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Author Details

Aaron J Goldenberg
Case Western Reserve University
2005
75
20
PMIDPaper TitleJournal TitlePublished Year
36738469Moving away from one disease at a time: Screening, trial design, and regulatory implications of novel platform technologies.Am J Med Genet C Semin Med Genet2023
37470117Integrating Genomics Into Pediatric Health Care: The Long Road Ahead.Pediatrics2023
37204146Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.Am J Bioeth2023
36448938Scaling genetic resources: New paradigms for diagnosis and treatment of rare genetic disease.Am J Med Genet C Semin Med Genet2023
36445952North American genetic counselors' approach to collecting and using ancestry in clinical practice.J Genet Couns2023
36688577Gene-targeted therapies: Towards equitable development, diagnosis, and access.Am J Med Genet C Semin Med Genet2023
35062937Lived experiences of individuals with cystic fibrosis on CFTR-modulators.BMC Pulm Med2022
36412585Parental Depression and Anxiety Associated with Newborn Bloodspot Screening for Rare and Variable-Onset Disorders.Int J Neonatal Screen2022
35938011Population-Based Screening of Newborns: Findings From the NBS Expansion Study (Part One).Front Genet2022
36055208Addressing underrepresentation in genomics research through community engagement.Am J Hum Genet2022
36258039How collaboration between bioethicists and neuroscientists can advance research.Nat Neurosci2022
35256804A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States.Nat Genet2022
35225933Genomics and Newborn Screening: Perspectives of Public Health Programs.Int J Neonatal Screen2022
33420343"It seems like COVID-19 now is the only disease present on Earth": living with a rare or undiagnosed disease during the COVID-19 pandemic.Genet Med2021
33847522Ethical Challenges for Pediatric Biobanks.Biopreserv Biobank2021
33502079Digital peer-to-peer information seeking and sharing: Opportunities for education and collaboration in newborn screening.Am J Med Genet C Semin Med Genet2021
34806961"If It's Ethical During a Pandemic⿦": Lessons from COVID-19 for Post-Pandemic Biobanking.Am J Bioeth2021
34096144Prenatal genetic counselors' perceptions of the impact of abortion legislation on counseling and access in the United States.J Genet Couns2021
34166724The future of newborn screening for lysosomal disorders.Neurosci Lett2021
32342755Online Pediatric Research: Addressing Consent, Assent, and Parental Permission.J Law Med Ethics2020
33157006Analogies in Genomics Policymaking: Debates and Drawbacks.Am J Hum Genet2020
33023977Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.J Med Ethics2020
32242760Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial.J Empir Res Hum Res Ethics2020
32533133The limited use of US residual newborn screening dried bloodspots for health disparity research.Genet Med2020
30467403Experiences and perspectives on the return of secondary findings among genetic epidemiologists.Genet Med2019
31719122Considering Equity in Assessing Familial Benefit From the Return of Genomic Research Results.Pediatrics2019
33072981A Newborn Screening Education Best Practices Framework: Development and Adoption.Int J Neonatal Screen2019
30100612Including ELSI research questions in newborn screening pilot studies.Genet Med2019
30792497Correction: Experiences and perspectives on the return of secondary findings among genetic epidemiologists.Genet Med2019
30908831Exploring prenatal genetic counselors' perceptions of abortion laws in restrictive states.J Genet Couns2019
30994072A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.J Law Med Ethics2019
30676903Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism.Am J Bioeth2019
29621469Misplaced Trust: Building Research Relationships in the Age of Biorepository Networks.Am J Bioeth2018
33072932Duchenne Muscular Dystrophy Newborn Screening, a Case Study for Examining Ethical and Legal Issues for Pilots for Emerging Disorders: Considerations and Recommendations.Int J Neonatal Screen2018
30242814What Precision Medicine Can Learn from Rare Genetic Disease Research and Translation.AMA J Ethics2018
30133723Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.Hastings Cent Rep2018
29949895Willingness to Participate in a National Precision Medicine Cohort: Attitudes of Chronic Kidney Disease Patients at a Cleveland Public Hospital.J Pers Med2018
28661748Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.Am J Bioeth2017
28338850Photo-documentation in the community: reflections on genetics, health and health disparities.Int J Epidemiol2017
28222731Genomic newborn screening: public health policy considerations and recommendations.BMC Med Genomics2017
29430401Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland.Transl Sci Rare Dis2017
29073807An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots.J Empir Res Hum Res Ethics2017
27043416Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.JAMA Pediatr2016
29754545Ethical and legal considerations for pediatric biobank consent: current and future perspectives.Per Med2016
27586542Biobank participant support of newborn screening for disorders with variable treatment and intervention options.J Community Genet2016
26833040Evaluating Harms in the Assessment of Net Benefit: A Framework for Newborn Screening Condition Review.Matern Child Health J2016
25597748Communicating with biobank participants: preferences for receiving and providing updates to researchers.Cancer Epidemiol Biomarkers Prev2015
26331182Biobanking Research and Human Subjects Protections: Perspectives of IRB Leaders.IRB2015
26564943Investigator Experiences and Attitudes About Research With Biospecimens.J Empir Res Hum Res Ethics2015
26479566Return of Results from Research Using Newborn Screening Dried Blood Samples.J Law Med Ethics2015
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Collaborators

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Co-authored papers 15
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Co-authored papers 9
Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 7
Biomedical Ethics, Mayo Clinic and Foundation
Co-authored papers 6
Co-authored papers 4
University of Washington School of Medicine.
Co-authored papers 4
American College of Medical Genetics and Genomics
Co-authored papers 4
Case Western Reserve University
Co-authored papers 4
Stanford Center for Biomedical Ethics (SCBE), Stanford University
Co-authored papers 4
a nonprofit bioethics research institute
Co-authored papers 3
Institute for Society and Genetics, University of California los angeles
Co-authored papers 3
University of Utah
Co-authored papers 3
Nationwide Children's Hospital
Co-authored papers 2
Yale School of Medicine
Co-authored papers 2
Center for Genomic Medicine, Massachusetts General Hospital
Co-authored papers 2
College of Arts & Sciences, University of Cincinnati
Co-authored papers 2
Medical Ethics and Health Policy, University of Pennsylvania
Co-authored papers 2
Co-authored papers 2
Johns Hopkins University School of Medicine
Co-authored papers 2
University of Minnesota
Co-authored papers 2
Institute for Biomedicine (Affiliated Institute of the University of Lubeck)
Co-authored papers 1
University of North Carolina-Chapel Hill
Co-authored papers 1
Center for Bioethics, Harvard Medical School
Co-authored papers 1
Ghent University
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University of Washington Medical Center
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Invitae Corporation
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University of Iowa.
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Harvard Medical School
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