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Author Details

E Clayton
Harvard Medical School, Vanderbilt University, Yale University Yale Law School
0000-0002-0308-4110
1985
200
43
PMIDPaper TitleJournal TitlePublished Year
35942903Mapping parents' journey following prenatal diagnosis of CHD: a qualitative study.Cardiol Young2023
37555276Pediatric Decision Making: Consensus Recommendations.Pediatrics2023
37155245Ethical Conflicts for Clinicians under Tennessee Abortion Law.N Engl J Med2023
37117219A game theoretic approach to balance privacy risks and familial benefits.Sci Rep2023
37343562Studying the impact of translational genomic research: Lessons from eMERGE.Am J Hum Genet2023
37246632Education and electronic medical records and genomics network, challenges, and lessons learned from a large-scale clinical trial using polygenic risk scores.Genet Med2023
37245625Concordance of International Regulation of Pediatric Health Research.J Pediatr2023
37428775Intellectual conflicts of interest among cardiology and pulmonology clinical practice guidelines.PLoS One2023
37128377A Representativeness-informed Model for Research Record Selection from Electronic Medical Record Systems.AMIA Annu Symp Proc2023
36961506Human-Centered Design to Address Biases in Artificial Intelligence.J Med Internet Res2023
36748709Practical considerations for reinterpretation of individual genetic variants.Genet Med2023
36621880Returning integrated genomic risk and clinical recommendations: The eMERGE study.Genet Med2023
36809550Managing re-identification risks while providing access to the All of Us research program.J Am Med Inform Assoc2023
36630592Avoiding Liability and Other Legal Land Mines in the Evolving Genomics Landscape.Annu Rev Genomics Hum Genet2023
34665896Do research participants share genomic screening results with family members?J Genet Couns2022
35614288LGBTQ+ Perspectives on Conducting Genomic Research on Sexual Orientation and Gender Identity.Behav Genet2022
37113452Implicit Incentives Among Reddit Users to Prioritize Attention Over Privacy and Reveal Their Faces When Discussing Direct-to-Consumer Genetic Test Results: Topic and Attention Analysis.JMIR Infodemiology2022
36422086Outcomes of Returning Medically Actionable Genomic Results in Pediatric Research.J Pers Med2022
36048014Dobbs and the future of health data privacy for patients and healthcare organizations.J Am Med Inform Assoc2022
35253644Stewardship of patient genomic data: A policy statement of the American College of Medical Genetics and Genomics (ACMG).Genet Med2022
35246669Sociotechnical safeguards for genomic data privacy.Nat Rev Genet2022
35216901The reckoning: The return of genomic results to 1444 participants across the eMERGE3 Network.Genet Med2022
35275077The Public Perception of the #GeneEditedBabies Event Across Multiple Social Media Platforms: Observational Study.J Med Internet Res2022
35332247Publisher Correction: Sociotechnical safeguards for genomic data privacy.Nat Rev Genet2022
34906493Correspondence on "Exploring the motivations of research participants who chose not to learn medically actionable secondary findings about themselves" by Schupmann et al.Genet Med2022
35341654Impact of returning unsolicited genomic results to nongenetic health care providers in the eMERGE III Network.Genet Med2022
33120418Combatting human trafficking in the United States: how can medical informatics help?J Am Med Inform Assoc2021
33930893Analysis of conflict of interest policies among organizations producing clinical practice guidelines.PLoS One2021
34890225Using game theory to thwart multistage privacy intrusions when sharing data.Sci Adv2021
34524722Patients with Ehlers-Danlos syndrome on the diagnostic odyssey: Rethinking complexity and difficulty as a hero's journey.Am J Med Genet C Semin Med Genet2021
34843533Direct-to-consumer genetic testing: Prospective users' attitudes toward information about ancestry and biological relationships.PLoS One2021
34512997Protecting research data of publicly revealing participants.J Law Biosci2021
34263019Ethical Issues in Genetics and Infectious Diseases Research: An Interdisciplinary Expert Review.Ethics Med Public Health2021
34048695ISSCR guidelines for the transfer of human pluripotent stem cells and their direct derivatives into animal hosts.Stem Cell Reports2021
34048692ISSCR Guidelines for Stem Cell Research and Clinical Translation: The 2021 update.Stem Cell Reports2021
33448306Enabling realistic health data re-identification risk assessment through adversarial modeling.J Am Med Inform Assoc2021
33420344Does the law require reinterpretation and return of revised genomic results?Genet Med2021
31553110Patients' willingness to reconsider cancer genetic testing after initially declining: Mention it again.J Genet Couns2020
31886846Be Ready to Talk With Parents About Direct-to-Consumer Genetic Testing.JAMA Pediatr2020
32716799From Ventilators to Vaccines: Reframing the Ethics of Resource Allocation.Am J Bioeth2020
32898148Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions.PLoS One2020
32154515Can Clinical Genetics Laboratories be Sued for Medical Malpractice?Ann Health Law Life Sci2020
32555418Ethical conflicts in translational genetic research: lessons learned from the eMERGE-III experience.Genet Med2020
32365191Balancing Expediency and Scientific Rigor in Severe Acute Respiratory Syndrome Coronavirus 2 Vaccine Development.J Infect Dis2020
32121581What Results Should Be Returned from Opportunistic Screening in Translational Research?J Pers Med2020
32308873Public Attitudes Toward Direct to Consumer Genetic Testing.AMIA Annu Symp Proc2020
32308855Biomedical Research Cohort Membership Disclosure on Social Media.AMIA Annu Symp Proc2020
32329193Patient perspectives on variant reclassification after cancer susceptibility testing.Mol Genet Genomic Med2020
32349224Returning Results in the Genomic Era: Initial Experiences of the eMERGE Network.J Pers Med2020
32369178Uncertainty of Prenatally Diagnosed Congenital Heart Disease: A Qualitative Study.JAMA Netw Open2020
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Collaborators

Bradley A Malin
Vanderbilt University
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Kyle B Brothers
Norton Children's Research Institute Affiliated with the University of Louisville
Co-authored papers 24
Ingrid A Holm
Harvard Medical School
Co-authored papers 22
Maureen E Smith
Center for Genetic Medicine, Feinberg School of Medicine, Northwestern University
Co-authored papers 16
Wylie Burke
The Heart Institute, Cincinnati Children's Hospital Medical Center
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Gail P Jarvik
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Lainie Friedman Ross
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Wendy K Chung
Boston Children's Hospital, Harvard Medical School
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Yevgeniy Vorobeychik
Washington University in St. Louis St. Louis
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Susan M Wolf
Law School and Medical School, University of Minnesota
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Stephanie M Fullerton
University of Washington School of Medicine
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Zhiyu Wan
Vanderbilt University Medical Center
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Benjamin S Wilfond
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Murat Kantarcioglu
University of Texas at Dallas
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Amy L McGuire
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Barbara A Koenig
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Janet L Williams
Genomic Medicine Institute
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Melanie F Myers
Cincinnati Children's Hospital Medical Center
Co-authored papers 10
Richard R Sharp
Biomedical Ethics, Mayo Clinic and Foundation
Co-authored papers 9
Mark A Rothstein
University of Louisville
Co-authored papers 9
Armand H Matheny Antommaria
Cincinnati Children's Hospital Medical Center
Co-authored papers 9
Georgia L Wiesner
Vanderbilt Genetics Institute, Vanderbilt University Medical Center
Co-authored papers 9
Bartha Maria Knoppers
McGill University
Co-authored papers 9
Paul S Appelbaum
Center for Law, Columbia University Irving Medical Center
Co-authored papers 9
Catherine A McCarty
University of Minnesota Medical School, 1035 University Drive duluth
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Weiyi Xia
Eye & ENT Hospital, Shanghai Medical School, Fudan University
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Dan M Roden
Vanderbilt University Medical Center
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Yongtai Liu
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John J Connolly
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Release 1.2