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Author Details

Robert Cook-Deegan
Arizona State University.
1978
150
29
Vardit Ravitsky (CM4AI)
PMIDPaper TitleJournal TitlePublished Year
36993185Big Advocacy, Little Recognition: The Hidden Work of Black Patients in Precision Medicine.Res Sq2023
35042810Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life.Proc Natl Acad Sci U S A2022
37383575Breathing fresh air into the debate: Ventilators and the United States' intellectual property problem.Health Policy Open2022
35877952The Bayh-Dole Act at 40: Accomplishments, Challenges, and Possible Reforms.J Health Polit Policy Law2022
34406046Governing Heritable Human Genome Editing: A Textual History and a Proposal for the Future.CRISPR J2021
36246510The role of transcranial magnetic stimulation in understanding attention-related networks in single subjects.Curr Res Neurobiol2021
33542123Complicated legacies: The human genome at 20.Science2021
35072136GA4GH: International policies and standards for data sharing across genomic research and healthcare.Cell Genom2021
34529845Lessons from Biomedical Innovation during World War II.Hastings Cent Rep2021
33095048Reactions to the National Academies/Royal Society Report on <i>Heritable Human Genome Editing</i>.CRISPR J2020
37849905The Role of Synthetic Biology in Atmospheric Greenhouse Gas Reduction: Prospects and Challenges.Biodes Res2020
30900262The continuing saga of patents and non-invasive prenatal testing.Prenat Diagn2019
31651818National Partnership for Maternal Safety: Consensus Bundle on Venous Thromboembolism.Obstet Gynecol2019
31080177LeRoy Walters's Legacy of Bioethics in Genetics and Biotechnology Policy.Kennedy Inst Ethics J2019
30994073BRCA1/2 Variant Data-Sharing Practices.J Law Med Ethics2019
30994067Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.J Law Med Ethics2019
30994071Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.J Law Med Ethics2019
30994069Characterizing the Biomedical Data-Sharing Landscape.J Law Med Ethics2019
30994065What is a Medical Information Commons?J Law Med Ethics2019
30994063Genomic Data-Sharing Practices.J Law Med Ethics2019
30994058Introduction: Sharing Data in a Medical Information Commons.J Law Med Ethics2019
31160819In support of mitochondrial replacement therapy.Nat Med2019
28726810A randomized controlled trial of disclosing genetic risk information for Alzheimer disease via telephone.Genet Med2018
33052113Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions.J Particip Med2018
30390178The Bermuda Triangle: The Pragmatics, Policies, and Principles for Data Sharing in the History of the Human Genome Project.J Hist Biol2018
30586411BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2.PLoS Genet2018
27977006Public variant databases: liability?Genet Med2017
28415857Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance.Annu Rev Genomics Hum Genet2017
28373484Moving beyond Bermuda: sharing data to build a medical information commons.Genome Res2017
29230253Barriers to clinical adoption of next-generation sequencing: a policy Delphi panel's solutions.Per Med2017
28938910Creating a data resource: what will it take to build a medical information commons?Genome Med2017
29146800Racing for academic glory and patents: Lessons from CRISPR.Science2017
28541278Sharing data under the 21st Century Cures Act.Genet Med2017
28839064Fostering reproducibility in industry-academia research.Science2017
28543652What's the Use? Disparate Purposes of U.S. Federal Bioethics Commissions.Hastings Cent Rep2017
26810768Disclosing Pleiotropic Effects During Genetic Risk Assessment for Alzheimer Disease: A Randomized Trial.Ann Intern Med2016
27668172Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel.Appl Transl Genom2016
28002697Sequenom v. Ariosa - The Death of a Genetic Testing Patent.N Engl J Med2016
27806054Beyond Our Borders? Public Resistance to Global Genomic Data Sharing.PLoS Biol2016
27774240The mouse that trolled (again).J Law Biosci2016
27281427Erratum: Community crystal gazing.Nat Biotechnol2016
27153269Developing context-specific next-generation sequencing policy.Nat Biotechnol2016
25499536A randomized noninferiority trial of condensed protocols for genetic risk disclosure of Alzheimer's disease.Alzheimers Dement2015
26305750Broad Consent for Research With Biological Samples: Workshop Conclusions.Am J Bioeth2015
26594384The Mouse That Trolled: The Long and Tortuous History of a Gene Mutation Patent That Became an Expensive Impediment to Alzheimer's Research.J Law Biosci2015
26236542Perceptions of Personalized Medicine in an Academic Health System: Educational Findings.J Contemp Med Educ2015
25854543Perspectives on genetic and genomic technologies in an academic medical center: the duke experience.J Pers Med2015
25658278Keeping score, strengthening policy and fighting bad actors over access to research tools.Nat Biotechnol2015
25401053After Myriad: Genetic Testing in the Wake of Recent Supreme Court Decisions about Gene Patents.Curr Genet Med Rep2014
25642409Distributing the future: The weak justifications for keeping human genomic databases secret and the challenges and opportunities in reverse engineering them.Appl Transl Genom2014
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Collaborators

Subhashini Chandrasekharan
National Institutes of Health
Co-authored papers 17
Amy L McGuire
Baylor College of Medicine.
Co-authored papers 14
Tania Bubela
Simon Fraser University
Co-authored papers 10
Robert C Green
Brigham and Women's Hospital, Broad Institute Ariadne Labs and Harvard Medical School
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Misha Angrist
Duke University.
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School of Public Health.
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From Duke University School of Law
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Laura Adrienne Cupples
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Duke University
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Harvard Medical School, Harvard Pilgrim Health Care Institute
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McGill University
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Howard University Hospital
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Deverka Consulting LLC
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Verily Life Sciences LLC
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Lena Dolman
University of Toronto
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Barbara A Koenig
University of California-San Francisco.
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E Richard Gold
McGill University
Co-authored papers 3
Ruth R Faden
Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 3
Adrian Thorogood
Terry Fox Research Institute.
Co-authored papers 3
Hank Greely
Center for Law and the Biosciences, Stanford University
Co-authored papers 3
Timothy Caulfield
Faculty of Law and School of Public Health, University of Alberta
Co-authored papers 3
Yann Joly
McGill University.
Co-authored papers 3
Geoffrey S Ginsburg
National Institutes of Health
Co-authored papers 3
Kazuto Kato
Osaka University
Co-authored papers 3
Jeremy Sugarman
Johns Hopkins University, Berman Institute of Bioethics
Co-authored papers 3
Arthur L Caplan
Division of Medical Ethics, New York University Grossman School of Medicine
Co-authored papers 2
Karen H Rothenberg
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Release 1.2