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Author Details

Mats G Hansson
Centre for Research Ethics & Bioethics, Uppsala University
1993
94
26
PMIDPaper TitleJournal TitlePublished Year
36269885A proposal for an international Code of Conduct for data sharing in genomics.Dev World Bioeth2023
37400929Physical function and severe side effects matter most to patients with RA (<â¿¿5 years): a discrete choice experiment assessing preferences for personalized RA treatment.BMC Rheumatol2023
36261826Patients' views on using human embryonic stem cells to treat Parkinson's disease: an interview study.BMC Med Ethics2022
33748845Good general health and lack of family history influence the underestimation of cardiovascular risk: a cross-sectional study.Eur J Cardiovasc Nurs2021
33757643Does being exposed to an educational tool influence patient preferences? The influence of an educational tool on patient preferences assessed by a discrete choice experiment.Patient Educ Couns2021
31540566Pretend Play as an Intervention for Children With Cancer: A Feasibility Study.J Pediatr Oncol Nurs2020
33341117Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients.Arthritis Res Ther2020
33426479The case for open science: rare diseases.JAMIA Open2020
30443897Patient Perspectives on the Value of Patient Preference Information in Regulatory Decision Making: A Qualitative Study in Swedish Patients with Rheumatoid Arthritis.Patient2019
30259298"A perfect society"- Swedish policymakers' ethical and social views on preconception expanded carrier screening.J Community Genet2019
30714970The Position of Neuromuscular Patients in Shared Decision Making. Report from the 235th ENMC Workshop: Milan, Italy, January 19-20, 2018.J Neuromuscul Dis2019
31014326Values and value conflicts in implementation and use of preconception expanded carrier screening - an expert interview study.BMC Med Ethics2019
31125371Short-term mental distress in research participants after receiving cardiovascular risk information.PLoS One2019
30992550Research participants' preferences for receiving genetic risk information: a discrete choice experiment.Genet Med2019
28947362Making sense of genetic risk: A qualitative focus-group study of healthy participants in genomic research.Patient Educ Couns2018
30072059From Epigenetic Associations to Biological and Psychosocial Explanations in Mental Health.Prog Mol Biol Transl Sci2018
28247251Giving Patients' Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public-Private Project.Patient2017
25527354Ethics rounds: An appreciated form of ethics support.Nurs Ethics2016
27647845Anxiety delivered direct-to-consumer: are we asking the right questions about the impacts of DTC genetic testing?J Med Genet2016
27603671Let the Individuals Directly Concerned Decide: A Solution to Tragic Choices in Genetic Risk Information.Public Health Genomics2016
27222291The risk of re-identification versus the need to identify individuals in rare disease research.Eur J Hum Genet2016
27307116International Charter of principles for sharing bio-specimens and data.Eur J Hum Genet2016
25908209Freedom of Choice About Incidental Findings Can Frustrate Participants' True Preferences.Bioethics2016
24467443Hope for a cure and altruism are the main motives behind participation in phase 3 clinical cancer trials.Eur J Cancer Care (Engl)2015
26305750Broad Consent for Research With Biological Samples: Workshop Conclusions.Am J Bioeth2015
26096600The Swedish CArdioPulmonary BioImage Study: objectives and design.J Intern Med2015
25592287Ethics rounds do not improve the handling of ethical issues by psychiatric staff.Nord J Psychiatry2015
25248399International Charter of principles for sharing bio-specimens and data.Eur J Hum Genet2015
23371315Why participating in (certain) scientific research is a moral duty.J Med Ethics2014
25747292Children's Views on Long-Term Screening for Type 1 Diabetes.J Empir Res Hum Res Ethics2014
25029978RD-Connect: an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research.J Gen Intern Med2014
24496060ERIC: a new governance tool for biobanking.Eur J Hum Genet2014
24065111Incidental findings: the time is not yet ripe for a policy for biobanks.Eur J Hum Genet2014
22681564Adequate trust avails, mistaken trust matters: on the moral responsibility of doctors as proxies for patients' trust in biobank research.Bioethics2013
23821785Rare diseases and now rare data?Nat Rev Genet2013
23864288Phase 1 clinical trials in end-stage cancer: patient understanding of trial premises and motives for participation.Support Care Cancer2013
23836220Finding ways to improve the use of biobanks.Nat Med2013
23740041International guidelines on biobank research leave researchers in ambiguity: why is this so?Eur J Epidemiol2013
23557514Transition to noncurative end-of-life care in paediatric oncology--a nationwide follow-up in Sweden.Acta Paediatr2013
23522924Patients would benefit from simplified ethical review and consent procedure.Lancet Oncol2013
23561333A model of study for human cancer: Spontaneous occurring tumors in dogs. Biological features and translation for new anticancer therapies.Crit Rev Oncol Hematol2013
22362719Ethics bureaucracy: a significant hurdle for collaborative follow-up of drug effectiveness in rare childhood diseases.Arch Dis Child2012
24849753Commercialization of biobanks.Biopreserv Biobank2012
22796267Medical registries represent vital patient interests and should not be dismantled by stricter regulation.Cancer Epidemiol2012
22810581Where should we draw the line between quality of care and other ethical concerns related to medical registries and biobanks?Theor Med Bioeth2012
22538599Biobanks: Validate gene findings before telling donors.Nature2012
20949383The need to downregulate: a minimal ethical framework for biobank research.Methods Mol Biol2011
24846262Biobanking within the European regulatory framework: opportunities and obstacles.Biopreserv Biobank2011
22228061"My parents decide if I can. I decide if I want to." Children's views on participation in medical research.J Empir Res Hum Res Ethics2011
21972296Biobank research: who benefits from individual consent?BMJ2011
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Collaborators

Hanns Lochm??ller
Children's Hospital of Eastern Ontario Research Institute
Co-authored papers 5
Hugh Dawkins
The University of Notre Dame Australia
Co-authored papers 5
Deborah Mascalzoni
Institute for Biomedicine (Affiliated Institute of the University of Lubeck)
Co-authored papers 4
Yaffa Rubinstein
National Institutes of Health (NIH)
Co-authored papers 4
Domenica Taruscio
National Center for Rare Diseases, Istituto Superiore di Sanita
Co-authored papers 3
Bartha Maria Knoppers
McGill University
Co-authored papers 3
Manuel Posada
Institute of Rare Diseases Research, Instituto de Salud Carlos III
Co-authored papers 3
Franz Schaefer
University Children's Hospital Heidelberg
Co-authored papers 3
Joyce Carlson
Co-authored papers 2
Edward S Dove
University of Edinburgh
Co-authored papers 2
Peter N Robinson
William Harvey Research Institute, Queen Mary University of London
Co-authored papers 2
Carol J Weil
Co-authored papers 1
Dina N Paltoo
National Institutes of Health
Co-authored papers 1
G??ran Bergstr??m
Sahlgrenska University Hospital
Co-authored papers 1
S??gol??ne Aym??
Paris Brain Institute-ICM, Inserm U 7, CNRS UMR 7225, Sorbonne Universite
Co-authored papers 1
Paul Avillach
Harvard Medical School
Co-authored papers 1
Pierre J Magistretti
King Abdullah University of Science and Technology
Co-authored papers 1
Christine Grady
National Institutes of Health Clinical Center
Co-authored papers 1
Julie A McMurry
University of Colorado - Anschutz Medical Campus
Co-authored papers 1
Tamar B Rubinstein
Albert Einstein College of Medicine and Children's Hospital at Montefiore
Co-authored papers 1
Judy Illes
University of British Columbia.
Co-authored papers 1
Alison P Rockett-Frase
Joshua Frase Foundation
Co-authored papers 1
H??kan Widner
Skane University Hospital
Co-authored papers 1
Gareth Baynam
King Edward Memorial Hospital
Co-authored papers 1
Jonathan Pevsner
Kennedy Krieger Institute, Johns Hopkins University School of Medicine
Co-authored papers 1
Rachel Thompson
Children's Hospital of Eastern Ontario Research Institute
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Robert Cook-Deegan
Arizona State University.
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Peter A C 't Hoen
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Release 1.2