Skip to Main Content

Author Details

Benjamin S Wilfond
University of Washington School of Medicine.
1990
315
50
Vardit Ravitsky (CM4AI)
PMIDPaper TitleJournal TitlePublished Year
36660851Incentives in Pediatric Research in Developing Countries: When Are They Too Much?Pediatrics2023
37549363The Moral Value of Telemedicine to the Physician-Patient Relationship.Hastings Cent Rep2023
37607497Refining a Multifaceted Model of Perceived Utility of Genomic Sequencing Results.Public Health Genomics2023
37644850Risk management actions following genetic testing in the Cancer Health Assessments Reaching Many (CHARM) Study: A prospective cohort study.Cancer Med2023
37812093Researcher Obligations to Participants in Novel COVID-19 Vaccine Research.Am J Bioeth2023
37126135Evaluating cancer genetic services in a safety net system: overcoming barriers for a lasting impact beyond the CHARM research project.J Community Genet2023
37421176Most people share genetic test results with relatives even if the findings are normal: Family communication in a diverse population.Genet Med2023
37348312Family-Reflections.com: Creating a parent-to-parent web-based tool regarding pediatric home ventilation.Patient Educ Couns2023
37450523Distinguishing Clinical and Research Risks in Pragmatic Clinical Trials: The Need for Further Stakeholder Engagement.Am J Bioeth2023
37384158Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation.PEC Innov2023
37245030Hyperhydration to Improve Kidney Outcomes in Children with Shiga Toxin-Producing E. coli Infection: a multinational embedded cluster crossover randomized trial (the HIKO STEC trial).Trials2023
37470892Longitudinal adherence to breast cancer surveillance following cancer genetic testing in an integrated health care system.Breast Cancer Res Treat2023
36748334Measuring high-risk parents' opinions about direct-to-consumer genetic testing for adult-onset inherited cancer syndromes in their adolescent and young adult children.J Genet Couns2023
36516964The PrU: Development and validation of a measure to assess personal utility of genomic results.Genet Med2023
36691692Factors That Impact Hospital-Specific Enrollment Rates for a Neonatal Clinical Trial: An Analysis of the HEAL Study.Ethics Hum Res2023
36682451Validation of a Process for Shared Decision-Making in Pediatrics.Acad Pediatr2023
36662553"What Would Give Her the Best Life?": Understanding Why Families Decline Pediatric Home Ventilation.J Palliat Med2023
36938783Medical interpreter-mediated genetic counseling for Spanish preferring adults at risk for a hereditary cancer syndrome.J Genet Couns2023
34302314Barriers to family history knowledge and family communication among LGBTQ+ individuals in the context of hereditary cancer risk assessment.J Genet Couns2022
35676898Family-Assisted Severity of Illness Monitoring for Hospitalized Children in Low-Resource Settings-A Two-Arm Interventional Feasibility Study.Front Pediatr2022
35436948Identifying patients with Lynch syndrome using a universal tumor screening program in an integrated healthcare system.Hered Cancer Clin Pract2022
35763201Toward Meeting the Obligation of Respect for Persons in Pragmatic Clinical Trials.Hastings Cent Rep2022
35664885Ethical Considerations in Ever-Expanding Utilization of ECLS: A Research Agenda.Front Pediatr2022
35689290Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews.Hered Cancer Clin Pract2022
35420512Enrolling Adolescents with Rare Disease for Early Phase Clinical Trials While Under the Care of Child Protection Services: Balancing Protection and Access.Am J Bioeth2022
35522237ORCA, a values-based decision aid for selecting additional findings from genomic sequencing in adults: Efficacy results from a randomized trial.Genet Med2022
35933674Engaging Patient Advisory Committees to Inform a Genomic Cancer Risk Study: Lessons for Future Efforts.Perm J2022
36170065To Disclose or Not to Disclose: Secondary Findings of XXY Chromosomes.Am J Bioeth2022
35985537I know Things Now: The Challenges for Genetic Counseling of Adolescents with a Family History of Hereditary Breast Cancer.J Pediatr2022
36053287An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial.Genet Med2022
33754278Adaptation and early implementation of the PREdiction model for gene mutations (PREMM<sub>5</sub>â¿¢) for lynch syndrome risk assessment in a diverse population.Fam Cancer2022
35123916Corrigendum to "Cancer Health Assessments Reaching Many (CHARM): A clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations" [Contemporary Clinical Trials 106 (2021) 106432].Contemp Clin Trials2022
35094605Conflicts between parents and clinicians: Tracheotomy decisions and clinical bioethics consultation.Nurs Ethics2022
34998990Responding to signals of mental and behavioral health risk in pragmatic clinical trials: Ethical obligations in a healthcare ecosystem.Contemp Clin Trials2022
34908169Allocation of Opportunities to Participate in Clinical Trials during the Covid-19 Pandemic and Other Public Health Emergencies.Hastings Cent Rep2022
35176501Ethical and epistemic issues in the design and conduct of pragmatic stepped-wedge cluster randomized clinical trials.Contemp Clin Trials2022
34906471Motivations and concerns of patients considering participation in an implementation study of a hereditary cancer risk assessment program in diverse primary care settings.Genet Med2022
35171038Development and evaluation of an exome sequencing training course for medical interpreters.Per Med2022
35080259Home mechanical ventilation for children with severe neurological impairment: Parents' perspectives on clinician counselling.Dev Med Child Neurol2022
34738745Parent perspectives on facilitating decision-making around pediatric home ventilation.Pediatr Pulmonol2022
34551279From Monochromatic to Technicolor: Parent Perspectives on Challenges and Approaches to Seeing Children with Severe Neurological Impairment Holistically.J Palliat Med2022
34658003Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.Patient2022
32981477Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study.AJOB Empir Bioeth2021
33853890Presymptomatic Detection and Intervention for Autism Spectrum Disorder.Pediatrics2021
33719913Reframing Recruitment: Evaluating Framing in Authorization for Research Contact Programs.AJOB Empir Bioeth2021
33825623Supporting Investigators in Challenging Cases: Unease in the Face of an Ethically Appropriate Action.Am J Bioeth2021
33825622Conjoined Consent: Informed Consent When Donor and Recipient Are Both Research Participants.Am J Bioeth2021
33811178A 2020 Executive Order That Threatens Progress in Shared Decision-Making.Pediatrics2021
33530721An ethics framework for consolidating and prioritizing COVID-19 clinical trials.Clin Trials2021
33914815Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations.PLoS One2021
  • 1 - 50 of 315

Recommended Authors

Christopher Gyngell
University of Melbourne
Career Start Year 2015
Number of shared co-authors 2
Joel E Pacyna
Biomedical Ethics Program, Mayo Clinic
Career Start Year 2014
Number of shared co-authors 16
Maya Sabatello
Center for Precision Medicine and Genomics, Columbia University
Career Start Year 2014
Number of shared co-authors 25
Stacey Pereira
Baylor College of Medicine.
Career Start Year 2013
Number of shared co-authors 26
Jessica Mozersky
Bioethics Research Center, Washington University School of Medicine
Career Start Year 2012
Number of shared co-authors 6
Erika Kleiderman
Universite de Montreal.
Career Start Year 2012
Number of shared co-authors 9
Megan Allyse
Mayo Clinic
Career Start Year 2011
Number of shared co-authors 12
Ma'n H Zawati
McGill University
Career Start Year 2011
Number of shared co-authors 16
Michelle L McGowan
Biomedical Ethics Research Program, Mayo Clinic
Career Start Year 2008
Number of shared co-authors 13
Juli Bollinger
Berman Institute of Bioethics, Johns Hopkins University
Career Start Year 2006
Number of shared co-authors 21
Jonathan M Marron
and Center for Bioethics, Harvard Medical School
Career Start Year 2005
Number of shared co-authors 9
Pascal Borry
Center for Biomedical Ethics and Law
Career Start Year 2004
Number of shared co-authors 27
Danya F Vears
University of Melbourne
Career Start Year 2004
Number of shared co-authors 11
Fiona A Miller
Institute of Health Policy, University of Toronto
Career Start Year 2002
Number of shared co-authors 12
James A Anderson
The Hospital for Sick Children
Career Start Year 2001
Number of shared co-authors 1
Ivan Glenn Cohen
Petrie-Flom Center for Health Law Policy, Harvard University
Career Start Year 2000
Number of shared co-authors 19
Jeantine E Lunshof
Wyss Institute for Biologically Inspired Engineering, Harvard University
Career Start Year 1999
Number of shared co-authors 12
Bryn Williams-Jones
School of Public Health, Universite de Montreal.
Career Start Year 1999
Number of shared co-authors 2
Susan Brown Trinidad
University of Washington
Career Start Year 1998
Number of shared co-authors 33
Carolyn Riley Chapman
Center for Human Genetics and Genomics, NYU Grossman School of Medicine
Career Start Year 1997
Number of shared co-authors 5
Randi Zlotnik Shaul
The Hospital for Sick Children
Career Start Year 1997
Number of shared co-authors 0
Daryl Pullman
Memorial University
Career Start Year 1996
Number of shared co-authors 16
Alastair Kent
Congenica Ltd
Career Start Year 1995
Number of shared co-authors 15
Thomas May
Elson S. Floyd College of Medicine, Washington State University
Career Start Year 1993
Number of shared co-authors 19
Timothy Caulfield
Faculty of Law and School of Public Health, University of Alberta
Career Start Year 1993
Number of shared co-authors 29
Kenneth W Goodman
University of Miami Miller School of Medicine
Career Start Year 1992
Number of shared co-authors 5
Robert M Nelson
The Ottawa Hospital, University of Ottawa
Career Start Year 1990
Number of shared co-authors 9
Elizabeth Heitman
Program in Ethics in Science and Medicine, University of Texas Southwestern
Career Start Year 1990
Number of shared co-authors 5
Henry T Greely
The Center for Law and the Biosciences, Stanford University
Career Start Year 1989
Number of shared co-authors 37
Fran??oise Baylis
Dalhousie University
Career Start Year 1987
Number of shared co-authors 7

Collaborators

Katrina A B Goddard
Center for Health Research, Kaiser Permanente Northwest
Co-authored papers 45
Stephanie A Kraft
University of Washington School of Medicine
Co-authored papers 39
Tia L Kauffman
Kaiser Permanente Center for Health Research
Co-authored papers 36
Kathryn M Porter
Seattle Children's Hospital
Co-authored papers 31
Holly A Taylor
Clinical Center, National Institutes of Health
Co-authored papers 29
Gail P Jarvik
University of Washington Medical Center
Co-authored papers 26
Mildred K Cho
Center for Biomedical Ethics, Stanford University School of Medicine
Co-authored papers 20
Laura M Amendola
Illumina Inc.
Co-authored papers 20
Barbara B Biesecker
and Translational Research Center
Co-authored papers 19
David Magnus
Stanford Center for Biomedical Ethics, Stanford University
Co-authored papers 18
Douglas S Diekema
Seattle Children's Hospital, University of Washington School of Medicine
Co-authored papers 15
Barbara A Koenig
University of California-San Francisco.
Co-authored papers 14
Gail E Henderson
University of North Carolina-Chapel Hill
Co-authored papers 13
Kyle B Brothers
Norton Children's Research Institute Affiliated with the University of Louisville
Co-authored papers 13
E Clayton
Harvard Medical School, Vanderbilt University, Yale University Yale Law School
Co-authored papers 12
Sandra Soo-Jin Lee
Division of Ethics, Department of Medical Humanities and Ethics, Columbia University
Co-authored papers 12
Steven Joffe
Medical Ethics and Health Policy, University of Pennsylvania
Co-authored papers 12
Leslie G Biesecker
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 12
Wylie Burke
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 11
Kelly J Shipman
Seattle Children's Research Institute
Co-authored papers 11
Carolyn Sue Richards
Oregon Health & Science University (OHSU)
Co-authored papers 11
Kathleen F Mittendorf
Vanderbilt-Ingram Cancer Center, Vanderbilt University Medical Center
Co-authored papers 11
Jonathan S Berg
University of North Carolina
Co-authored papers 11
Richard R Sharp
Biomedical Ethics, Mayo Clinic and Foundation
Co-authored papers 10
Renee D Boss
Johns Hopkins School of Medicine
Co-authored papers 10
Susan M Wolf
Law School and Medical School, University of Minnesota
Co-authored papers 10
Robert C Green
Brigham and Women's Hospital, Broad Institute Ariadne Labs and Harvard Medical School
Co-authored papers 10
David Wendler
NIH Clinical Center
Co-authored papers 10
Jeremy Sugarman
Johns Hopkins University, Berman Institute of Bioethics
Co-authored papers 10
Amy L McGuire
Baylor College of Medicine.
Co-authored papers 9
Release 1.2