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Author Details

Barbara B Biesecker
and Translational Research Center
1987
215
46
Vardit Ravitsky (CM4AI)
PMIDPaper TitleJournal TitlePublished Year
37232511Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?"J Genet Couns2024
37838931The Parent PrU: A measure to assess personal utility of pediatric genomic results.Genet Med2024
36973394Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening.Eur J Hum Genet2024
36356050Future-oriented Emotions and Decisions to Receive Genomic Testing Results Among U.S. Adults of African Ancestry.Ann Behav Med2023
37491896Motivations to learn genomic information are not exceptional: Lessons from behavioral science.Clin Genet2023
37607497Refining a Multifaceted Model of Perceived Utility of Genomic Sequencing Results.Public Health Genomics2023
36960544Use of a web-based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes.Clin Genet2023
36516964The PrU: Development and validation of a measure to assess personal utility of genomic results.Genet Med2023
34016496Effectively communicating comprehensive tumor genomic profiling results: Mitigating uncertainty for advanced cancer patients.Patient Educ Couns2022
35809119Return of comprehensive tumour genomic profiling results to advanced cancer patients: a qualitative study.Support Care Cancer2022
35615816Further validation of the Perceptions of Uncertainties in Genome Sequencing scale among patients with cancer undergoing tumor sequencing.Clin Genet2022
35646095Education and Consent for Population-Based DNA Screening: A Mixed-Methods Evaluation of the Early Check Newborn Screening Pilot Study.Front Genet2022
35604703Psychological outcomes in advanced cancer patients after receiving genomic tumor profiling results.Health Psychol2022
35522237ORCA, a values-based decision aid for selecting additional findings from genomic sequencing in adults: Efficacy results from a randomized trial.Genet Med2022
36303152Parental coping with uncertainties along the severe combined immunodeficiency journey.Orphanet J Rare Dis2022
36053287An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial.Genet Med2022
35153126Psychological impact of comprehensive tumor genomic profiling results for advanced cancer patients.Patient Educ Couns2022
35123916Corrigendum to "Cancer Health Assessments Reaching Many (CHARM): A clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations" [Contemporary Clinical Trials 106 (2021) 106432].Contemp Clin Trials2022
35277654Preferences for return of germline genome sequencing results for cancer patients and their genetic relatives in a research setting.Eur J Hum Genet2022
35149644Identifying Needs, Challenges, and Benefits Among Adults and Parents of Children With Hirschsprung Disease.J Pediatr Gastroenterol Nutr2022
35194887Validation of the multidimensional impact of Cancer Risk Assessment Questionnaire to assess impact of waiting for genome sequencing results.Psychooncology2022
34755933Psychological predictors of advanced cancer patients' preferences for return of results from comprehensive tumor genomic profiling.Am J Med Genet A2022
34658003Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.Patient2022
34480685The role of future-oriented affect in engagement with genomic testing results.J Behav Med2022
34218500Value of whole-genome sequencing to Australian cancer patients and their first-degree relatives participating in a genomic sequencing study.J Genet Couns2022
30448267A behavior-theoretic evaluation of values clarification on parental beliefs and intentions toward genomic sequencing for newborns.Soc Sci Med2021
33876469Preferences for and acceptability of receiving pharmacogenomic results by mail: A focus group study with a primarily African-American cohort.J Genet Couns2021
33580589Second World Congress on Genetic Counseling: An introduction to the special issue.J Genet Couns2021
33554391Adaptation of the working alliance inventory for the assessment of the therapeutic alliance in genetic counseling.J Genet Couns2021
33887195Engagement and return of results preferences among a primarily African American genomic sequencing research cohort.Am J Hum Genet2021
33549385Development and early implementation of an Accessible, Relational, Inclusive and Actionable approach to genetic counseling: The ARIA model.Patient Educ Couns2021
34888063Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.J Clin Transl Sci2021
33967906Cancer Patient Experience of Uncertainty While Waiting for Genome Sequencing Results.Front Psychol2021
33965008Advancing genomic translation: Investigations in communication. A special series on communication research in the context of genomic medicine.Patient Educ Couns2021
33987754Dyadic concordance and associations of beliefs with intentions to learn carrier results from genomic sequencing.J Behav Med2021
33984519Cancer Health Assessments Reaching Many (CHARM): A clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations.Contemp Clin Trials2021
34240516Longitudinal patterns in fear of cancer progression in patients with rare, advanced cancers undergoing comprehensive tumour genomic profiling.Psychooncology2021
34196500Enrolling Children in Clinical Trials for Genetic Neurodevelopmental Conditions: Ethics, Parental Decisions, and Children's Identities.Ethics Hum Res2021
34163011Parent clinical trial priorities for fragile X syndrome: a best-worst scaling.Eur J Hum Genet2021
33278053A review and definition of 'usual care' in genetic counseling trials to standardize use in research.J Genet Couns2021
30793199A primer in genomics for social and behavioral investigators.Transl Behav Med2020
33948230Lessons learned about harmonizing survey measures for the CSER consortium.J Clin Transl Sci2020
31674008Who should access germline genome sequencing? A mixed methods study of patient views.Clin Genet2020
31980566Cancer patients' views and understanding of genome sequencing: a qualitative study.J Med Genet2020
31765628"There Are Hills and Valleys": Experiences of Parenting a Son With X-Linked Retinoschisis.Am J Ophthalmol2020
33252931Parental decision making about clinical trial enrollment: A survey of parents of children with Fragile X syndrome.Health Psychol2020
32624263Roles of attitudes and injunctive norms in decisional conflict and disclosure following receipt of genome sequencing results.Soc Sci Med2020
32407502Assessment of the Value of Tumor Variation Profiling Perceived by Patients With Cancer.JAMA Netw Open2020
31570379Genetic Counseling and the Central Tenets of Practice.Cold Spring Harb Perspect Med2020
31505002Perceptions of uncertainties about carrier results identified by exome sequencing in a randomized controlled trial.Transl Behav Med2020
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Collaborators

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Co-authored papers 46
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 36
National Cancer Institute
Co-authored papers 21
University of Washington School of Medicine.
Co-authored papers 19
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Co-authored papers 15
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Co-authored papers 12
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Illumina Inc.
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Huntsman Cancer Institute, University of Utah
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Center for Precision Health Research, National Human Genome Research Institute
Co-authored papers 8
Baylor College of Medicine.
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Kaiser Permanente Center for Health Research
Co-authored papers 7
Thomas Jefferson University
Co-authored papers 6
Sydney Health Ethics, Sydney School of Public Health, The University of Sydney
Co-authored papers 6
Center for Precision Health Research
Co-authored papers 6
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 6
Norton Children's Research Institute Affiliated with the University of Louisville
Co-authored papers 6
University of Washington School of Medicine
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Northwestern University
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University of Utah
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School of Public Health.
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HudsonAlpha Institute for Biotechnology
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University of California-San Francisco.
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University of Washington Medical Center
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Brigham and Women's Hospital, Broad Institute Ariadne Labs and Harvard Medical School
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Kennedy Krieger Institute
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University of Washington
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Institute for Health Equity Research, Icahn School of Medicine at Mount Sinai
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