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Author Details

Pascal Borry
Center for Biomedical Ethics and Law
2004
217
38
Vardit Ravitsky (CM4AI)
PMIDPaper TitleJournal TitlePublished Year
36031953Appropriate inclusion of adult research participants with intellectual disability: an in-depth review of guidelines and policy statements.Account Res2024
37322132Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory.Eur J Hum Genet2024
36448698Assessing the acceptability of individual studies that use deception: A systematic review of normative guidance documents.Account Res2024
36868564Sport-related concussion research agenda beyond medical science: culture, ethics, science, policy.J Med Ethics2024
36189958Navigating the uncertainties of next-generation sequencing in the genetics clinic.Sociol Health Illn2023
37799497Crowdsourcing smartphone data for biomedical research: Ethical and legal questions.Digit Health2023
37592172Dealing with ambivalence in the practice of advanced genetic healthcare: towards an ethical choreography.Eur J Hum Genet2023
37943178Governance of research and product improvement studies in consumer mental health apps. Interviews with researchers and app developers.Account Res2023
37769066Ethically cleared to launch?Science2023
37186795Informed Consent and Debriefing When Deceiving Participants: A Systematic Review of Research Ethics Guidelines.J Empir Res Hum Res Ethics2023
37336289Disclosure of genetic risk in the family: A survey of the Flemish general population.Eur J Med Genet2023
36961773Reward systems for cohort data sharing: An interview study with funding agencies.PLoS One2023
36788144Experiences of nonpregnant couples after receiving reproductive genetic carrier screening results in Belgium.Eur J Hum Genet2023
36810088Informing a European guidance framework on electronic informed consent in clinical research: a qualitative study.BMC Health Serv Res2023
36935419Limitations, concerns and potential: attitudes of healthcare professionals toward preimplantation genetic testing using polygenic risk scores.Eur J Hum Genet2023
36631542Attitudes of professional stakeholders towards implementation of reproductive genetic carrier screening: a systematic review.Eur J Hum Genet2023
36630060Expanded Non-invasive Prenatal Testing (NIPT) : Can the Child's Right to an Open Future Help Set the Scope?J Bioeth Inq2023
34463331Challenges in cardiovascular pharmacogenomics implementation: a viewpoint from the European Society of Cardiology Working Group on Cardiovascular Pharmacotherapy.Eur Heart J Cardiovasc Pharmacother2022
35692551Digitizing the Informed Consent Process: A Review of the Regulatory Landscape in the European Union.Front Med (Lausanne)2022
35421761The disabling nature of hope in discovering a biological explanation of stuttering.J Fluency Disord2022
35783466Co-creation with research participants to inform the design of electronic informed consent.Digit Health2022
35389343The patient with 41 reports: Analysis of laboratory exome sequencing reporting of a "virtual patient".Genet Med2022
35385167Reasons affecting the uptake of reproductive genetic carrier screening among nonpregnant reproductive-aged women in Flanders (Belgium).J Genet Couns2022
36397108Using provocative design to foster electronic informed consent innovation.BMC Med Inform Decis Mak2022
35906131Exploring informed choice in preconception reproductive genetic carrier screening by using a modified Multidimensional Measure of Informed Choice.Patient Educ Couns2022
36332520Policies to regulate data sharing of cohorts via data infrastructures: An interview study with funding agencies.Int J Med Inform2022
36237540Rethinking informed consent in the time of COVID-19: An exploratory survey.Front Med (Lausanne)2022
36300179Challenges related to data protection in clinical research before and during the COVID-19 pandemic: An exploratory study.Front Med (Lausanne)2022
33644955The Global Kidney Exchange: Revisiting exploitation arguments.Dev World Bioeth2022
33638977The role of pharmacogenomics in contemporary cardiovascular therapy: a position statement from the European Society of Cardiology Working Group on Cardiovascular Pharmacotherapy.Eur Heart J Cardiovasc Pharmacother2022
34997232Informing relatives of their genetic risk: an examination of the Belgian legal context.Eur J Hum Genet2022
35304601Knowledge, attitudes and preferences regarding reproductive genetic carrier screening among reproductive-aged men and women in Flanders (Belgium).Eur J Hum Genet2022
35175513An Ethical Overview of the CRISPR-Based Elimination of Anopheles gambiae to Combat Malaria.J Bioeth Inq2022
35028914A systematic review of the views of healthcare professionals on the scope of preimplantation genetic testing.J Community Genet2022
35023849Credit and Recognition for Contributions to Data-Sharing Platforms Among Cohort Holders and Platform Developers in Europe: Interview Study.J Med Internet Res2022
35341652A review of normative documents on preimplantation genetic testing: Recommendations for PGT-P.Genet Med2022
33017265Old Challenges or New Issues? Genetic Health Professionals' Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing.AJOB Empir Bioeth2021
37645200An agenda-setting paper on data sharing platforms: euCanSHare workshop.Open Res Eur2021
33926229Data Sharing in Biomedical Sciences: A Systematic Review of Incentives.Biopreserv Biobank2021
33783754Public attitudes towards the genetic testing in Georgia.J Community Genet2021
34850461Should you need an organ⿦ Flemish secondary school students' attitudes toward xenotransplantation and transgenetic organ donation.Xenotransplantation2021
34540773Clinical Research in Neonates: Redesigning the Informed Consent Process in the Digital Era.Front Pediatr2021
34537037Polygenic risk scoring of human embryos: a qualitative study of media coverage.BMC Med Ethics2021
34214146Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.PLoS One2021
34234303Disclosure of genetic information to family members: a systematic review of normative documents.Genet Med2021
34086508Expanded carrier screening in Flanders (Belgium): an online survey on the perspectives of nonpregnant reproductive-aged women.Per Med2021
34332572Personalized and long-term electronic informed consent in clinical research: stakeholder views.BMC Med Ethics2021
33414545Toward better governance of human genomic data.Nat Genet2021
33122805Analysis of laboratory reporting practices using a quality assessment of a virtual patient.Genet Med2021
31472303Exploration of genetic health professional - laboratory specialist interactions in diagnostic genomic sequencing.Eur J Med Genet2020
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Collaborators

Danya F Vears
University of Melbourne
Co-authored papers 37
Mahsa Shabani
Ghent University
Co-authored papers 29
Bartha Maria Knoppers
McGill University
Co-authored papers 21
Karine Sénécal
Co-authored papers 19
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Co-authored papers 11
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Co-authored papers 8
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Clinical Ethics, University of Oxford
Co-authored papers 6
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Co-authored papers 6
Emmanuelle Rial-Sebbag
Inserm, Toulouse Paul Sabatier University
Co-authored papers 5
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McGill University
Co-authored papers 5
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University of Oxford
Co-authored papers 4
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Baylor College of Medicine.
Co-authored papers 4
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Co-authored papers 4
Kazuto Kato
Osaka University
Co-authored papers 4
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UCL Institute of Child Health and Great Ormond Street NHS Foundation Trust
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Edward S Dove
University of Edinburgh
Co-authored papers 3
Dianne Nicol
University of Tasmania
Co-authored papers 3
Kelly E Ormond
Stanford University School of Medicine
Co-authored papers 3
Stephanie M Fullerton
University of Washington School of Medicine
Co-authored papers 3
Adrian Thorogood
Terry Fox Research Institute.
Co-authored papers 3
H??lya Kayserili
Istanbul University
Co-authored papers 3
Yann Joly
McGill University.
Co-authored papers 3
Wylie Burke
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 2
Christine Patch
Queen Mary University of London, United Kingdom Society and Ethics Research
Co-authored papers 2
Vardit Ravitsky (CM4AI)
The Hastings Center
Co-authored papers 2
Mark J Caulfield
William Harvey Research Institute, Queen Mary University of London
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