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Author Details

Stephanie A Kraft
University of Washington School of Medicine
2015
60
16
PMIDPaper TitleJournal TitlePublished Year
37442368Equity Concerns Across Pediatric Research Recruitment: An Analysis of Research Staff Interviews.Acad Pediatr2024
36341765Conducting clinical genomics research during the COVID-19 pandemic: Lessons learned from the CSER consortium experience.Am J Med Genet A2023
37667436Conducting inclusive research in genetics for transgender, gender-diverse, and sex-diverse individuals: Case analyses and recommendations from a clinical genomics study.J Genet Couns2023
37735658Patient priorities for fulfilling the principle of respect in research: findings from a modified Delphi study.BMC Med Ethics2023
37607497Refining a Multifaceted Model of Perceived Utility of Genomic Sequencing Results.Public Health Genomics2023
37450523Distinguishing Clinical and Research Risks in Pragmatic Clinical Trials: The Need for Further Stakeholder Engagement.Am J Bioeth2023
36926958Centering Patients' Voices in Artificial Intelligenceâ¿¿Based Telemedicine.Am J Public Health2023
34658003Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.Patient2022
35763201Toward Meeting the Obligation of Respect for Persons in Pragmatic Clinical Trials.Hastings Cent Rep2022
35689290Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews.Hered Cancer Clin Pract2022
36590359Relationship building in pediatric research recruitment: Insights from qualitative interviews with research staff.J Clin Transl Sci2022
35933674Engaging Patient Advisory Committees to Inform a Genomic Cancer Risk Study: Lessons for Future Efforts.Perm J2022
35123916Corrigendum to "Cancer Health Assessments Reaching Many (CHARM): A clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations" [Contemporary Clinical Trials 106 (2021) 106432].Contemp Clin Trials2022
34906471Motivations and concerns of patients considering participation in an implementation study of a hereditary cancer risk assessment program in diverse primary care settings.Genet Med2022
32981477Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study.AJOB Empir Bioeth2021
33719913Reframing Recruitment: Evaluating Framing in Authorization for Research Contact Programs.AJOB Empir Bioeth2021
33825652Fostering Relationships in Pediatric Oncology Research: A Relational Ethics Approach to Clinically Integrated Research.Am J Bioeth2021
33825630Respecting Donor-Recipient Relationships in Research Decision-Making Commentary on: <i>When Living Donor and Kidney Transplant Recipient Are Both Research Subjects</i>.Am J Bioeth2021
33914815Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations.PLoS One2021
34888063Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.J Clin Transl Sci2021
34778694Systemic Barriers to Risk-Reducing Interventions for Hereditary Cancer Syndromes: Implications for Health Care Inequities.JCO Precis Oncol2021
33984519Cancer Health Assessments Reaching Many (CHARM): A clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations.Contemp Clin Trials2021
33984463Pediatric Death by Neurologic Criteria: The Ever-Changing Landscape and the Expanding Role of Palliative Care Professionals.J Pain Symptom Manage2021
34192059Informed consent: Old and new challenges in the context of the COVID-19 pandemic.J Clin Transl Sci2021
33945415Promoting Disclosure and Understanding in Informed Consent: Optimizing the Impact of the Common Rule "Key Information" Requirement.Am J Bioeth2021
33150424Public attitudes toward an authorization for contact program for clinical research.J Am Med Inform Assoc2021
32220905Can a Parent Refuse the Brain Death Examination?Pediatrics2020
32089547Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.Genet Med2020
33103984Respect and Trustworthiness in the Patient-Provider-Machine Relationship: Applying a Relational Lens to Machine Learning Healthcare Applications.Am J Bioeth2020
32735337Assessing Parent Decisions About Child Participation in a Behavioral Health Intervention Study and Utility of Informed Consent Forms.JAMA Netw Open2020
33023975Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.J Med Ethics2020
32364474Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.Am J Bioeth2020
30585505Exploring Ethical Concerns About Human Challenge Studies: A Qualitative Study of Controlled Human Malaria Infection Study Participants' Motivations and Attitudes.J Empir Res Hum Res Ethics2019
29887604"I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research.Genet Med2019
30245516The evolving landscape of expanded carrier screening: challenges and opportunities.Genet Med2019
31544678An Ethical Case for Dual-Role Consent: Increasing Research Diversity as a Matter of Respect and Justice.Am J Bioeth2019
31090520Understanding as an Ethical Aspiration in an Era of Digital Technology-Based Communication: An Analysis of Informed Consent Functions.Am J Bioeth2019
30585833What Does the Word "Treatable" Mean? Implications for Communication and Decision-Making in Critical Illness.Crit Care Med2019
29293279Patient actions and reactions after receiving negative results from expanded carrier screening.Clin Genet2018
29697352Trustworthiness in Untrustworthy Times: Response to Open Peer Commentaries on Beyond Consent.Am J Bioeth2018
29512940Engaging populations underrepresented in research through novel approaches to consent.Am J Med Genet C Semin Med Genet2018
29733724Lessons Learned From A Study Of Genomics-Based Carrier Screening For Reproductive Decision Making.Health Aff (Millwood)2018
29621457Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.Am J Bioeth2018
29250907Patient perspectives on the use of categories of conditions for decision making about genomic carrier screening results.Am J Med Genet A2018
29267267Metaphors matter: from biobank to a library of medical information.Genet Med2018
27625314A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent.Clin Trials2017
30146866Research on Medical Practices (ROMP): Attitudes of IRB Personnel about Randomization and Informed Consent.IRB2017
30387977Research on Medical Practices: Why Patients Consider Participating and the Investigational Misconception.IRB2017
29148942Attending to the Interrelatedness of the Functions of Consent.Am J Bioeth2017
28661747Comprehension and Choice Under the Revised Common Rule: Improving Informed Consent by Offering Reasons Why Some Enroll in Research and Others Do Not.Am J Bioeth2017
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Collaborators

Benjamin S Wilfond
University of Washington School of Medicine.
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Seattle Children's Hospital
Co-authored papers 22
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Center for Health Research, Kaiser Permanente Northwest
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Vanderbilt-Ingram Cancer Center, Vanderbilt University Medical Center
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Google
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Seattle Children's Research Institute
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Seattle Children's Hospital, University of Washington School of Medicine
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Barbara B Biesecker
and Translational Research Center
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Jessica Ezzell Hunter
Kaiser Permanente Center for Health Research
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Kelly E Ormond
Stanford University School of Medicine
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Nanibaa' A Garrison
Institute for Society and Genetics, University of California los angeles
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Jeremy Sugarman
Johns Hopkins University, Berman Institute of Bioethics
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Heather Spencer Feigelson
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Marsha Michie
Case Western Reserve University School of Medicine
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Steven Joffe
Medical Ethics and Health Policy, University of Pennsylvania
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Megan Allyse
Mayo Clinic
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Gail P Jarvik
University of Washington Medical Center
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Jill O Robinson
Baylor College of Medicine.
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Margaret Waltz
University of North Carolina at Chapel Hill.
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Sara L Ackerman
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