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Author Details

Jane Kaye
University of Oxford
2000
102
32
PMIDPaper TitleJournal TitlePublished Year
37130959Author Correction: Discovery of drug-omics associations in type 2 diabetes with generative deep-learning models.Nat Biotechnol2023
37245625Concordance of International Regulation of Pediatric Health Research.J Pediatr2023
35201881Streamlining ethics review for international health research.Science2022
35795181Biomodifying the 'natural': from Adaptive Regulation to Adaptive Societal Governance.J Law Biosci2022
34905952Creative regulatory practices to develop stem-cell technology: the way forward for Malaysia.Regen Med2022
33323478Processes Underlying Glycemic Deterioration in Type 2 Diabetes: An IMI DIRECT Study.Diabetes Care2021
36260402Preferences of the Public for Sharing Health Data: Discrete Choice Experiment.JMIR Med Inform2021
33526087The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project.Res Involv Engagem2021
33408362'CTRL': an online, Dynamic Consent and participant engagement platform working towards solving the complexities of consent in genomic research.Eur J Hum Genet2021
33249421Reflections on dynamic consent in biomedical research: the story so far.Eur J Hum Genet2021
33414545Toward better governance of human genomic data.Nat Genet2021
32342777Australian Aboriginal and Torres Strait Islander Collections of Genetic Heritage: The Legal, Ethical and Practical Considerations of a Dynamic Consent Approach to Decision Making.J Law Med Ethics2020
31729900Dynamic Consent: An Evaluation and Reporting Framework.J Empir Res Hum Res Ethics2020
33190636Governance of research consortia: challenges of implementing Responsible Research and Innovation within Europe.Life Sci Soc Policy2020
33415906Don Chalmers: His Contributions to Legal Research and Education, Health Law, and Research Ethics, Locally and Globally.J Law Med2020
33415896Clinical Decision Support Systems and Medico-Legal Liability in Recall and Treatment: A Fresh Examination.J Law Med2020
32669745A Factorial Survey Investigating the Effect of Disclosing Parental Intellectual Disability on Risk Assessments by Children's Social Workers in Child Safeguarding Scenarios.Br J Soc Work2020
32749228Landscape of Participant-Centric Initiatives for Medical Research in the United States, the United Kingdom, and Japan: Scoping Review.J Med Internet Res2020
30700834Motivations for data sharing-views of research participants from four European countries: A DIRECT study.Eur J Hum Genet2019
31203377Discovery of biomarkers for glycaemic deterioration before and after the onset of type 2 diabetes: descriptive characteristics of the epidemiological studies within the IMI DIRECT Consortium.Diabetologia2019
30776795Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?Ann Intern Med2019
31048483Consent insufficient for data release.Science2019
30262927Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study.Genet Med2019
29514717Including all voices in international data-sharing governance.Hum Genomics2018
29942623Making the most of the waiting room: Electronic patient engagement, a mixed methods study.Digit Health2018
30182269The governance structure for data access in the DIRECT consortium: an innovative medicines initiative (IMI) project.Life Sci Soc Policy2018
30234093Equitable Participation in Biobanks: The Risks and Benefits of a "Dynamic Consent" Approach.Front Public Health2018
29363051Desiderata for digital consent in genomic research.J Community Genet2018
28679655Marketing of unproven stem cell-based interventions: A call to action.Sci Transl Med2017
28122615Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.BMC Med Ethics2017
28146646Returning Results in Biobank Research: Global Trends and Solutions.Genet Test Mol Biomarkers2017
28443622The RUDY study: using digital technologies to enable a research partnership.Eur J Hum Genet2017
29233800Participant-Centric Initiatives and Medical Research: Scoping Review Protocol.JMIR Res Protoc2017
28976812The European General Data Protection Regulation: challenges and considerations for iPSC researchers and biobanks.Regen Med2017
28943725Exploring the potential duty of care in clinical genomics under UK law.Med Law Int2017
26791790eRegistries: Electronic registries for maternal and child health.BMC Pregnancy Childbirth2016
26514324New technologies for DNA analysis--a review of the READNA Project.N Biotechnol2016
27733160Personalized assent for pediatric biobanks.BMC Med Ethics2016
27663979eRegistries: governance for electronic maternal and child health registries.BMC Pregnancy Childbirth2016
27894323Health-related quality of life and a cost-utility simulation of adults in the UK with osteogenesis imperfecta, X-linked hypophosphatemia and fibrous dysplasia.Orphanet J Rare Dis2016
27825362The RUDY study platform - a novel approach to patient driven research in rare musculoskeletal diseases.Orphanet J Rare Dis2016
27478488A Duty To Warn Relatives in Clinical Genetics: Arguably 'Fair just and reasonable' in English Law?Tottels J Prof Neglig2016
27390930Challenges and opportunities for ELSI early career researchers.BMC Med Ethics2016
27145287Consent for Biobanking: The Legal Frameworks of Countries in the BioSHaRE-EU Project.Biopreserv Biobank2016
27260081Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives.BMC Med Ethics2016
27141520Governance Through Privacy, Fairness, and Respect for Individuals.EGEMS (Wash DC)2016
27553007Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan.BMC Med Ethics2016
27256127Biobank Report: United Kingdom.J Law Med Ethics2016
27405974Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era.BMC Med Ethics2016
27183185Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts.Biopreserv Biobank2016
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Collaborators

McGill University
Co-authored papers 14
Osaka University
Co-authored papers 11
Dalla Lana School of Public Health, University of Toronto
Co-authored papers 7
University of Tasmania
Co-authored papers 6
Institute for Biomedicine (Affiliated Institute of the University of Lubeck)
Co-authored papers 5
University of Edinburgh
Co-authored papers 5
University of Tasmania
Co-authored papers 5
University of Washington School of Medicine
Co-authored papers 5
McGill University.
Co-authored papers 5
Inserm, Toulouse Paul Sabatier University
Co-authored papers 5
Novo Nordisk Foundation Center for Protein Research, University of Copenhagen
Co-authored papers 4
Congenica Ltd
Co-authored papers 4
McGill University
Co-authored papers 4
University of California-San Francisco.
Co-authored papers 4
Center for Biomedical Ethics and Law
Co-authored papers 4
Icahn School of Medicine at Mount Sinai
Co-authored papers 4
Terry Fox Research Institute.
Co-authored papers 4
University of Leicester
Co-authored papers 4
Ghent University
Co-authored papers 4
University of Geneva
Co-authored papers 3
Co-authored papers 3
Co-authored papers 3
Miller School of Medicine, University of Miami
Co-authored papers 3
The University of Manchester
Co-authored papers 3
Co-authored papers 3
KTH Royal Institute of Technology
Co-authored papers 3
Faculty of Law and School of Public Health, University of Alberta
Co-authored papers 3
National Cancer Research Institute
Co-authored papers 3
Centre for Medical Ethics and Law, University of Hong Kong
Co-authored papers 3
Co-authored papers 3