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Author Details

Margaret Waltz
University of North Carolina at Chapel Hill.
2017
38
9
PMIDPaper TitleJournal TitlePublished Year
36125845Mission Creep or Mission Lapse? Scientific Review in Research Oversight.AJOB Empir Bioeth2023
37655582"Death and Taxes": Why Financial Compensation for Research Participants is an Economic and Legal Risk.J Law Med Ethics2023
37988277Exclusion of Women from Phase I Trials: Perspectives from Investigators and Research Oversight Officials.Ethics Hum Res2023
37204137The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research.Am J Bioeth2023
36919542The Slippery Slope of Prenatal Testing for Social Traits.Am J Bioeth2023
36689884Question prompt lists and caregiver question asking in pediatric specialty appointments: A randomized controlled trial.Patient Educ Couns2023
36341765Conducting clinical genomics research during the COVID-19 pandemic: Lessons learned from the CSER consortium experience.Am J Med Genet A2023
36310386The Burden of COVID-19 on Caregivers of Children with Suspected Genetic Conditions: A Therapeutic Odyssey.Phys Occup Ther Pediatr2023
36266388Stem Cell Transplant Experiences Among Hispanic/Latinx Patients: A Qualitative Analysis.Int J Behav Med2023
34658003Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.Patient2022
35765696Optimizing use of written peer support as a supportive resource in cancer: Focus group insights.Psychooncology2022
35850532Scientists' Views on Scientific Self-Governance for Human Genome Editing Research.Hum Gene Ther2022
36567868Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients' individual emotional and informational needs while reducing potential harms.Procedia Comput Sci2022
36047278Ethical Criteria for Improved Human Subject Protections in Phase I Healthy Volunteer Trials.Ethics Hum Res2022
33729198Hospital Policies During COVID-19: An Analysis of Visitor Restrictions.J Public Health Manag Pract2022
34949847Translational science: a survey of US biomedical researchers' perspectives and practices.Lab Anim (NY)2022
33211575Evaluating the National Institutes of Health's Sex as a Biological Variable Policy: Conflicting Accounts from the Front Lines of Animal Research.J Womens Health (Larchmt)2021
33834877Biomedical Researchers' Perceptions of the NIH's Sex as a Biological Variable Policy for Animal Research: Results from a U.S. National Survey.J Womens Health (Larchmt)2021
34888063Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.J Clin Transl Sci2021
34406038The View from the Benches: Scientists' Perspectives on the Uses and Governance of Human Gene-Editing Research.CRISPR J2021
33966955Burden or benefit? Effects of providing education about and the option to request additional genomic findings from diagnostic exome sequencing: A randomized controlled trial.Patient Educ Couns2021
34127041Evaluating the clinical utility of early exome sequencing in diverse pediatric outpatient populations in the North Carolina Clinical Genomic Evaluation of Next-generation Exome Sequencing (NCGENES) 2 study: a randomized controlled trial.Trials2021
31312045Genomic knowledge in the context of diagnostic exome sequencing: changes over time, persistent subgroup differences, and associations with psychological sequencing outcomes.Genet Med2020
34737680A New Governance Approach to Regulating Human Genome Editing.N C J Law Technol2020
33948230Lessons learned about harmonizing survey measures for the CSER consortium.J Clin Transl Sci2020
33026293Engaging community stakeholders in research on best practices for clinical genomic sequencing.Per Med2020
32175469Professionalism and Ethics: A Standardized Patient Observed Standardized Clinical Examination to Assess ACGME Pediatric Professionalism Milestones.MedEdPORTAL2020
32457518Development and validation of a measure of comprehension of genomic screening-negative results (CoG-NR).Eur J Hum Genet2020
32125936Assessing the implications of positive genomic screening results.Per Med2020
30869203Going off antiretroviral treatment in a closely monitored HIV "cure" trial: longitudinal assessments of acutely diagnosed trial participants and decliners.J Int AIDS Soc2019
31971081Exploring the Emotional Labor of Medical Trainees in the Setting of Ethics Education.Am J Bioeth2019
29875426Returning negative results to individuals in a genomic screening program: lessons learned.Genet Med2019
31341244Correction: Genomic knowledge in the context of diagnostic exome sequencing: changes over time, persistent subgroup differences, and associations with psychological sequencing outcomes.Genet Med2019
31188792Perils of the Hidden Curriculum: Emotional Labor and "Bad" Pediatric Proxies.J Clin Ethics2019
29215654Age and perceived risks and benefits of preventive genomic screening.Genet Med2018
31021238Is Enhancement the Price of Prevention in Human Gene Editing?CRISPR J2018
29069655Online Education and e-Consent for GeneScreen, a Preventive Genomic Screening Study.Public Health Genomics2017
34168397Waiting on Others: Gender in the Medical Waiting Room.Sociol Forum (Randolph N J)2017
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Northwestern University
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Co-authored papers 14
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Co-authored papers 9
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Co-authored papers 4
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Co-authored papers 4
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Co-authored papers 4
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and Translational Research Center
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Anya E R Prince
University of Iowa.
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Kristen Hassmiller Lich
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Karen E Weck
University of North Carolina at Chapel Hill
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Benjamin S Wilfond
University of Washington School of Medicine.
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Amy L McGuire
Baylor College of Medicine.
Co-authored papers 2
Kyle B Brothers
Norton Children's Research Institute Affiliated with the University of Louisville
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Cinnamon Bloss
University of California
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Barbara Koenig
University of California san francisco
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Jessica Ezzell Hunter
Kaiser Permanente Center for Health Research
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Janet Malek
Center for Medical Ethics and Health Policy, Baylor College of Medicine
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Stephanie R Morain
Johns Hopkins University.
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Barbara A Koenig
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