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Author Details

Anna Middleton
Kavli Centre for Ethics, University of Cambridge
1997
72
23
PMIDPaper TitleJournal TitlePublished Year
36316490Scope of professional roles for genetic counsellors and clinical geneticists in the United Kingdom : Position on behalf of the Association of Genetic Nurses and Counsellors and the Clinical Genetics Society.Eur J Hum Genet2023
37928209Public engagement with genomics.Wellcome Open Res2023
37869565The legacy of language: What we say, and what people hear, when we talk about genomics.HGG Adv2023
37339292What Difference Can Public Engagement in Genome Editing Make, and for Whom?Am J Bioeth2023
36316491The genetic counsellor role in the United Kingdom : Position on behalf of the Association of Genetic Nurses and Counsellors (AGNC), Endorsed by the Genetic Counsellor Registration Board (GCRB) and Academy for Healthcare Science (AHCS).Eur J Hum Genet2023
35309760A public backlash towards genomics is a risk all of us working in genomics must share.Lancet Reg Health Eur2022
35158310Towards equitable and trustworthy genomics research.EBioMedicine2022
35125311Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries.Genet Med2022
34034801Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries.Genome Med2021
35592835Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation.Wellcome Open Res2021
33576268Attitudes of Costa Rican individuals towards donation of personal genetic data for research.Per Med2021
33635607The expectations and realities of nutrigenomic testing in australia: A qualitative study.Health Expect2021
35072136GA4GH: International policies and standards for data sharing across genomic research and healthcare.Cell Genom2021
32301236A Roadmap for Global Acceleration of Genomics Integration Across Nursing.J Nurs Scholarsh2020
31784701Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data.Eur J Hum Genet2020
31885332From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing.AJOB Empir Bioeth2020
32946764Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?Am J Hum Genet2020
32943515Global citizen deliberation on genome editing.Science2020
32592453A Maturity Matrix for Nurse Leaders to Facilitate and Benchmark Progress in Genomic Healthcare Policy, Infrastructure, Education, and Delivery.J Nurs Scholarsh2020
32238912Willingness to donate genomic and other medical data: results from Germany.Eur J Hum Genet2020
30439534Australians' perspectives on support around use of personal genomic testing: Findings from the Genioz study.Eur J Med Genet2019
31784025Should doctors have a legal duty to warn relatives of their genetic risks?Lancet2019
31886409Genomic variant sharing: a position statement.Wellcome Open Res2019
31531740Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia.Hum Genet2019
31004824World congress on genetic counselling.Eur J Med Genet2019
30991113Point of View: An evolution from genetic counselling to genomic counselling.Eur J Med Genet2019
30291341The Global State of the Genetic Counseling Profession.Eur J Hum Genet2019
30476628Attitudes of publics who are unwilling to donate DNA data for research.Eur J Med Genet2019
30590173Popular culture and genetics; friend, foe or something more complex?Eur J Med Genet2019
30666046Australians' views and experience of personal genomic testing: survey findings from the Genioz study.Eur J Hum Genet2019
30384109The preferences of potential stakeholders in psychiatric genomic research regarding consent procedures and information delivery.Eur Psychiatry2019
29706641Australians' views on personal genomic testing: focus group findings from the Genioz study.Eur J Hum Genet2018
30102210A roadmap for restoring trust in Big Data.Lancet Oncol2018
29856292'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods.Per Med2018
30007148Increasing nursing capacity in genomics: Overview of existing global genomics resources.Nurse Educ Today2018
29617718Genetic counselling in the era of genomic medicine.Br Med Bull2018
29522190Society and personal genome data.Hum Mol Genet2018
29575600Genetic counseling globally: Where are we now?Am J Med Genet C Semin Med Genet2018
29608246The Global Landscape of Nursing and Genomics.J Nurs Scholarsh2018
29454384APPLaUD: access for patients and participants to individual level uninterpreted genomic data.Hum Genomics2018
28517993Your DNA, Your Say.New Bioeth2017
28327572The role of genetic counsellors in genomic healthcare in the United Kingdom: a statement by the Association of Genetic Nurses and Counsellors.Eur J Hum Genet2017
28443545Socialising the genome.Lancet2017
28317033Returning genome sequences to research participants: Policy and practice.Wellcome Open Res2017
29767582Direct-to-consumer genetic testing: where and how does genetic counseling fit?Per Med2017
29295058Consumer Health Informatics Aspects of Direct-to-Consumer Personal Genomic Testing.Stud Health Technol Inform2017
28777929Human Germline Genome Editing.Am J Hum Genet2017
28817238Stakeholders in psychiatry and their attitudes toward receiving pertinent and incident findings in genomic research.Am J Med Genet A2017
25920556Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.Eur J Hum Genet2016
25529584No expectation to share incidental findings in genomic research.Lancet2015
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Collaborators

Queen Mary University of London, United Kingdom Society and Ethics Research
Co-authored papers 18
The University of Melbourne
Co-authored papers 13
Terry Fox Research Institute.
Co-authored papers 9
Universite de Montreal.
Co-authored papers 8
Clinical Genetics, Addenbrooke's Hospital, Cambridge University Hospitals
Co-authored papers 8
Murdoch Children's Research Institute
Co-authored papers 8
University of Exeter, Royal Devon and Exeter Hospital
Co-authored papers 8
Wellcome Sanger Institute
Co-authored papers 6
Sydney Health Ethics, Sydney School of Public Health, The University of Sydney
Co-authored papers 6
University of Tasmania
Co-authored papers 6
Ontario Institute for Cancer Research
Co-authored papers 6
University of Melbourne
Co-authored papers 5
University of Ottawa
Co-authored papers 4
National Institutes of Health, National Cancer Institute, Center for Cancer Research
Co-authored papers 4
Institute for Biomedicine (Affiliated Institute of the University of Lubeck)
Co-authored papers 3
European Bioinformatics Institute
Co-authored papers 3
Stanford University School of Medicine
Co-authored papers 3
Icahn School of Medicine at Mount Sinai
Co-authored papers 3
Co-authored papers 3
Department of Medical Ethics and Law, Peking University Health Science Center
Co-authored papers 3
Cleveland Clinic
Co-authored papers 2
Co-authored papers 2
Clinical Ethics, University of Oxford
Co-authored papers 2
McGill University.
Co-authored papers 2
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The University of Melbourne, The Royal Children's Hospital
Co-authored papers 2
Osaka University
Co-authored papers 2
Centre for Medical Ethics and Law, University of Hong Kong
Co-authored papers 2
Patient-Centered Outcomes Research Institute
Co-authored papers 2
European Bioinformatics Institute
Co-authored papers 2