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Author Details

Caron Molster
Public Health and Clinical Services Division
2007
28
15
PMIDPaper TitleJournal TitlePublished Year
35717227The diagnostic odyssey: insights from parents of children living with an undiagnosed condition.Orphanet J Rare Dis2022
31330524Identifying Perceptions and Preferences of the General Public Concerning Universal Screening of Children for Familial Hypercholesterolaemia.Public Health Genomics2019
30068663Measuring the impact of genetic knowledge on intentions and attitudes of the community towards expanded preconception carrier screening.J Med Genet2018
29974047Changes to the Employers' Use of Genetic Information and Non-discrimination for Health Insurance in the USA: Implications for Australians.Front Public Health2018
30234091The Evolution of Public Health Genomics: Exploring Its Past, Present, and Future.Front Public Health2018
27657686The collective impact of rare diseases in Western Australia: an estimate using a population-based cohort.Genet Med2017
28468665Initiating an undiagnosed diseases program in the Western Australian public health system.Orphanet J Rare Dis2017
284432723-Dimensional Facial Analysis-Facing Precision Public Health.Front Public Health2017
28286745Outcomes of an International Workshop on Preconception Expanded Carrier Screening: Some Considerations for Governments.Front Public Health2017
29214589Indigenous Genetics and Rare Diseases: Harmony, Diversity and Equity.Adv Exp Med Biol2017
29214566Improved Diagnosis and Care for Rare Diseases through Implementation of Precision Public Health Framework.Adv Exp Med Biol2017
27049302'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research.Eur J Hum Genet2016
27287197The rare and undiagnosed diseases diagnostic service - application of massively parallel sequencing in a state-wide clinical service.Orphanet J Rare Dis2016
27222291The risk of re-identification versus the need to identify individuals in rare disease research.Eur J Hum Genet2016
27012247Survey of healthcare experiences of Australian adults living with rare diseases.Orphanet J Rare Dis2016
25943355Use of mechanical airway clearance devices in the home by people with neuromuscular disorders: effects on health service use and lifestyle benefits.Orphanet J Rare Dis2015
21645188Blueprint for a deliberative public forum on biobanking policy: were theoretical principles achievable in practice?Health Expect2013
23862565Informing public health policy through deliberative public engagement: perceived impact on participants and citizen-government relations.Genet Test Mol Biomarkers2013
22179074An Australian approach to the policy translation of deliberated citizen perspectives on biobanking.Public Health Genomics2012
22883422Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases.Orphanet J Rare Dis2012
21204697Perceptions of population cystic fibrosis prenatal and preconception carrier screening among individuals with cystic fibrosis and their family members.Genet Test Mol Biomarkers2011
21849083Awakening Australia to Rare Diseases: symposium report and preliminary outcomes.Orphanet J Rare Dis2011
21717839Motivating intentions to adopt risk-reducing behaviours for chronic diseases: impact of a public health tool for collecting family health histories.Health Promot J Austr2011
19039252Australian study on public knowledge of human genetics and health.Public Health Genomics2009
20078577A survey of folate knowledge and consumer behaviours in Western Australia prior to the introduction of mandatory food fortification.Aust N Z J Public Health2009
19473077Communicating familial hypercholesterolemia genetic information within families.Genet Test Mol Biomarkers2009
17725007Community attitudes to the collection and use of identifiable data for health research--is it an invasion of privacy?Aust N Z J Public Health2007
17668453Australian survey on community knowledge and attitudes regarding the fortification of food with folic acid.Birth Defects Res A Clin Mol Teratol2007
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Collaborators

The University of Notre Dame Australia
Co-authored papers 16
King Edward Memorial Hospital
Co-authored papers 8
University of Western Australia
Co-authored papers 6
University of London
Co-authored papers 6
King Edward Memorial Hospital for Women
Co-authored papers 5
King Edward Memorial Hospital
Co-authored papers 5
King Edward Memorial Hospital for Women Perth
Co-authored papers 4
Harry Perkins Institute of Medical Research, University of Western Australia
Co-authored papers 4
Stanford University School of Medicine
Co-authored papers 4
Children's Hospital of Eastern Ontario Research Institute
Co-authored papers 3
Cooperative Research Centre for Spatial Information
Co-authored papers 3
QEII Medical Centre
Co-authored papers 3
Co-authored papers 3
Royal Women's Hospital
Co-authored papers 3
King Edward Memorial Hospital
Co-authored papers 3
Co-authored papers 3
Princess Margaret Hospital
Co-authored papers 3
King Edward Memorial Hospital
Co-authored papers 3
University of Western Australia
Co-authored papers 3
King Edward Memorial Hospital
Co-authored papers 3
King Edward Memorial Hospital
Co-authored papers 3
National Center for Rare Diseases, Istituto Superiore di Sanita
Co-authored papers 3
Co-authored papers 3
Australia UNSW RNA Institute
Co-authored papers 2
Center for Medical Genetics, Keio University School of Medicine
Co-authored papers 2
Perth Children's Hospital
Co-authored papers 2
The University of Sydney
Co-authored papers 2
McGill University. Montreal
Co-authored papers 2
INSERM
Co-authored papers 2
Curtin University
Co-authored papers 2