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Author Details

Marsha Treadwell
University of California San Francisco
1998
87
26
PMIDPaper TitleJournal TitlePublished Year
37889387Caught between pity, explicit bias, and discrimination: a qualitative study on the impact of stigma on the quality of life of persons living with sickle cell disease in three African countries.Qual Life Res2024
37461733The Effect of an Adapted Digital Mental Health Intervention for Sickle Cell Disease on Engagement: A Pilot Randomized Controlled Trial.Res Sq2023
37456969Burden of Aging: Health Outcomes Among Adolescents and Young Adults With Sickle Cell Disease.Hemasphere2023
37451306Mental health and psychological resilience in sickle cell disease.Lancet Haematol2023
37200033Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease.JAMA Netw Open2023
35142007Pregnancy outcomes with hydroxyurea use in women with sickle cell disease.Am J Hematol2022
35700397Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals.J Pediatr Hematol Oncol2022
35445915An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.Qual Life Res2022
36508412CureSCi Metadata Catalog-Making sickle cell studies findable.PLoS One2022
36367870What does it mean to be affiliated with care?: Delphi consensus on the definition of "unaffiliation" and "specialist" in sickle cell disease.PLoS One2022
36092883Barriers to hydroxyurea use from the perspectives of providers, individuals with sickle cell disease, and families: Report from a U.S. regional collaborative.Front Genet2022
35320302Perspectives of individuals with sickle cell disease on barriers to care.PLoS One2022
31889479Social and Psychological Factors Associated With Health Care Transition for Young Adults Living With Sickle Cell Disease.J Transcult Nurs2021
33861209Electronic Health Record-Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study.JMIR Res Protoc2021
34789492Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA.BMJ Open2021
34714833Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium.PLoS One2021
34018965Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial.JMIR Res Protoc2021
34350622Patient-reported neurocognitive symptoms influence instrumental activities of daily living in sickle cell disease.Am J Hematol2021
32220342Paediatric to adult transition care for patients with sickle cell disease: a global perspective.Lancet Haematol2020
32027743Understanding sickle cell disease: impact of surveillance and gaps in knowledge.Blood Adv2020
33409431Improving Preventive Care for Children With Sickle Cell Anemia: A Quality Improvement Initiative.Pediatr Qual Saf2020
33323100Annual Academy of Sickle Cell and Thalassaemia (ASCAT) conference: a summary of the proceedings.BMC Proc2020
32941646Intentional and unintentional nonadherence to hydroxyurea among people with sickle cell disease: a qualitative study.Blood Adv2020
32785684Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects.Blood Adv2020
32552526Association between hospital admissions and healthcare provider communication for individuals with sickle cell disease.Hematology2020
32442144Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study.JMIR Res Protoc2020
32147964Impact of Medicaid expansion on access and healthcare among individuals with sickle cell disease.Pediatr Blood Cancer2020
32469413Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care.JAMA Netw Open2020
32449965Patient-reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium.Am J Hematol2020
30387290Pediatric residents' perceived barriers to opioid use in sickle cell disease pain management.Pediatr Blood Cancer2019
31649726Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations.Front Genet2019
30044352Development of a Hydroxyurea Decision Aid for Parents of Children With Sickle Cell Anemia.J Pediatr Hematol Oncol2019
31379268Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana.AJOB Empir Bioeth2019
30830235Lessons Learned from Building a Pediatric-to-Adult Sickle Cell Transition Program.South Med J2019
31106244Barriers to Pediatric Sickle Cell Disease Guideline Recommendations.Glob Pediatr Health2019
30479187Risk factors for hospitalizations and readmissions among individuals with sickle cell disease: results of a U.S. survey study.Hematology2019
30362236Virtual reality as complementary pain therapy in hospitalized patients with sickle cell disease.Pediatr Blood Cancer2019
29595096Modifying factors of the health belief model associated with missed clinic appointments among individuals with sickle cell disease.Hematology2018
30203558The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease.Am J Hematol2018
30171429Relation Between Religious Perspectives and Views on Sickle Cell Disease Research and Associated Public Health Interventions in Ghana.J Genet Couns2018
27774754Impact of elosulfase alfa in patients with morquio A syndrome who have limited ambulation: An open-label, phase 2 study.Am J Med Genet A2017
28577358Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me⿠.Health Qual Life Outcomes2017
28060170Long-Term Pulmonary Function and Quality of Life in Children After Acute Respiratory Distress Syndrome: A Feasibility Investigation.Pediatr Crit Care Med2017
28000344Emergency department utilization by Californians with sickle cell disease, 2005-2014.Pediatr Blood Cancer2017
26226115Development of a sickle cell disease readiness for transition assessment.Int J Adolesc Med Health2016
27583862Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care.Medicine (Baltimore)2016
27421796Barriers and facilitators to research participation among adults, and parents of children with sickle cell disease: A trans-regional survey.Am J Hematol2016
27354937Proceedings of a Sickle Cell Disease Ontology workshop - Towards the first comprehensive ontology for Sickle Cell Disease.Appl Transl Genom2016
27090687Community engagement to inform the development of a sickle cell counselor training and certification program in Ghana.J Community Genet2016
26226116Self-efficacy and readiness for transition from pediatric to adult care in sickle cell disease.Int J Adolesc Med Health2016
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Collaborators

St. Jude Children's Research Hospital
Co-authored papers 14
Duke University
Co-authored papers 9
Co-authored papers 8
Sickle Cell Foundation of Ghana
Co-authored papers 8
University of Cape Town
Co-authored papers 7
London North West University Healthcare NHS Trust, Imperial College London
Co-authored papers 5
Pittsburgh Heart Lung and Blood Vascular Medicine Institute, University of Pittsburgh
Co-authored papers 4
Vanderbilt University Medical Center
Co-authored papers 4
Vanderbilt University School of Medicine
Co-authored papers 4
The Ohio State University
Co-authored papers 4
University of Abuja (CESRTA) Federal Capital Territory (FCT)
Co-authored papers 3
University of Cape Town
Co-authored papers 3
Evelina Children's Hospital, Guy's and St. Thomas NHS Foundation Trust
Co-authored papers 3
Departments of Hematology at Children's National Hospital
Co-authored papers 2
Baylor College of Medicine.
Co-authored papers 2
Muhimbili University of Health and Allied Sciences
Co-authored papers 2
Loyola University Medical Center.
Co-authored papers 2
University of Cincinnati College of Medicine
Co-authored papers 2
Oregon Health & Science University
Co-authored papers 2
Institute of Endemic Diseases, University of Khartoum
Co-authored papers 2
University of Cape Town
Co-authored papers 2
University of Cape Town
Co-authored papers 2
Duke University
Co-authored papers 2
American Medical Informatics Association, Oregon Health and Science University, Oregon State University, University of Colorado Anschutz Medical Campus, University of North Carolina at Chapel Hill, University of Wisconsin-Madison
Co-authored papers 1
Christine E. Lynn College of Nursing, Florida Atlantic University
Co-authored papers 1
University of Michigan Medical School ann arbor
Co-authored papers 1
and Translation Research Center
Co-authored papers 1
Tulane University School of Medicine
Co-authored papers 1
Co-authored papers 1
Co-authored papers 1