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Author Details

Joel Frader
Northwestern University Feinberg School of Medicine
1979
98
21
PMIDPaper TitleJournal TitlePublished Year
37220376Bridge or Destination: Ethical Complexity, Emotional Unrest.Am J Bioeth2023
37125806Refusals of the Determination of Death by Neurologic Criteria: A Mixed Methods Study of Physician Perspectives on Refusals Cases.Pediatr Crit Care Med2023
36138595Parental Views of Social Worker and Chaplain Involvement in Care and Decision Making for Critically Ill Children with Cancer.Children (Basel)2022
33407729A charitable access program for patients with lysosomal storage disorders in underserved communities worldwide.Orphanet J Rare Dis2021
32441597Beyond the Apnea Test: An Argument to Broaden the Requirement for Consent to the Entire Brain Death Evaluation.Am J Bioeth2020
32639470A Randomized Comparative Trial to Evaluate a PICU Navigator-Based Parent Support Intervention.Pediatr Crit Care Med2020
32966203Shifting Duties of Children's Hospitals During the COVID-19 Pandemic.J Hosp Med2020
32780317Ethical issues involving fertility preservation for transgender youth.J Assist Reprod Genet2020
32311124Plus ça change: Renée Fox and the Sociology of Organ Replacement Therapy.Hastings Cent Rep2020
30851075Futility in Rehabilitation.PM R2019
31237509The Case of Seth: To Treat or Not to Treat.Am J Bioeth2019
29317765"We want to do everything": how parents represent their experiences with maternal-fetal surgery online.J Perinatol2018
29920145A Descriptive Study of Decision-Making Conversations during Pediatric Intensive Care Unit Family Conferences.J Palliat Med2018
29866714Alfie Evans case: how we refer to palliative care.BMJ2018
29228163Ethical Challenges Confronted When Providing Nusinersen Treatment for Spinal Muscular Atrophy.JAMA Pediatr2018
28062351Training the Workforce: Description of a Longitudinal Interdisciplinary Education and Mentoring Program in Palliative Care.J Pain Symptom Manage2017
28109538Introduction.Semin Perinatol2017
28679640Palliative Sedation With Propofol for an Adolescent With a DNR Order.Pediatrics2017
27612506Communication During Pediatric Intensive Care Unit Family Conferences: A Pilot Study of Content, Communication, and Parent Perceptions.Health Commun2017
27261646Patient-Centered Communication in the PICU: Where, When, and How.Pediatr Crit Care Med2016
28725847The Process and Impact of Stakeholder Engagement in Developing a Pediatric Intensive Care Unit Communication and Decision-Making Intervention.J Patient Exp2016
25730687Don'T forget palliative patients.JAMA Pediatr2015
26300146A Pediatrician's View.Narrat Inq Bioeth2015
24512153A 3-year-old boy with acute respiratory failure, sleep apnea, and rapid weight gain.Pediatr Ann2014
25486029A 13-month-old male with possible seizures.Pediatr Ann2014
23249788End-of-life care decisions in the PICU: roles professionals play.Pediatr Crit Care Med2013
24175636The use of family conferences in the pediatric intensive care unit.J Palliat Med2013
23738513The OHRP and SUPPORT.N Engl J Med2013
23419591Newborns and other children: in defense of differential attitudes and treatment.J Pediatr2013
23569094Forgoing artificial nutrition and hydration: what to make of parents' views.Pediatrics2013
22494202Re-evaluating the recipient criteria for organ transplants.Pediatr Ann2012
20869726Are we ready to expand donation after cardiac death to the newborn population?J Pediatr2011
21943264Prisoners as living organ donors: the case of the Scott sisters.Am J Bioeth2011
21478794Pediatric intensive care unit family conferences: one mode of communication for discussing end-of-life care decisions.Pediatr Crit Care Med2011
20041861In response to: Testa et al. 'Elective surgical patients as living organ donors: a clinical and ethical innovation'.Am J Transplant2010
20818562Speaking of accuracy.Am J Bioeth2010
20837595Ethics rounds. Symbolic resuscitation, medical futility, and parental rights.Pediatrics2010
19170090The personal is political, the professional is not: conscientious objection to obtaining/providing/acting on genetic information.Am J Med Genet C Semin Med Genet2009
19884588Parental views on withdrawing life-sustaining therapies in critically ill children.Arch Pediatr Adolesc Med2009
19723258Off-label prescribing: a call for heightened professional and government oversight.J Law Med Ethics2009
19436017Policies on donation after cardiac death at children's hospitals: a mixed-methods analysis of variation.JAMA2009
19416042Pediatric residents' and fellows' perspectives on palliative care education.J Palliat Med2009
19559290Hypoplastic left heart syndrome: a paradigm case for examining conscientious objection in pediatric practice.J Pediatr2009
18283776Holding on and letting go: ethical issues regarding the care of children with cancer.Cancer Treat Res2008
18327127Approaching parents for organ donation: who and when?Pediatr Crit Care Med2008
17251891Deconstructing donation after cardiac death.Pediatr Crit Care Med2007
17985106Withholding hydration and nutrition in newborns.Theor Med Bioeth2007
17348264Discontinuing artificial fluids and nutrition: discussions with children' families.Hastings Cent Rep2007
17496515Can policy spoil compassion?Pediatr Crit Care Med2007
17413854Ashley's case.Pediatr Res2007
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Collaborators

University of Rochester School of Medicine and Dentistry.
Co-authored papers 6
Mt Sinai School of Medicine
Co-authored papers 6
Ann & Robert H. Lurie Children's Hospital of Chicago.
Co-authored papers 4
Boston Children's Hospital, Harvard Medical School
Co-authored papers 3
Children's Hospital of Philadelphia
Co-authored papers 2
Northwestern University Feinberg School of Medicine
Co-authored papers 2
Cincinnati Children's Hospital Medical Center
Co-authored papers 2
Stanford Center for Biomedical Ethics, Stanford University
Co-authored papers 2
University of Pittsburgh School of Medicine
Co-authored papers 2
Cleveland Clinic and Lerner College of Medicine at Case Western Reserve University
Co-authored papers 2
Ann and Robert H. Lurie Children's Hospital of Chicago
Co-authored papers 2
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 1
College of Human Medicine, Michigan State University
Co-authored papers 1
Universite de Montreal
Co-authored papers 1
Johns Hopkins University, Berman Institute of Bioethics
Co-authored papers 1
Robert H Lurie Comprehensive Cancer Center of Northwestern University
Co-authored papers 1
The Kennedy Institute of Ethics, Georgetown University
Co-authored papers 1
University of Wisconsin School of Medicine and Public Health
Co-authored papers 1
Northwestern University Feinberg School of Medicine
Co-authored papers 1
Ann and Robert H. Lurie Children's Hospital of Chicago
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Hasbro Children's Hospital, Brown University
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Center for Biomedical Ethics, Stanford University School of Medicine
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Stanford Center for Biomedical Ethics (SCBE), Stanford University
Co-authored papers 1
Seattle Children's Hospital, University of Washington School of Medicine
Co-authored papers 1
Zucker School of Medicine at Hofstra/Northwell, and Lenox Hill Hospital
Co-authored papers 1
Clinical Center, National Institutes of Health
Co-authored papers 1
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Seattle Children's Hospital, University of Washington
Co-authored papers 1
New York-Presbyterian Hospital
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Harvard Medical School
Co-authored papers 1