Co-authored papers 5
Kaiser Permanente Center for Health Research
Co-authored papers 4
Stanford University School of Medicine
Co-authored papers 4
Co-authored papers 3
Center for Health Research, Kaiser Permanente Northwest
Co-authored papers 3
Co-authored papers 3
Medical Ethics and Health Policy, University of Pennsylvania
Co-authored papers 3
and Translational Research Center
Co-authored papers 3
Kaiser Permanente Center for Health Research
Co-authored papers 3
University of Washington Medical Center
Co-authored papers 2
Illumina Inc.
Co-authored papers 2
University of Pennsylvania, Department of Medical Ethics and Health Policy
Co-authored papers 2
University of Washington School of Medicine
Co-authored papers 2
Vanderbilt-Ingram Cancer Center, Vanderbilt University Medical Center
Co-authored papers 2
University of California-San Francisco.
Co-authored papers 2
The Center for Law and the Biosciences, Stanford University
Co-authored papers 2
University of Washington
Co-authored papers 2
The Hospital for Sick Children
Co-authored papers 1
Mayo Clinic
Co-authored papers 1
Center for Health Research, Kaiser Permanente Northwest Research Center
Co-authored papers 1
University of Oklahoma
Co-authored papers 1