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Author Details

David Kaufman
National Human Genome Research Institute
2006
33
23
PMIDPaper TitleJournal TitlePublished Year
36341765Conducting clinical genomics research during the COVID-19 pandemic: Lessons learned from the CSER consortium experience.Am J Med Genet A2023
33116284Strategic vision for improving human health at The Forefront of Genomics.Nature2020
31104772The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research.Am J Hum Genet2019
29970926Normative and conceptual ELSI research: what it is, and why it's important.Genet Med2019
30575871Providing Individual Research Results to Participants.JAMA2018
28190457Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.Am J Hum Genet2017
27181682Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.Am J Hum Genet2016
27881091Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.BMC Med Res Methodol2016
27392080Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.Am J Hum Genet2016
27532667A Survey of U.S Adults' Opinions about Conduct of a Nationwide Precision Medicine Initiative® Cohort Study of Genes and Environment.PLoS One2016
25166427Return of individual genetic results in a high-risk sample: enthusiasm and positive behavioral change.Genet Med2015
26331187What Should Be the Character of the Researcher- Participant Relationship? Views of Participants in a Long-standing Cancer Genetic Registry.IRB2015
25825819Demographic differences in willingness to provide broad and narrow consent for biobank research.Biopreserv Biobank2015
23660530Public preferences regarding informed consent models for participation in population-based genomic research.Genet Med2014
25299915Development of the clinical next-generation sequencing industry in a shifting policy climate.Nat Biotechnol2014
25298287Clinical integration of next generation sequencing: a policy analysis.J Law Med Ethics2014
25387182Overcoming the reimbursement barriers for clinical sequencing.JAMA2014
24854226Public preferences for the return of research results in genetic research: a conjoint analysis.Genet Med2014
23560882Attitudes about regulation among direct-to-consumer genetic testing customers.Genet Test Mol Biomarkers2013
22402755Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.Genet Med2012
22538255Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients.Genet Med2012
22278220Risky business: risk perception and the use of medical services among customers of DTC personal genetic testing.J Genet Couns2012
22241103Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing.Genet Med2012
19346960Veterans' attitudes regarding a database for genomic research.Genet Med2009
19878915Public opinion about the importance of privacy in biobank research.Am J Hum Genet2009
19833988Public perspectives on informed consent for biobanking.Am J Public Health2009
17628552Genetic testing of embryos: practices and perspectives of US in vitro fertilization clinics.Fertil Steril2008
19011407Subjects matter: a survey of public opinions about a large genetic cohort study.Genet Med2008
18978680Preimplantation genetic screening: a survey of in vitro fertilization clinics.Genet Med2008
19061108Public expectations for return of results from large-cohort genetic research.Am J Bioeth2008
18700896Carrier screening for cystic fibrosis in US genetic testing laboratories: a survey of laboratory directors.Clin Genet2008
18189289Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion.Am J Med Genet C Semin Med Genet2008
16964214Oversight of US genetic testing laboratories.Nat Biotechnol2006
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Collaborators

Juli Bollinger
Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 16
Joan Scott
Co-authored papers 11
Kathy Hudson
From the National Institutes of Health
Co-authored papers 11
Amy L McGuire
Baylor College of Medicine.
Co-authored papers 6
Gail P Jarvik
University of Washington Medical Center
Co-authored papers 5
Stephanie M Fullerton
University of Washington School of Medicine
Co-authored papers 5
E Clayton
Harvard Medical School, Vanderbilt University, Yale University Yale Law School
Co-authored papers 4
Ingrid A Holm
Harvard Medical School
Co-authored papers 4
Lucia A Hindorff
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 4
Kyle B Brothers
Norton Children's Research Institute Affiliated with the University of Louisville
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Rachel Dvoskin
Berman Institute of Bioethics, Johns Hopkins University
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Robert C Green
Brigham and Women's Hospital, Broad Institute Ariadne Labs and Harvard Medical School
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Carol R Horowitz
Institute for Health Equity Research, Icahn School of Medicine at Mount Sinai
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Teri A Manolio
National Human Genome Research Institute
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Katrina A B Goddard
Center for Health Research, Kaiser Permanente Northwest
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Jeffrey Scott Roberts
School of Public Health.
Co-authored papers 3
Barbara A Koenig
University of California-San Francisco.
Co-authored papers 3
Gail Geller
Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 3
Carolyn M Hutter
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 3
Jeffrey Ou
University of Washington Medical Center
Co-authored papers 3
Saskia C Sanderson
University College London
Co-authored papers 3
Lisa LeRoy
Abt Associates Inc.
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Leslie G Biesecker
National Human Genome Research Institute, National Institutes of Health
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Wylie Burke
The Heart Institute, Cincinnati Children's Hospital Medical Center
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Dan R Robinson
Michigan Center for Translational Pathology, University of Michigan ann arbor
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Gail E Henderson
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