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Author Details

Steven Joffe
Medical Ethics and Health Policy, University of Pennsylvania
1999
209
51
PMIDPaper TitleJournal TitlePublished Year
37225413Enhancing social value considerations in prioritising publicly funded biomedical research: the vital role of peer review.J Med Ethics2024
36709385Establishing a global regulatory floor for children's decisions about participation in clinical research.Pediatr Res2023
37490290Physician-Investigator, Research Coordinator, and Patient Perspectives on Dual-Role Consent in Oncology: A Qualitative Study.JAMA Netw Open2023
37262312Ethical Responsibilities for Companies That Process Personal Data.Am J Bioeth2023
34848850How neonatologists use genetic testing: findings from a national survey.J Perinatol2022
35919970Understanding risk factors for cancer: What's new and how can it help reduce the cancer burden?Cancer2022
35061512Health Literacy and Clinical Outcomes Following Hematopoietic Stem-Cell Transplantation.JCO Oncol Pract2022
35169841Influence of Genetic Information on Neonatologists' Decisions: A Psychological Experiment.Pediatrics2022
33299147Real-world integration of genomic data into the electronic health record: the PennChart Genomics Initiative.Genet Med2021
33906929Prospect of Direct Benefit in Pediatric Trials: Practical Challenges and Potential Solutions.Pediatrics2021
33753473Allocating scarce life-saving resources: the proper role of age.J Med Ethics2021
33530721An ethics framework for consolidating and prioritizing COVID-19 clinical trials.Clin Trials2021
35006047Curbside Consults in Clinical Medicine: Empirical and Liability Challenges.J Law Med Ethics2021
35036551Patients' roles in governance of learning: Results from a qualitative study of 16 learning healthcare systems.Learn Health Syst2021
34008027Data and Safety Monitoring of COVID-19 Vaccine Clinical Trials.J Infect Dis2021
34288930Historical trends in health care-related financial holdings among members of Congress.PLoS One2021
33462449The limits of acceptable political influence over the FDA.Nat Med2021
33315069Evaluating SARS-CoV-2 Vaccines After Emergency Use Authorization or Licensing of Initial Candidate Vaccines.JAMA2021
33136427Emergency Approvals for COVID-19: Evolving Impact on Obligations to Patients in Clinical Care and Research.Ann Intern Med2021
31199697Paying Clinical Trial Participants: Legal Risks and Mitigation Strategies.J Clin Oncol2020
31740767Transplant center characteristics and survival after allogeneic hematopoietic cell transplantation in adults.Bone Marrow Transplant2020
31944215Sharing Patient Data Without Exploiting Patients.JAMA2020
32992106Rethinking ethical oversight in the era of the learning health system.Healthc (Amst)2020
32908674Regulatory flexibility for COVID-19 research.J Law Biosci2020
32675525COVID-19 Moves Medicine into a Virtual Space: A Paradigm Shift From Touch to Talk to Establish Trust.Ann Surg2020
32421946The Importance of Engaging Children in Research Decision-Making: A Preliminary Mixed-Methods Study.Ethics Hum Res2020
32414353Pediatric reporting of genomic results study (PROGRESS): a mixed-methods, longitudinal, observational cohort study protocol to explore disclosure of actionable adult- and pediatric-onset genomic variants to minors and their parents.BMC Pediatr2020
32343643Ethics and Resource Scarcity: ASCO Recommendations for the Oncology Community During the COVID-19 Pandemic.J Clin Oncol2020
30681707Association Between Financial Incentives and Participant Deception About Study Eligibility.JAMA Netw Open2019
31756304Preferences for Return of Genetic Results Among Participants in the Jackson Heart Study and Framingham Heart Study.Circ Genom Precis Med2019
31545335Pay-to-Participate Trials and Vulnerabilities in Research Ethics Oversight.JAMA2019
31313633Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.Per Med2019
31012926Patient-Physician Relationship in the Age of Expanded Access to Information-Reply.JAMA2019
31068108Response to Open Peer Commentaries: When Is It Ethical for Physician-Investigators to Seek Consent From Their Own Patients?Am J Bioeth2019
31068049Attitudes Toward Genetics and Genetic Testing Among Participants in the Jackson and Framingham Heart Studies.J Empir Res Hum Res Ethics2019
30723995The Multidimensional Illness Severity Questionnaire: Preliminary evaluation of a brief parent-reported measure of illness severity.J Paediatr Child Health2019
30994425When Is It Ethical for Physician-Investigators to Seek Consent From Their Own Patients?Am J Bioeth2019
30874753Challenges in Research on Suicide Prevention-Reply.JAMA2019
29320302Federal Right-to-Try Legislation - Threatening the FDA's Public Health Mission.N Engl J Med2018
30212297Addressing Financial Barriers to Patient Participation in Clinical Trials: ASCO Policy Statement.J Clin Oncol2018
29799989Ethics and the Underreporting of Research Biopsy Findings in Clinical Trials.JAMA Oncol2018
29924950Informed Consent and the Role of the Treating Physician.N Engl J Med2018
30372431Beyond financial conflicts of interest: Institutional oversight of faculty consulting agreements at schools of medicine and public health.PLoS One2018
30291807Will my child do better if she enrolls in a clinical trial?Cancer2018
30286223Implications of Zero Suicide for Suicide Prevention Research.JAMA2018
30329153Protecting clinical trial participants and study integrity in the age of social media.Cancer2018
30326026The New Age of Patient Autonomy: Implications for the Patient-Physician Relationship.JAMA2018
29450515Gender and Byline Placement of Co-first Authors in Clinical and Basic Science Journals With High Impact Factors.JAMA2018
29554176Characteristics Associated With Preferences for Parent-Centered Decision Making in Neonatal Intensive Care.JAMA Pediatr2018
29446211The benefit sharing vision of H3Africa.Dev World Bioeth2018
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Gail Geller
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Jonathan Kimmelman
McGill University
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Marion Danis
National Institutes of Health Clinical Center
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Collaborators

Benjamin S Wilfond
University of Washington School of Medicine.
Co-authored papers 12
Holly Fernandez Lynch
University of Pennsylvania Perelman School of Medicine.
Co-authored papers 11
Stacy W Gray
City of Hope Comprehensive Cancer Center
Co-authored papers 9
Jennifer C Kesselheim
Dana-Farber Cancer institute
Co-authored papers 8
Pasi A J??nne
Dana-Farber Cancer Institute
Co-authored papers 7
Nikhil Wagle
Dana-Farber Cancer Institute
Co-authored papers 7
Amy L McGuire
Baylor College of Medicine.
Co-authored papers 7
Aaron S Kesselheim
Brigham and Women's Hospital.
Co-authored papers 7
Laurence B McCullough
Zucker School of Medicine at Hofstra/Northwell, and Lenox Hill Hospital
Co-authored papers 7
Levi A Garraway
Broad Institute of Harvard and MIT
Co-authored papers 7
Barbara A Bernhardt
Thomas Jefferson University
Co-authored papers 6
Michelle M Mello
Co-authored papers 6
Joon-Ho Yu
University of Washington School of Medicine
Co-authored papers 6
Paul S Appelbaum
Center for Law, Columbia University Irving Medical Center
Co-authored papers 6
Barbara A Koenig
University of California-San Francisco.
Co-authored papers 6
Judy E Garber
Dana-Farber Cancer Institute
Co-authored papers 6
Richard R Sharp
Biomedical Ethics, Mayo Clinic and Foundation
Co-authored papers 5
Ingrid A Holm
Harvard Medical School
Co-authored papers 5
Sharon E Plon
Baylor College of Medicine
Co-authored papers 5
Susan M Wolf
Law School and Medical School, University of Minnesota
Co-authored papers 5
Donald W Parsons
Texas Children's Hospital
Co-authored papers 5
Eric Kodish
Cleveland Clinic and Lerner College of Medicine at Case Western Reserve University
Co-authored papers 5
Kyle B Brothers
Norton Children's Research Institute Affiliated with the University of Louisville
Co-authored papers 5
Eliezer M Van Allen
Dana-Farber Cancer Institute
Co-authored papers 5
Robert C Green
Brigham and Women's Hospital, Broad Institute Ariadne Labs and Harvard Medical School
Co-authored papers 5
Leslie G Biesecker
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 5
E Clayton
Harvard Medical School, Vanderbilt University, Yale University Yale Law School
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Wylie Burke
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 4
Mildred K Cho
Center for Biomedical Ethics, Stanford University School of Medicine
Co-authored papers 4
Gail E Henderson
University of North Carolina-Chapel Hill
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Release 1.2