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Author Details

Jeffrey R Botkin
University of Utah
1988
150
34
PMIDPaper TitleJournal TitlePublished Year
36167059Knowledge and Attitudes about Privacy and Secondary Data Use among African-Americans Using Direct-to-Consumer Genetic Testing.Public Health Genomics2022
35838066Newborn screening for neurodevelopmental diseases: Are we there yet?Am J Med Genet C Semin Med Genet2022
33020592Ethical and public health implications of genetic testing for suicide risk: family and survivor perspectives.Genet Med2021
33644301The Ethics of Artificial Intelligence in Pathology and Laboratory Medicine: Principles and Practice.Acad Pathol2021
33640892Secondary Data Usage in Direct-to-Consumer Genetic Testing: To What Extent Are Customers Aware and Concerned?Public Health Genomics2021
34710027What Should Physician-Researchers Tell Patient-Subjects About Their Relationships With Industry?AMA J Ethics2021
34472199Ethical concerns relating to genetic risk scores for suicide.Am J Med Genet B Neuropsychiatr Genet2021
34721662Exploring the use of a Comic for Education about Expanded Carrier Screening among a Diverse Group of Mothers.J Commun Healthc2021
34849253Addressing ethical and laboratory challenges for initiation of a rapid whole genome sequencing program.J Clin Transl Sci2021
33353974Correction: Ethical and public health implications of genetic testing for suicide risk: family and survivor perspectives.Genet Med2021
33481187Electronic informed consent information for residual newborn specimen research: findings from focus groups with diverse populations.J Community Genet2021
32453499Experiences and lessons learned by genetic counselors in returning secondary genetic findings to patients.J Genet Couns2020
31748711The case for banning heritable genome editing.Genet Med2020
33202103Informed Consent for Genetic and Genomic Research.Curr Protoc Hum Genet2020
32659229Cost-Effectiveness of Nusinersen and Universal Newborn Screening for Spinal Muscular Atrophy.J Pediatr2020
32242760Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial.J Empir Res Hum Res Ethics2020
30531811Secondary research uses of residual newborn screening dried bloodspots: a scoping review.Genet Med2019
30107621The Use of a Game-Based Decision Aid to Educate Pregnant Women about Prenatal Screening: A Randomized Controlled Study.Am J Perinatol2019
31589244Avoiding Harm From Hyperbilirubinemia Screening-Reply.JAMA Pediatr2019
31544660The Bane of "Boilerplate" Language in Research Consent Forms: Ensuring Consent Forms Promote Autonomous Authorization.Am J Bioeth2019
31337889Clarify the HIPAA right of access to individuals' research data.Nat Biotechnol2019
31307354Genetic Contextualism and the Value of a Structured Process.Am J Bioeth2019
31108575Implementing a Central IRB Model in a Multicenter Research Network.Ethics Hum Res2019
31107538Screening for Neonatal Hyperbilirubinemia-First Do No Harm?JAMA Pediatr2019
29513089An empirical assessment of the short-term impacts of a reading of Deborah Zoe Laufer's drama Informed Consent on attitudes and intentions to participate in genetic research.AJOB Empir Bioeth2018
30422234Should Failure to Disclose Significant Financial Conflicts of Interest Be Considered Research Misconduct?JAMA2018
30442797Standardizing return of participant results.Science2018
27996896Concerns About Justification for Fetal Genome Sequencing.Am J Bioeth2017
31245576Transparency and choice in learning healthcare systems.Learn Health Syst2017
29073807An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots.J Empir Res Hum Res Ethics2017
28510049Education for fathers about newborn screening and leftover dried blood spots.J Community Genet2017
27796679Experiences among Women with Positive Prenatal Expanded Carrier Screening Results.J Genet Couns2017
26078330Deliberative Discussion Focus Groups.Qual Health Res2016
26407522Success rates for consent and collection of prenatal biological specimens in an epidemiologic survey of child health.Birth Defects Res A Clin Mol Teratol2016
27606958Ethical issues in pediatric genetic testing and screening.Curr Opin Pediatr2016
27387457The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots.J Empir Res Hum Res Ethics2016
27134803Whole Genome Sequencing and Newborn Screening.Curr Genet Med Rep2016
26833040Evaluating Harms in the Assessment of Net Benefit: A Framework for Newborn Screening Condition Review.Matern Child Health J2016
27043416Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.JAMA Pediatr2016
25742664An Analysis of Information Technology Adoption by IRBs of Large Academic Medical Centers in the United States.J Empir Res Hum Res Ethics2015
26305753Crushing Consent Under the Weight of Expectations.Am J Bioeth2015
26331182Biobanking Research and Human Subjects Protections: Perspectives of IRB Leaders.IRB2015
26564943Investigator Experiences and Attitudes About Research With Biospecimens.J Empir Res Hum Res Ethics2015
26556149Waving Goodbye to Waivers of Consent.Hastings Cent Rep2015
26140447Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.Am J Hum Genet2015
25953109IRB practices and policies regarding the secondary research use of biospecimens.BMC Med Ethics2015
25644874Public attitudes regarding the use of electronic health information and residual clinical tissues for research.J Community Genet2015
24394680Parental permission for pilot newborn screening research: guidelines from the NBSTRN.Pediatrics2014
25747685A randomized controlled trial of an electronic informed consent process.J Empir Res Hum Res Ethics2014
25043469The irregular terrain of human subjects research regulations. Commentary.Hastings Cent Rep2014
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Collaborators

Aaron J Goldenberg
Case Western Reserve University
Co-authored papers 15
Benjamin S Wilfond
University of Washington School of Medicine.
Co-authored papers 9
Wylie Burke
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 7
Michelle Huckaby Lewis
Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 6
Lainie Friedman Ross
University of Rochester School of Medicine and Dentistry.
Co-authored papers 6
E Clayton
Harvard Medical School, Vanderbilt University, Yale University Yale Law School
Co-authored papers 4
Thomas H Murray
Yale School of Medicine
Co-authored papers 4
Scott D Grosse
Centers for Disease Control and Prevention
Co-authored papers 4
John F Hurdle
University of Utah
Co-authored papers 4
Karen J Maschke
a nonprofit bioethics research institute
Co-authored papers 4
Nancy Press
Oregon Health and Science University
Co-authored papers 4
Mary Jo Kahn
Co-authored papers 3
Robert M Nelson
The Ottawa Hospital, University of Ottawa
Co-authored papers 3
Elizabeth Thomson
Northrop Grumman Health Solutions
Co-authored papers 3
Hilary Coon
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Naomi O Riches
University of Utah
Co-authored papers 3
Gail P Jarvik
University of Washington Medical Center
Co-authored papers 3
Brent M Kious
University of Utah
Co-authored papers 3
Anna R Docherty
Co-authored papers 3
Alex R Kemper
Nationwide Children's Hospital
Co-authored papers 2
Sharon F Terry
Icahn School of Medicine at Mount Sinai
Co-authored papers 2
Jonathan S Berg
University of North Carolina
Co-authored papers 2
Howard M Saal
Cincinnati Children's Hospital Medical Center
Co-authored papers 2
Judy E Garber
Dana-Farber Cancer Institute
Co-authored papers 2
Laura M Beskow
Center for Biomedical Ethics and Society, Vanderbilt University Medical Center
Co-authored papers 2
John J Mulvihill
University of Oklahoma
Co-authored papers 2
Wendy R Uhlmann
University of Michigan School of Medicine ann arbor
Co-authored papers 2
Robert A Hiatt
University of California San Francisco
Co-authored papers 2
Jeremy Sugarman
Johns Hopkins University, Berman Institute of Bioethics
Co-authored papers 2
Scott P Narus
University of Utah
Co-authored papers 2
Release 1.2