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Author Details

Joan Scott
2005
20
15
PMIDPaper TitleJournal TitlePublished Year
35642870Introducing the Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs.Pediatrics2022
35642876A Blueprint for Change: Guiding Principles for a System of Services for Children and Youth With Special Health Care Needs and Their Families.Pediatrics2022
35642873Progress, Persistence, and Hope: Building a System of Services for CYSHCN and Their Families.Pediatrics2022
22402755Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.Genet Med2012
29768770Preparing health professionals for individualized medicine.Per Med2012
22538255Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients.Genet Med2012
22278220Risky business: risk perception and the use of medical services among customers of DTC personal genetic testing.J Genet Couns2012
22411865New models for large prospective studies: is there a better way?Am J Epidemiol2012
21828326Noninvasive fetal sex determination using cell-free fetal DNA: a systematic review and meta-analysis.JAMA2011
19556748Developing the blueprint for a genetic testing registry.Public Health Genomics2010
19346960Veterans' attitudes regarding a database for genomic research.Genet Med2009
19878915Public opinion about the importance of privacy in biobank research.Am J Hum Genet2009
19833988Public perspectives on informed consent for biobanking.Am J Public Health2009
18189289Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion.Am J Med Genet C Semin Med Genet2008
19011407Subjects matter: a survey of public opinions about a large genetic cohort study.Genet Med2008
19061108Public expectations for return of results from large-cohort genetic research.Am J Bioeth2008
18700896Carrier screening for cystic fibrosis in US genetic testing laboratories: a survey of laboratory directors.Clin Genet2008
16964214Oversight of US genetic testing laboratories.Nat Biotechnol2006
15950627Opinions about new reproductive genetic technologies: hopes and fears for our genetic future.Fertil Steril2005
16274615PGD patients' and providers' attitudes to the use and regulation of preimplantation genetic diagnosis.Reprod Biomed Online2005
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Collaborators

Kathy Hudson
From the National Institutes of Health
Co-authored papers 12
Juli Bollinger
Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 11
David Kaufman
National Human Genome Research Institute
Co-authored papers 11
Lisa LeRoy
Abt Associates Inc.
Co-authored papers 4
Gail Geller
Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 4
Gail H Javitt
D.C. and Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 3
Rachel Dvoskin
Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 3
Andrea L Kalfoglou
University of Maryland
Co-authored papers 2
Teresa Doksum
Abt Associates Inc.
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Daniel R Masys
University of Washington School of Medicine.
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Christine D Berg
Co-authored papers 1
Barbara A Bernhardt
Thomas Jefferson University
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Rory Collins
Co-authored papers 1
Nancy L Pedersen
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Francis S Collins
University of Michigan ann arbor
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David J Doukas
a Tulane University School of Medicine, New Orleans VA Medical Center
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Nancy Reame
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VA Boston Healthcare System
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Catherine A McCarty
University of Minnesota Medical School, 1035 University Drive duluth
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Robert N Hoover
National Cancer Institute
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Debra J H Mathews
Carlsberg Laboratory, Case Western Reserve University, Johns Hopkins Medicine, Johns Hopkins School of Medicine, Johns Hopkins School of Public Health, Johns Hopkins University, National Academy of Sciences, Pennsylvania State University, Presidential Commission for the Study of Bioethical Issues
Co-authored papers 1
John H Evans
Institute for Practical Ethics, University of California
Co-authored papers 1
Catherine Schaefer
Co-authored papers 1
John R McLaughlin
University of Toronto Dalla Lana School of Public Health
Co-authored papers 1
Teri A Manolio
National Human Genome Research Institute
Co-authored papers 1
Release 1.2