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Author Details

Hadley Stevens Smith
Center for Medical Ethics and Health Policy, Baylor College of Medicine
2017
36
11
PMIDPaper TitleJournal TitlePublished Year
38064200The motivation and process for developing a consortium-wide time and motion study to estimate resource implications of innovations in the use of genome sequencing to inform patient care.Clin Transl Sci2024
36567057Lessons learned while starting multi-institutional genetics research in diverse populations: A report from the Clinical Sequencing Evidence-Generating Research (CSER) consortium.Contemp Clin Trials2023
37563063Pediatric Genomic Medicine: Value, Implementation, and Access.Clin Ther2023
37550140Conversations With the Editors: Stewardship in Genomic Medicine-Insights From Health Care Payers at the Forefront of Clinical Innovation and Partnerships.Clin Ther2023
37470118Parent-Reported Clinical Utility of Pediatric Genomic Sequencing.Pediatrics2023
37339288The Other Side of the Self-Advocacy Coin: How For-Profit Companies Can Divert the Path to Justice in Rare Disease.Am J Bioeth2023
37468037Clinically Indicated Genomic Sequencing of Children in Foster Care: Legal and Ethical Issues.J Pediatr2023
37238322Framing the Family: A Qualitative Exploration of Factors That Shape Family-Level Experience of Pediatric Genomic Sequencing.Children (Basel)2023
36547467Access to clinically indicated genetic tests for pediatric patients with Medicaid: Evidence from outpatient genetics clinics in Texas.Genet Med2023
36434257Key drivers of family-level utility of pediatric genomic sequencing: a qualitative analysis to support preference research.Eur J Hum Genet2023
34416842Sex Education on TikTok: A Content Analysis of Themes.Health Promot Pract2022
35353613A Review of the MINDSPACE Framework for Nudging Health Promotion During Early Stages of the COVID-19 Pandemic.Popul Health Manag2022
35833928Cost-effectiveness frameworks for comparing genome and exome sequencing versus conventional diagnostic pathways: A scoping review and recommended methods.Genet Med2022
35571041Parental Attitudes Toward Standard Newborn Screening and Newborn Genomic Sequencing: Findings From the BabySeq Study.Front Genet2022
35691983Quality of life, illness perceptions, and parental lived experiences in TANGO2-related metabolic encephalopathy and arrhythmias.Eur J Hum Genet2022
35947388Genomic Medicine's Critical Outcome Measure-Utility.JAMA Netw Open2022
36282588Patient and Clinician Perceptions of Precision Cardiology Care: Findings From the HeartCare Study.Circ Genom Precis Med2022
35256804A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States.Nat Genet2022
34906461US private payers' perspectives on insurance coverage for genome sequencing versus exome sequencing: A study by the Clinical Sequencing Evidence-Generating Research Consortium (CSER).Genet Med2022
34658003Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.Patient2022
33011736Perceptions of best practices for return of results in an international survey of psychiatric genetics researchers.Eur J Hum Genet2021
33728981Family-level impact of genetic testing: integrating health economics and ethical, legal, and social implications.Per Med2021
34888063Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.J Clin Transl Sci2021
34459727How Should Economic Value Be Considered in Treatment Decisions for Individual Patients?AMA J Ethics2021
34424265Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial.JAMA Pediatr2021
34687653Conceptualization of utility in translational clinical genomics research.Am J Hum Genet2021
34363016Genetic testing in ambulatory cardiology clinics reveals high rate of findings with clinical management implications.Genet Med2021
34362857Appropriate Care for Adolescent Eating Disorders in Isolating and Disruptive Times.J Cogn Psychother2021
33473204Outcomes of prior authorization requests for genetic testing in outpatient pediatric genetics clinics.Genet Med2021
33481188Disclosure of familial implications of pathogenic variants in breast-cancer genes to patients: Opportunity for prompting family communication.J Community Genet2021
32336750Exome sequencing compared with standard genetic tests for critically ill infants with suspected genetic conditions.Genet Med2020
33948230Lessons learned about harmonizing survey measures for the CSER consortium.J Clin Transl Sci2020
31740737Commentary on the development of the Clinician-reported Genetic testing Utility InDEx (C-GUIDE).Genet Med2020
33119106Cost-effectiveness of Population-Wide Genomic Screening for Hereditary Breast and Ovarian Cancer in the United States.JAMA Netw Open2020
29760485Clinical Application of Genome and Exome Sequencing as a Diagnostic Tool for Pediatric Patients: a Scoping Review of the Literature.Genet Med2019
28973083Use of Exome Sequencing for Infants in Intensive Care Units: Ascertainment of Severe Single-Gene Disorders and Effect on Medical Management.JAMA Pediatr2017
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Collaborators

Amy L McGuire
Baylor College of Medicine.
Co-authored papers 9
Stacey Pereira
Baylor College of Medicine.
Co-authored papers 8
Lucia A Hindorff
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 7
Jill O Robinson
Baylor College of Medicine.
Co-authored papers 5
Sara L Ackerman
University of California San Francisco
Co-authored papers 4
Sara J Knight
University of Utah
Co-authored papers 4
Bart S Ferket
Institute for Healthcare Delivery Science, Icahn School of Medicine at Mount Sinai
Co-authored papers 4
Emily S Bonkowski
University of Washington School of Public Health.
Co-authored papers 4
David L Veenstra
University of Washington
Co-authored papers 4
Seema R Lalani
Co-authored papers 4
Margaret Waltz
University of North Carolina at Chapel Hill.
Co-authored papers 3
Christine Rini
Northwestern University
Co-authored papers 3
Kristen Hassmiller Lich
University of North Carolina at Chapel Hill
Co-authored papers 3
Richard A Gibbs
Baylor College of Medicine
Co-authored papers 3
Anne Slavotinek
Cincinnati Children's Hospital Medical Center
Co-authored papers 3
Bruce D Gelb
Icahn School of Medicine at Mount Sinai
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Kyle B Brothers
Norton Children's Research Institute Affiliated with the University of Louisville
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Stephanie R Morain
Johns Hopkins University.
Co-authored papers 3
Benjamin S Wilfond
University of Washington School of Medicine.
Co-authored papers 3
Barbara B Biesecker
and Translational Research Center
Co-authored papers 3
Jonathan S Berg
University of North Carolina
Co-authored papers 3
Casie A Genetti
Boston Children's Hospital
Co-authored papers 2
Robert C Green
Brigham and Women's Hospital, Broad Institute Ariadne Labs and Harvard Medical School
Co-authored papers 2
Jianhong Hu
Co-authored papers 2
Carol R Horowitz
Institute for Health Equity Research, Icahn School of Medicine at Mount Sinai
Co-authored papers 2
Cinnamon Bloss
University of California
Co-authored papers 2
Priyanka Murali
University of Washington
Co-authored papers 2
Stephanie A Kraft
University of Washington School of Medicine
Co-authored papers 2
Ginger A Metcalf
Co-authored papers 2
Jeannette T Bensen
Co-authored papers 2
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