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Author Details

Susan M Fernandes
Lucile Packard Children's Hospital and Stanford Health Care
2003
96
35
PMIDPaper TitleJournal TitlePublished Year
35901014Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS.Eur J Cardiovasc Nurs2023
37084934Design of a multi-institutional neurocognitive discovery study in adult congenital heart disease (MINDS-ACHD).Am Heart J2023
35318159The Impact of Telehealth Adoption During COVID-19 Pandemic on Patterns of Pediatric Subspecialty Care Utilization.Acad Pediatr2022
35470715Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries.J Am Heart Assoc2022
35780933Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease.Int J Cardiol2022
35964887Time in Therapeutic Range With Vitamin K Antagonists in Congenital Heart Disease: A Multicentre Study.Can J Cardiol2022
36049802Long-Term Outcomes After Atrial Switch Operation for Transposition of the Great Arteries.J Am Coll Cardiol2022
32524857Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life.Eur J Cardiovasc Nurs2021
33568120Phenotypes of adults with congenital heart disease around the globe: a cluster analysis.Health Qual Life Outcomes2021
33646256Optimizing the Future Competitiveness of the Physician Assistant Profession.J Allied Health2021
34505060International Consensus Statement on Nomenclature and Classification of the Congenital Bicuspid Aortic Valve and Its Aortopathy, for Clinical, Surgical, Interventional and Research Purposes.Radiol Cardiothorac Imaging2021
34185220Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness perceptions.J Behav Med2021
34293102International consensus statement on nomenclature and classification of the congenital bicuspid aortic valve and its aortopathy, for clinical, surgical, interventional and research purposes.Eur J Cardiothorac Surg2021
34292332Summary: international consensus statement on nomenclature and classification of the congenital bicuspid aortic valve and its aortopathy, for clinical, surgical, interventional and research purposes.Eur J Cardiothorac Surg2021
34304894Summary: International consensus statement on nomenclature and classification of the congenital bicuspid aortic valve and its aortopathy, for clinical, surgical, interventional, and research purposes.J Thorac Cardiovasc Surg2021
34304860International Consensus Statement on Nomenclature and Classification of the Congenital Bicuspid Aortic Valve and Its Aortopathy, for Clinical, Surgical, Interventional and Research Purposes.Ann Thorac Surg2021
34304861Summary: International Consensus Statement on Nomenclature and Classification of the Congenital Bicuspid Aortic Valve and Its Aortopathy, for Clinical, Surgical, Interventional and Research Purposes.Ann Thorac Surg2021
33460605Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS).Am J Cardiol2021
32805330Safety and efficacy of non-vitamin K antagonist oral anticoagulants for prevention of thromboembolism in adults with systemic right ventricle: Results from the NOTE international registry.Int J Cardiol2021
32739453Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries.Can J Cardiol2021
32961334Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study.Heart Rhythm2021
31529991Health behaviours reported by adults with congenital heart disease across 15 countries.Eur J Prev Cardiol2020
32004250An Initial Exploration of the Physician Assistant Role in Germany.J Physician Assist Educ2020
31790832Implantable cardioverter-defibrillators and patient-reported outcomes in adults with congenital heart disease: An international study.Heart Rhythm2020
32622485Access and Delivery of Adult Congenital Heart Disease Care in the United States: Quality-Driven Team-Based Care.Cardiol Clin2020
32497585Clinical history and management of bicuspid aortic valve in children and adolescents.Prog Cardiovasc Dis2020
322049582020 ACC Clinical Competencies for Nurse Practitioners and Physician Assistants in Adult Cardiovascular Medicine: A Report of the ACC Competency Management Committee.J Am Coll Cardiol2020
32493367Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries.BMC Health Serv Res2020
30604934Extended cardiac ambulatory rhythm monitoring in adults with congenital heart disease: Arrhythmia detection and impact of extended monitoring.Congenit Heart Dis2019
31813510Prevalence and Effects of Cigarette Smoking, Cannabis Consumption, and Co-use in Adults From 15 Countries With Congenital Heart Disease.Can J Cardiol2019
30077534Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe.Int J Cardiol2019
31439217Thromboembolic Risk After Atriopulmonary, Lateral Tunnel, and Extracardiac Conduit Fontan Surgery.J Am Coll Cardiol2019
31367952Knowledge of Life-Long Cardiac Care by Adolescents and Young Adults with Congenital Heart Disease.Pediatr Cardiol2019
31443808Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study.J Psychosom Res2019
30813762Substantial Cardiovascular Morbidity in Adults With Lower-Complexity Congenital Heart Disease.Circulation2019
30714326Education as important predictor for successful employment in adults with congenital heart disease worldwide.Congenit Heart Dis2019
31030969Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation.Am J Cardiol2019
29107358Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors.Int J Cardiol2018
30139525Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease.Am J Cardiol2018
30511012Geographical variation and predictors of physical activity level in adults with congenital heart disease.Int J Cardiol Heart Vasc2018
29457362A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation.Congenit Heart Dis2018
27463688Transition and transfer of childhood cancer survivors to adult care: A national survey of pediatric oncologists.Pediatr Blood Cancer2017
28340978Adult congenital heart disease nurse coordination: Essential skills and role in optimizing team-based care a position statement from the International Society for Adult Congenital Heart Disease (ISACHD).Int J Cardiol2017
28087052Contraceptive Practices of Women With Complex Congenital Heart Disease.Am J Cardiol2017
28247847Risk Estimates for Atherosclerotic Cardiovascular Disease in Adults With Congenital Heart Disease.Am J Cardiol2017
28467549Balancing the Training of Future Cardiologists With the Provision of Team-Based Care.JAMA Cardiol2017
29129255Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective.Am Heart J2017
28669511Illness perceptions in adult congenital heart disease: A multi-center international study.Int J Cardiol2017
28797355Increasing Prevalence of Atrial Fibrillation and Permanent Atrial Arrhythmias in Congenital Heart Disease.J Am Coll Cardiol2017
27027904Transitions in Pediatric Gastroenterology: Results of a National Provider Survey.J Pediatr Gastroenterol Nutr2016
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Collaborators

Montreal Heart Institute, Universite de Montreal
Co-authored papers 53
Harvard Medical School
Co-authored papers 31
KU Leuven - University of Leuven
Co-authored papers 27
The Queen Silvia Children's Hospital
Co-authored papers 22
Boston Children's Hospital, Harvard Medical School
Co-authored papers 10
Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 10
Stanford University School of Medicine
Co-authored papers 7
Center for Applied Pediatric Quality Analytics, Boston Children's Hospital
Co-authored papers 7
Knight Cardiovascular Institute, Oregon Health and Science University
Co-authored papers 7
Kravis Children's Hospital
Co-authored papers 6
Massachusetts General Hospital
Co-authored papers 6
University of Pennsylvania
Co-authored papers 6
Yale School of Medicine
Co-authored papers 6
Division of Hospital Medicine, University of Colorado
Co-authored papers 5
Stanford University School of Medicine
Co-authored papers 5
Boston Children's Hospital, Harvard Medical School
Co-authored papers 4
and Technology Inc. (ASRT Inc.)
Co-authored papers 4
National Heart & Lung Institute, Imperial College London.
Co-authored papers 3
University of Maryland School of Medicine in Baltimore
Co-authored papers 3
Boston Children's Hospital
Co-authored papers 3
Harvard Medical School, Boston Children's Hospital
Co-authored papers 3
Boston Children's Hospital
Co-authored papers 3
Kaiser San Francisco Medical Center
Co-authored papers 3
Harvard Medical School, Boston Children's Hospital
Co-authored papers 3
Children's Hospital of Los Angeles, Keck School of Medicine of USC
Co-authored papers 3
Cincinnati Children's Hospital Heart Institute
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Boston Children's Hospital
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Kings County Hospital Center
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Boston Children's Hospital
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Duke University School of Medicine
Co-authored papers 2