| 36795826 | Leveraging IP for AI governance. | Science | 2023 |
| 37074995 | Young people's data governance preferences for their mental health data: MindKind Study findings from India, South Africa, and the United Kingdom. | PLoS One | 2023 |
| 35360665 | U.S. Adult Perspectives on Facial Images, DNA, and Other Biometrics. | IEEE Trans Technol Soc | 2022 |
| 35802789 | Big Health Data Research and Group Harm: The Scope of IRB Review. | Ethics Hum Res | 2022 |
| 33275082 | Assessment of the <i>All of Us</i> research program's informed consent process. | AJOB Empir Bioeth | 2021 |
| 35592835 | Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation. | Wellcome Open Res | 2021 |
| 35072136 | GA4GH: International policies and standards for data sharing across genomic research and healthcare. | Cell Genom | 2021 |
| 34648520 | A survey of U.S. public perspectives on facial recognition technology and facial imaging data practices in health and research contexts. | PLoS One | 2021 |
| 34308554 | Results of the Genetic Counselor SARS-CoV-2 Impact Survey from the National Society of Genetic Counselors: Progress and penalty during the COVID-19 pandemic. | J Genet Couns | 2021 |
| 32342752 | Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations. | J Law Med Ethics | 2020 |
| 31646744 | All things considered, my risk for diabetes is medium: A risk personalization process of familial risk for type 2 diabetes. | Health Expect | 2020 |
| 31797643 | Navigating ethical quandaries with the privacy dilemma of biomedical datasets. | Pac Symp Biocomput | 2020 |
| 32733688 | Research ethics in a pandemic: considerations for the use of research infrastructure and resources for public health activities. | J Law Biosci | 2020 |
| 32641140 | Developing pathways for community-led research with big data: a content analysis of stakeholder interviews. | Health Res Policy Syst | 2020 |
| 32175821 | Informed Consent in Two Alzheimer's Disease Research Centers: Insights From Research Coordinators. | AJOB Empir Bioeth | 2020 |
| 32540846 | Bringing Code to Data: Do Not Forget Governance. | J Med Internet Res | 2020 |
| 32258432 | Erratum: Publisher Correction: Modernizing and designing evaluation frameworks for connected sensor technologies in medicine. | NPJ Digit Med | 2020 |
| 32224492 | Connected Medical Technology and Cybersecurity Informed Consent: A New Paradigm. | J Med Internet Res | 2020 |
| 32195372 | Modernizing and designing evaluation frameworks for connected sensor technologies in medicine. | NPJ Digit Med | 2020 |
| 32342754 | Who Are the People in Your Neighborhood? Personas Populating Unregulated mHealth Research. | J Law Med Ethics | 2020 |
| 30963079 | Implementing a universal informed consent process for the <i>All of Us</i> Research Program. | Pac Symp Biocomput | 2019 |
| 31850398 | An open toolkit for tracking open science partnership implementation and impact. | Gates Open Res | 2019 |
| 30975992 | Physical activity, sleep and cardiovascular health data for 50,000 individuals from the MyHeart Counts Study. | Sci Data | 2019 |
| 29512060 | Review and Comparison of Electronic Patient-Facing Family Health History Tools. | J Genet Couns | 2018 |
| 31304325 | The Healthy Pregnancy Research Program: transforming pregnancy research through a ResearchKit app. | NPJ Digit Med | 2018 |
| 29497924 | Introduction to the "Technology in Practice" Special Issue. | J Genet Couns | 2018 |
| 29512940 | Engaging populations underrepresented in research through novel approaches to consent. | Am J Med Genet C Semin Med Genet | 2018 |
| 28855147 | Consent Processes for Mobile App Mediated Research: Systematic Review. | JMIR Mhealth Uhealth | 2017 |
| 28195576 | The Mole Mapper Study, mobile phone skin imaging and melanoma risk data collected using ResearchKit. | Sci Data | 2017 |
| 28209557 | Formative Evaluation of Participant Experience With Mobile eConsent in the App-Mediated Parkinson mPower Study: A Mixed Methods Study. | JMIR Mhealth Uhealth | 2017 |
| 26938265 | The mPower study, Parkinson disease mobile data collected using ResearchKit. | Sci Data | 2016 |
| 27258162 | Understanding the contribution of family history to colorectal cancer risk and its clinical implications: A state-of-the-science review. | Cancer | 2016 |
| 24798715 | Cleveland Clinic's Center for personalized healthcare: setting the stage for value-based care. | Pharmacogenomics | 2014 |
| 25563219 | Formative evaluation of clinician experience with integrating family history-based clinical decision support into clinical practice. | J Pers Med | 2014 |
| 22550075 | Family history: still relevant in the genomics era. | Cleve Clin J Med | 2012 |
| 22556053 | Personalised care and the genome. | BMJ | 2012 |