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Author Details

Jessica Mozersky
Bioethics Research Center, Washington University School of Medicine
2012
42
11
Vardit Ravitsky (CM4AI)
PMIDPaper TitleJournal TitlePublished Year
36178120A flexible modeling approach for biomarker-based computation of absolute risk of Alzheimer's disease dementia.Alzheimers Dement2023
37831745Exchanging words: Engaging the challenges of sharing qualitative research data.Proc Natl Acad Sci U S A2023
36693433Ethical Aspects of Prodromal Synucleinopathy Prognostic Counseling.Semin Neurol2023
36891257Barriers to Using Legally Authorized Representatives in Clinical Research with Older Adults.J Alzheimers Dis Rep2023
34410175Understanding the Use of Optimal Formatting and Plain Language When Presenting Key Information in Clinical Trials.J Empir Res Hum Res Ethics2022
35404285Spillover: The Approval of New Medications for Alzheimer's Disease Dementia Will Impact Biomarker Disclosure Among Asymptomatic Research Participants.J Alzheimers Dis2022
35600235Responding to Sexual Abuse in Health Care: Development of a Guide for Patients.J Patient Cent Res Rev2022
36721403A randomized implementation trial to increase adoption of evidence-informed consent practices.J Clin Transl Sci2022
36316973Challenges and Possible Solutions to Adapting to Virtual Recruitment: Lessons Learned from a Survey Study during the Covid-19 Pandemic.Ethics Hum Res2022
33337371Communicating 5-Year Risk of Alzheimer's Disease Dementia: Development and Evaluation of Materials that Incorporate Multiple Genetic and Biomarker Research Results.J Alzheimers Dis2021
33683017Balancing External Validity and Concern for Psychosocial Harms in Translational Genetic Research.Ethics Hum Res2021
34972126Barriers and facilitators to qualitative data sharing in the United States: A survey of qualitative researchers.PLoS One2021
34589234Perceived barriers to assessing understanding and appreciation of informed consent in clinical trials: A mixed-method study.J Clin Transl Sci2021
34435175Enabling qualitative research data sharing using a natural language processing pipeline for deidentification: moving beyond HIPAA Safe Harbor identifiers.JAMIA Open2021
34803074Development of a Resource Guide to Help Patients Receive Appropriate Care.J Health Care Poor Underserved2021
34267947Attitudes toward genomics and precision medicine.J Clin Transl Sci2021
30565162Core Functions of Communication in Pediatric Medicine: an Exploratory Analysis of Parent and Patient Narratives.J Cancer Educ2020
31984765How do clinical research coordinators learn Good Clinical Practice? A mixed-methods study of factors that predict uptake of knowledge.Clin Trials2020
33244420How are US institutions implementing the new key information requirement?J Clin Transl Sci2020
33416568Full Collection of Personal Narratives.Narrat Inq Bioeth2020
33416567Living with Alzheimer Disease and Other Types of Dementia: Stories from Caregivers.Narrat Inq Bioeth2020
32572386The National Institute of Allergy and Infectious Diseases Decision to Stop the Adaptive COVID-19 Trial: On Solid Ethical and Scientific Grounds.JACC Basic Transl Sci2020
32449658What's the Role of Time in Shared Decision Making?AMA J Ethics2020
32414353Pediatric reporting of genomic results study (PROGRESS): a mixed-methods, longitudinal, observational cohort study protocol to explore disclosure of actionable adult- and pediatric-onset genomic variants to minors and their parents.BMC Pediatr2020
32208070The "Ought-Is" Problem: An Implementation Science Framework for Translating Ethical Norms Into Practice.Am J Bioeth2020
32205903Are we ready to share qualitative research data? Knowledge and preparedness among qualitative researchers, IRB Members, and data repository curators.IASSIST Q2020
32233117Research Participant Views regarding Qualitative Data Sharing.Ethics Hum Res2020
32313704Assessing clinical research coordinator knowledge of good clinical practice: An evaluation of the state of the art and a test validation study.J Clin Transl Sci2020
30676904Serious Ethical Violations in Medicine: A Statistical and Ethical Analysis of 280 Cases in the United States From 2008-2016.Am J Bioeth2019
31660241Validating curricular competencies in innovation and entrepreneurship for biomedical research trainees: A modified Delphi approach.J Clin Transl Sci2019
29059270Comprehension of an Elevated Amyloid Positron Emission Tomography Biomarker Result by Cognitively Normal Older Adults.JAMA Neurol2018
30093794Seeing Beyond the Margins: Challenges to Informed Inclusion of Vulnerable Populations in Research.J Law Med Ethics2018
30984914Preventing Egregious Ethical Violations in Medical Practice: Evidence-Informed Recommendations from a Multidisciplinary Working Group.J Med Regul2018
27996924Mandating Moral Reflection?Am J Bioeth2017
28301696Toward an Ethically Sensitive Implementation of Noninvasive Prenatal Screening in the Global Context.Hastings Cent Rep2017
28328357Expanding Our Lens: Thinking Beyond Genomics.Am J Bioeth2017
26632363Cherchez la Femme: Reproductive CRISPR and Women's Choices.Am J Bioeth2015
24445287"Use it or lose it" as an alternative approach to protect genetic privacy in personalized medicine.Urol Oncol2014
25593598Variants of uncertain significance in BRCA: a harbinger of ethical and policy issues to come?Genome Med2014
23213100Results of annual screening in phase I of the United Kingdom familial ovarian cancer screening study highlight the need for strict adherence to screening schedule.J Clin Oncol2013
23222661Cell-free fetal DNA testing: who is driving implementation?Genet Med2013
22257279Who's to blame? Accounts of genetic responsibility and blame among Ashkenazi Jewish women at risk of BRCA breast cancer.Sociol Health Illn2012
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Collaborators

Jennifer K Wagner
Pennsylvania State University, University Park
Co-authored papers 2
Pamela Sankar
University of Pennsylvania, Department of Medical Ethics and Health Policy
Co-authored papers 2
Adam H Buchanan
Genomic Medicine Institute, Geisinger Medical Center
Co-authored papers 2
Rayna Rapp
New York University
Co-authored papers 2
Marsha Michie
Case Western Reserve University School of Medicine
Co-authored papers 2
Megan Allyse
Mayo Clinic
Co-authored papers 2
Alanna Kulchak Rahm
Research Institute
Co-authored papers 2
John C Morris
Washington University School of Medicine
Co-authored papers 1
David J Doukas
a Tulane University School of Medicine, New Orleans VA Medical Center
Co-authored papers 1
Nancy S Jecker
University of Washington School of Medicine
Co-authored papers 1
Robert Cook-Deegan
Arizona State University.
Co-authored papers 1
Malia Rumbaugh
Indiana University School of Medicine
Co-authored papers 1
Vardit Ravitsky (CM4AI)
The Hastings Center
Co-authored papers 1
Helena Kirchner
Baylor College of Medicine
Co-authored papers 1
Elizabeth Benjamin
Grady Memorial Hospital
Co-authored papers 1
Steven Joffe
Medical Ethics and Health Policy, University of Pennsylvania
Co-authored papers 1
Laura J Bierut
Co-authored papers 1
Subhashini Chandrasekharan
National Institutes of Health
Co-authored papers 1
Usha Menon
College of Nursing, University of South Florida
Co-authored papers 1
Jeffrey Scott Roberts
School of Public Health.
Co-authored papers 1
Douglas Galasko
Co-authored papers 1
Steven J Skates
Co-authored papers 1
Naveena Singh
Barts Health NHS Trust
Co-authored papers 1
Jason Karlawish
University of Pennsylvania Perelman School of Medicine
Co-authored papers 1
Marc S Williams
University of Washington Medical Center
Co-authored papers 1
Release 1.2