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Author Details

Renee D Boss
Johns Hopkins School of Medicine
1997
128
28
PMIDPaper TitleJournal TitlePublished Year
36130670Costs of Neonatal Medical Complexity: Impact on New Parent Stress and Decision-Making.Am J Perinatol2024
36526253Observation of Child Experience During Discontinuing of Medically Provided Nutrition and Hydration.J Pain Symptom Manage2023
37516556Operationalizing neonatal palliative care.Semin Fetal Neonatal Med2023
37611406Life on the Frontlines: Caregiver Experience of Pediatric Cerebrospinal Shunt Malfunction.Pediatr Neurol2023
37348312Family-Reflections.com: Creating a parent-to-parent web-based tool regarding pediatric home ventilation.Patient Educ Couns2023
37384158Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation.PEC Innov2023
37277239Editorial: Palliative and end of life care in the NICU issue I.Semin Fetal Neonatal Med2023
37100723Palliative care for NICU survivors with chronic critical illness.Semin Fetal Neonatal Med2023
36910597Symptoms of Cerebrospinal Shunt Malfunction in Young Children: A National Caregiver Survey.Child Neurol Open2023
36801354Patterns of Pediatric Palliative and End-of-Life Care in Neonatal Intensive Care Patients in the Southern U.S.J Pain Symptom Manage2023
36662553"What Would Give Her the Best Life?": Understanding Why Families Decline Pediatric Home Ventilation.J Palliat Med2023
33075841The Changing Landscape in Pediatric Hospitals: A Multicenter Study of How Pediatric Chronic Critical Illness Impacts NICU Throughput.Am J Perinatol2022
35641469Long-Term Care for Children With Medical Complexity: A Call for Data.Pediatrics2022
35490287Guidance for Pediatric End-of-Life Care.Pediatrics2022
35595379Leading from the Heart.J Pain Symptom Manage2022
35486825Defining Neonatal Serious Illness.J Palliat Med2022
37213739Video tools in pediatric goals of care communication: A systematic review.PEC Innov2022
36502348Family challenges in personal transportation of children with medical complexity.J Pediatr Rehabil Med2022
36317974Bioethics for Neonatal Cardiac Care.Pediatrics2022
35080259Home mechanical ventilation for children with severe neurological impairment: Parents' perspectives on clinician counselling.Dev Med Child Neurol2022
34738745Parent perspectives on facilitating decision-making around pediatric home ventilation.Pediatr Pulmonol2022
34674921Developing an audio-based communication tool for NICU discharge of Latino families with limited English proficiency.Patient Educ Couns2022
34429507Upholding the identity of perinatal hospice.J Perinatol2022
34807737Top Ten Tips Palliative Care Clinicians Should Know About Their Work's Intersection with Clinical Ethics.J Palliat Med2022
34767920Communicating With Families of Children With Severe Neurological Impairment.J Pain Symptom Manage2022
33454943Isolated and On Guard: Preparing Neonatal Intensive Care Unit Families for Life with Hydrocephalus.Am J Perinatol2022
31142203Stopping the Momentum of Clinical Cascades in the PICU: Intentional Responses to the Limits of Medicine.J Palliat Care2021
36388074Pediatric Chronic Critical Illness, Prolonged ICU Admissions, and Clinician Distress.J Pediatr Intensive Care2021
33927166Paying for Pediatric Home Health Care: How Families of Children With Medical Complexity Navigate Gaps in Coverage.Fam Community Health2021
33808881Triggers for Palliative Care Referral in Pediatric Oncology.Cancers (Basel)2021
34127189Building Relationships in the Neonatal Intensive Care Unit to Improve Infant Outcomes.Patient Educ Couns2021
34176763Ethical considerations in the care of encephalopathic neonates treated with therapeutic hypothermia.Semin Fetal Neonatal Med2021
34091604Clinician-family relationships may impact neonatal intensive care: clinicians' perspectives.J Perinatol2021
34310864Life with pediatric home ventilation: Expectations versus experience.Pediatr Pulmonol2021
33068566Family Experiences Deciding For and Against Pediatric Home Ventilation.J Pediatr2021
32942009Intensity of Vasopressor Therapy and In-Hospital Mortality for Infants and Children: An Opportunity for Counseling Families.J Pain Symptom Manage2021
32711123Initiating Palliative Care Referrals in Pediatric Oncology.J Pain Symptom Manage2021
32540469Pediatric Chronic Critical Illness: Training Teams to Address the Communication Challenges of Patients With Repeated and Prolonged Hospitalizations.J Pain Symptom Manage2020
31909496Parent preferences for neurodevelopmental screening in the neonatal intensive care unit.Dev Med Child Neurol2020
31809809Medical Decision-Making in Foster Care: Considerations for the Care of Children With Medical Complexity.Acad Pediatr2020
31838131Defining the Boundaries of Palliative Care in Pediatric Oncology.J Pain Symptom Manage2020
31975573Ethical considerations for cardiac surgical interventions in children with trisomy 13 and trisomy 18.Am J Med Genet C Semin Med Genet2020
31849237Lived Experience of Pediatric Home Health Care Among Families of Children With Medical Complexity.Clin Pediatr (Phila)2020
33133737Slow and Steady: A Systematic Review of ICU Care Models Relevant to Pediatric Chronic Critical Illness.J Pediatr Intensive Care2020
33259339Living in the Hospital: The Vulnerability of Children with Chronic Critical Illness.J Clin Ethics2020
32808396Our life at home: Photos from families inform discharge planning for medically complex children.Birth2020
32829727Diagnosis to death: family experiences of paediatric heart disease.Cardiol Young2020
31137987Neurodevelopmental Risk: A Tool to Enhance Conversations With Families of Infants.J Child Neurol2019
31467245The Pediatric Home Health Care Process: Perspectives of Prescribers, Providers, and Recipients.Pediatrics2019
31201203Point Prevalence of Children Hospitalized With Chronic Critical Illness in the General Inpatient Units.Hosp Pediatr2019
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Collaborators

Benjamin S Wilfond
University of Washington School of Medicine.
Co-authored papers 10
Margaret L Campbell
College of Nursing, Wayne State University
Co-authored papers 10
Jared Randall Curtis
Harborview Medical Center, University of Washington
Co-authored papers 10
Kelly J Shipman
Seattle Children's Research Institute
Co-authored papers 6
Mark R Mercurio
Yale University School of Medicine
Co-authored papers 3
Jeremy Sugarman
Johns Hopkins University, Berman Institute of Bioethics
Co-authored papers 2
John D Lantos
Mt Sinai School of Medicine
Co-authored papers 2
Claire J Creutzfeldt
University of Washington
Co-authored papers 2
William A Ghali
Cumming School of Medicine, University of Calgary
Co-authored papers 2
Chris Feudtner
Children's Hospital of Philadelphia
Co-authored papers 2
Wylie Burke
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 1
Annie Janvier
Universite de Montreal
Co-authored papers 1
Tom L Beauchamp
The Kennedy Institute of Ethics, Georgetown University
Co-authored papers 1
Norman Fost
University of Wisconsin School of Medicine and Public Health
Co-authored papers 1
Mildred K Cho
Center for Biomedical Ethics, Stanford University School of Medicine
Co-authored papers 1
Douglas S Diekema
Seattle Children's Hospital, University of Washington School of Medicine
Co-authored papers 1
Joel Frader
Northwestern University Feinberg School of Medicine
Co-authored papers 1
Lainie Friedman Ross
University of Rochester School of Medicine and Dentistry.
Co-authored papers 1
Deborah Ejem
University of Alabama at Birmingham
Co-authored papers 1
Laurence B McCullough
Zucker School of Medicine at Hofstra/Northwell, and Lenox Hill Hospital
Co-authored papers 1
Holly A Taylor
Clinical Center, National Institutes of Health
Co-authored papers 1
Patricia Pearl O'Rourke
Harvard Medical School
Co-authored papers 1
DeWayne M Pursley
Beth Israel Deaconess Medical Center, Harvard Medical School
Co-authored papers 1
Kathleen E Powderly
c SUNY Downstate Medical Center.
Co-authored papers 1
Yoram Unguru
The Herman and Walter Samuelson Children's Hospital at Sinai
Co-authored papers 1
Sadath Sayeed
Boston Children's Hospital
Co-authored papers 1
William Tarnow-Mordi
NHMRC Clinical Trials Centre, University of Sydney
Co-authored papers 1
Steven Joffe
Medical Ethics and Health Policy, University of Pennsylvania
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Release 1.2