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Author Details

Patricia A Marshall
Case Western Reserve University
1989
67
25
PMIDPaper TitleJournal TitlePublished Year
37331970Lessons learned from the translation of the Internalised Stigma of Mental Illness (ISMI) scale into isiXhosa for use with South African Xhosa people with schizophrenia.Transcult Psychiatry2023
35078200Translational Science, DNA Commercialization, and Informed Consent: The Need for Specific Terminology, Insights from a Review of H3Africa Projects.Public Health Genomics2022
36484509Clarifying the Ethics and Oversight of Chimeric Research.Hastings Cent Rep2022
36484507Moral Status and the Oversight of Research Involving Chimeric Animals.Hastings Cent Rep2022
35017180Guideline for feedback of individual genetic research findings for genomics research in Africa.BMJ Glob Health2022
32409883Exploring how a genetic attribution to disease relates to stigma experiences of Xhosa patients with schizophrenia in South Africa.Soc Psychiatry Psychiatr Epidemiol2020
31715540Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa.Soc Sci Med2019
29514717Including all voices in international data-sharing governance.Hum Genomics2018
28338850Photo-documentation in the community: reflections on genetics, health and health disparities.Int J Epidemiol2017
27871291"A rising tide lifts all boats": establishing a multidisciplinary genomic tumor board for breast cancer patients with advanced disease.BMC Med Genomics2016
26644426Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents.J Med Ethics2016
23279082'Someone should oversee it': patient perspectives on the ethical issues arising with the regulation of probiotics.Health Expect2015
25889051Community engagement strategies for genomic studies in Africa: a review of the literature.BMC Med Ethics2015
25663552Is there a space for place in family history assessment? Underserved community views on the impact of neighborhood factors on health and prevention.J Prim Prev2015
24946153The translational potential of research on the ethical, legal, and social implications of genomics.Genet Med2015
24885380Voluntary participation and comprehension of informed consent in a genetic epidemiological study of breast cancer in Nigeria.BMC Med Ethics2014
25104115A perpetual source of DNA or something really different: ethical issues in the creation of cell lines for African genomics research.BMC Med Ethics2014
24948725Research capacity. Enabling the genomic revolution in Africa.Science2014
23494820Gene-environment interactions and health inequalities: views of underserved communities.J Community Genet2013
29768757Next-generation disadvantages: identifying potential barriers to integrating genomics into underserved medical settings.Per Med2013
21716123How patients view probiotics: findings from a multicenter study of patients with inflammatory bowel disease and irritable bowel syndrome.J Clin Gastroenterol2012
22773953Ethical Discourse about the Modification of Food for Therapeutic Purposes: How Patients with Gastrointestinal Diseases View the Good, the Bad, and the Healthy.AJOB Prim Res2012
22565583Negotiating decisions during informed consent for pediatric Phase I oncology trials.J Empir Res Hum Res Ethics2012
22582247Research priorities. ELSI 2.0 for genomics and society.Science2012
22036955Informed consent process for patient participation in rare disease registries linked to biorepositories.Contemp Clin Trials2012
20346094Tailoring the process of informed consent in genetic and genomic research.Genome Med2010
20811451Integrating common and rare genetic variation in diverse human populations.Nature2010
18452553Informed consent practices in Nigeria.Dev World Bioeth2009
18312735"Cultural competence" and informed consent in international health research.Camb Q Healthc Ethics2008
17575464Community engagement and informed consent in the International HapMap project.Community Genet2007
17943131Genome-wide detection and characterization of positive selection in human populations.Nature2007
17943122A second generation human haplotype map of over 3.1 million SNPs.Nature2007
16754445Protecting communities in biomedical research.Am J Bioeth2006
19385865Informed consent in international health research.J Empir Res Hum Res Ethics2006
17018820Voluntary participation and informed consent to international genetic research.Am J Public Health2006
16292607Human rights, cultural pluralism, and international health research.Theor Med Bioeth2005
15202361The individual and the community in international genetic research.J Clin Ethics2004
15301190Accounting for culture in a globalized bioethics.J Law Med Ethics2004
15213210Genetic research and health disparities.JAMA2004
15112645Human subjects protections, institutional review boards, and cultural anthropological research.Anthropol Q2003
11992303Strategies for culturally effective end-of-life care.Ann Intern Med2002
12226585The decision dynamics of clinical research: the context and process of informed consent.Med Care2002
11721794Ethical challenges in community-based research.Am J Med Sci2001
11876185Ethical challenges in community-based research.Am J Med Sci2001
10830553Teaching anthropology in the medical curriculum.Am J Med Sci2000
10067187Neonatal viability in the 1990s: held hostage by technology.Camb Q Healthc Ethics1999
9523039The difference that culture can make in end-of-life decisionmaking.Camb Q Healthc Ethics1998
9869883Cultural and psychological dimensions of human organ transplantation.Ann Transplant1998
9302631Understanding the practice of ethics consultation: results of an ethnographic multi-site study.J Clin Ethics1997
8854113The ethics of caring for conjoined twins. The Lakeberg twins.Hastings Cent Rep1996
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Collaborators

Center for Research on Genomics and Global Health, National Institutes of Health
Co-authored papers 10
Institute for Human Virology
Co-authored papers 9
Biomedical Ethics, Mayo Clinic and Foundation
Co-authored papers 6
University of California-San Francisco.
Co-authored papers 6
Duke University
Co-authored papers 5
Osaka University
Co-authored papers 4
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 4
Center for Law, Columbia University Irving Medical Center
Co-authored papers 4
Health Sciences University of Hokkaido
Co-authored papers 4
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 4
Case Western Reserve University
Co-authored papers 4
Institute of Biomedical Sciences, Henan Academy of Sciences
Co-authored papers 4
William Harvey Research Institute, Queen Mary University of London
Co-authored papers 3
Vertex Pharmaceuticals
Co-authored papers 3
The University of Danang-University of Science and Technology
Co-authored papers 3
East China University of Science and Technology
Co-authored papers 3
The Broad Institute of MIT and Harvard
Co-authored papers 3
King Edward Memorial Hospital
Co-authored papers 3
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 3
Massachusetts General Hospital
Co-authored papers 3
Broad Institute of MIT and Harvard
Co-authored papers 3
Co-authored papers 3
Broad Institute of MIT and Harvard
Co-authored papers 3
University of Calgary
Co-authored papers 3
American University of Sovereign Nations
Co-authored papers 3
National Human Genome Research Institute
Co-authored papers 3
Big Data Institute, University of Oxford
Co-authored papers 3
University of Geneva
Co-authored papers 3
University of Ibadan
Co-authored papers 3
University of Utah
Co-authored papers 3