Author details

Full Name

Anya E R Prince

Affiliation

University of Iowa.

ORCID

Career Start Year

2012

Papers

H Index

Expertise

CM4AI Collaborator

PMID	Paper Title	Journal Title	Published Year
36260514	How should we address the inevitable harms from non-negligent variant reclassification in predictive genetic testing?	J Genet Couns	2023
37906184	The Genetic Information Privacy Act: Drawbacks and Limitations.	JAMA	2023
37879008	The Limits of a Voluntary Framework in an Unethical Data Ecosystem.	Am J Bioeth	2023
37496383	Clinically actionable secondary findings in 130 triads from sub-Saharan African families with non-syndromic orofacial clefts.	Mol Genet Genomic Med	2023
36919542	The Slippery Slope of Prenatal Testing for Social Traits.	Am J Bioeth	2023
34544841	A step forward, but still inadequate: Australian health professionals' views on the genetics and life insurance moratorium.	J Med Genet	2022
35737492	Privacy and the Genetic Community.	Am J Bioeth	2022
36207733	Patient and provider perspectives on polygenic risk scores: implications for clinical reporting and utilization.	Genome Med	2022
35930740	The goldilocks conundrum: Disclosing discrimination risks in informed consent.	J Genet Couns	2022
36055208	Addressing underrepresentation in genomics research through community engagement.	Am J Hum Genet	2022
35243989	Anti-Selection & Genetic Testing in Insurance: An Interdisciplinary Perspective.	J Law Med Ethics	2022
35058451	Voluntary workplace genomic testing: wellness benefit or Pandora's box?	NPJ Genom Med	2022
33077893	Long-awaited progress in addressing genetic discrimination in the United States.	Genet Med	2021
35663290	Genetic testing and insurance implications: Surveying the US general population about discrimination concerns and knowledge of the Genetic Information Nondiscrimination Act (GINA).	Risk Manag Insur Rev	2021
33815477	Employees' Views and Ethical, Legal, and Social Implications Assessment of Voluntary Workplace Genomic Testing.	Front Genet	2021
34400812	The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage.	Genet Med	2021
34446926	Correction: The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage.	Genet Med	2021
34503867	The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination.	Trends Genet	2021
33110270	Correction: Long-awaited progress in addressing genetic discrimination in the United States.	Genet Med	2021
32203466	Establishing the International Genetic Discrimination Observatory.	Nat Genet	2020
34221429	What guidance does HIPAA offer to providers considering familial risk notification and cascade genetic testing?	J Law Biosci	2020
32040382	Is Real-Time ELSI Realistic?	AJOB Empir Bioeth	2020
31850620	A survey of U. S. state insurance commissioners concerning genetic testing and life insurance: Redux at 27.	J Genet Couns	2020
30401960	Comparative perspectives: regulating insurer use of genetic information.	Eur J Hum Genet	2019
31313633	Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.	Per Med	2019
31068265	Shared decision-making in vascular surgery.	J Vasc Surg	2019
31143452	Political economy, stakeholder voices, and saliency: lessons from international policies regulating insurer use of genetic information.	J Law Biosci	2019
30998825	Direct-to-Consumer Genetic Testing and Potential Loopholes in Protecting Consumer Privacy and Nondiscrimination.	JAMA	2019
29215654	Age and perceived risks and benefits of preventive genomic screening.	Genet Med	2018
30260295	Reconceptualizing harms and benefits in the genomic age.	Per Med	2018
29566453	Analysis of state laws on informed consent for clinical genetic testing in the era of genomic sequencing.	Am J Med Genet C Semin Med Genet	2018
28949901	Membership recruitment and training in health care ethics committees: Results from a national pilot survey.	AJOB Empir Bioeth	2017
31885407	Insurance Risk Classification in an Era of Genomics: Is a Rational Discrimination Policy Rational?	Neb Law Rev	2017
28146641	Which Results to Return: Subjective Judgments in Selecting Medically Actionable Genes.	Genet Test Mol Biomarkers	2017
28260941	Is there evidence that we should screen the general population for Lynch syndrome with genetic testing? A systematic review.	Pharmgenomics Pers Med	2017
27263254	TANTAMOUNT TO FRAUD?: EXPLORING NON-DISCLOSURE OF GENETIC INFORMATION IN LIFE INSURANCE APPLICATIONS AS GROUNDS FOR POLICY RESCISSION.	Health Matrix Clevel	2016
27774243	Response to peer commentaries: prevention for those who can pay.	J Law Biosci	2016
25232850	Genomic screening of the general adult population: key concepts for assessing net benefit with systematic evidence reviews.	Genet Med	2015
26632370	Scientific Social Responsibility: Lessons From the Corporate Social Responsibility Movement.	Am J Bioeth	2015
26339500	Prevention for those who can pay: insurance reimbursement of genetic-based preventive interventions in the liminal state between health and disease.	J Law Biosci	2015
26711421	Automatic Placement of Genomic Research Results in Medical Records: Do Researchers Have a Duty? Should Participants Have a Choice?	J Law Med Ethics	2015
24306140	Factors which impact the delivery of genetic risk assessment services focused on inherited cancer genomics: expanding the role and reach of certified genetics professionals.	J Genet Couns	2014
25325812	Beyond social media: inadvertent acquisition of genetic information in medical certifications.	Am J Bioeth	2014
25063358	Genetic information, non-discrimination, and privacy protections in genetic counseling practice.	J Genet Couns	2014
23061591	When does an illness begin: genetic discrimination and disease manifestation.	J Law Med Ethics	2012

1 - 45 of 45

Jessica L Roberts

Health Law & Policy Institute, University of Houston Law Center

Career Start Year 2014

Number of shared co-authors 1

Stacey Pereira

Baylor College of Medicine.

Career Start Year 2013

Number of shared co-authors 6

Leila Jamal

Center for Cancer Research, National Cancer Institute

Career Start Year 2012

Number of shared co-authors 6

Jill O Robinson

Baylor College of Medicine.

Career Start Year 2011

Number of shared co-authors 13

Michelle L McGowan

Biomedical Ethics Research Program, Mayo Clinic

Career Start Year 2008

Number of shared co-authors 3

David Kaufman

National Human Genome Research Institute

Career Start Year 2006

Number of shared co-authors 17

Joan Scott

Career Start Year 2005

Number of shared co-authors 2

Laura Hercher

SARAH LAWRENCE COLLEGE

Career Start Year 2005

Number of shared co-authors 7

Pascal Borry

Center for Biomedical Ethics and Law

Career Start Year 2004

Number of shared co-authors 6

Danya F Vears

University of Melbourne

Career Start Year 2004

Number of shared co-authors 7

Barbara J Evans

Levin College of Law, University of Florida, FL Wertheim College of Engineering

Career Start Year 2004

Number of shared co-authors 8

John Lynch

College of Arts & Sciences, University of Cincinnati

Career Start Year 2003

Number of shared co-authors 14

Sandra Soo-Jin Lee

Division of Ethics, Department of Medical Humanities and Ethics, Columbia University

Career Start Year 2003

Number of shared co-authors 7

Amy L McGuire

Baylor College of Medicine.

Career Start Year 2002

Number of shared co-authors 30

Holly K Tabor

Stanford Center for Biomedical Ethics (SCBE), Stanford University

Career Start Year 2000

Number of shared co-authors 20

Richard R Sharp

Biomedical Ethics, Mayo Clinic and Foundation

Career Start Year 1999

Number of shared co-authors 25

Pamela Sankar

University of Pennsylvania, Department of Medical Ethics and Health Policy

Career Start Year 1997

Number of shared co-authors 8

Ainsley J Newson

Sydney Health Ethics, Sydney School of Public Health, The University of Sydney

Career Start Year 1997

Number of shared co-authors 4

Kelly E Ormond

Stanford University School of Medicine

Career Start Year 1996

Number of shared co-authors 12

Stephanie M Fullerton

University of Washington School of Medicine

Career Start Year 1994

Number of shared co-authors 30

Anneke Lucassen

Clinical Ethics, University of Oxford

Career Start Year 1992

Number of shared co-authors 7

Gail H Javitt

D.C. and Berman Institute of Bioethics, Johns Hopkins University

Career Start Year 1992

Number of shared co-authors 2

Vence L Bonham

National Human Genome Research Institute, National Institutes of Health

Career Start Year 1991

Number of shared co-authors 8

Lisa S Parker

Center for Bioethics & Health Law, University of Pittsburgh

Career Start Year 1990

Number of shared co-authors 6

Jeffrey R Botkin

University of Utah

Career Start Year 1988

Number of shared co-authors 10

Mildred K Cho

Center for Biomedical Ethics, Stanford University School of Medicine

Career Start Year 1985

Number of shared co-authors 13

E Clayton

Harvard Medical School, Vanderbilt University, Yale University Yale Law School

Career Start Year 1985

Number of shared co-authors 35

Mark A Rothstein

University of Louisville

Career Start Year 1983

Number of shared co-authors 14

Bartha Maria Knoppers

McGill University

Career Start Year 1978

Number of shared co-authors 27

Wylie Burke

The Heart Institute, Cincinnati Children's Hospital Medical Center

Career Start Year 1975

Number of shared co-authors 23

row(s) 1 - 30 of 30

Wendy R Uhlmann

University of Michigan School of Medicine ann arbor

Co-authored papers 5

Yann Joly

McGill University.

Co-authored papers 4

Gail E Henderson

University of North Carolina-Chapel Hill

Co-authored papers 3

Joon-Ho Yu

University of Washington School of Medicine

Co-authored papers 3

Anna C F Lewis

Edmond & Lily Safra Center for Ethics, Harvard University

Co-authored papers 3

Kyle B Brothers

Norton Children's Research Institute Affiliated with the University of Louisville

Co-authored papers 3

Kayte Spector-Bagdady

University of Michigan Medical School.

Co-authored papers 2

Edward S Dove

University of Edinburgh

Co-authored papers 2

Jeffrey Scott Roberts

School of Public Health.

Co-authored papers 2

Debra J H Mathews

Carlsberg Laboratory, Case Western Reserve University, Johns Hopkins Medicine, Johns Hopkins School of Medicine, Johns Hopkins School of Public Health, Johns Hopkins University, National Academy of Sciences, Pennsylvania State University, Presidential Commission for the Study of Bioethical Issues

Co-authored papers 2

Palmira Granados Moreno

McGill University

Co-authored papers 2

Paul S Appelbaum

Center for Law, Columbia University Irving Medical Center

Co-authored papers 2

William Gregory Feero

Dartmouth Geisel School of Medicine

Co-authored papers 2

James P Evans

University of North Carolina