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Author Details

Kathryn M Porter
Seattle Children's Hospital
2004
42
10
PMIDPaper TitleJournal TitlePublished Year
37442368Equity Concerns Across Pediatric Research Recruitment: An Analysis of Research Staff Interviews.Acad Pediatr2024
38001157Experiences and preferences for learning about neonatal research: insights from parent interviews.J Perinatol2024
37607497Refining a Multifaceted Model of Perceived Utility of Genomic Sequencing Results.Public Health Genomics2023
34906471Motivations and concerns of patients considering participation in an implementation study of a hereditary cancer risk assessment program in diverse primary care settings.Genet Med2022
35689290Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews.Hered Cancer Clin Pract2022
35522237ORCA, a values-based decision aid for selecting additional findings from genomic sequencing in adults: Efficacy results from a randomized trial.Genet Med2022
35513190Ethical Considerations in Balancing Use of Seclusion and Restraint With Risk of COVID-19 Exposure: Recommendations for Youth Inpatient Psychiatry Units.J Am Acad Child Adolesc Psychiatry2022
36590359Relationship building in pediatric research recruitment: Insights from qualitative interviews with research staff.J Clin Transl Sci2022
36756077Current landscape of research ethics consultation services: National survey results.J Clin Transl Sci2022
35123916Corrigendum to "Cancer Health Assessments Reaching Many (CHARM): A clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations" [Contemporary Clinical Trials 106 (2021) 106432].Contemp Clin Trials2022
32981477Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study.AJOB Empir Bioeth2021
33719913Reframing Recruitment: Evaluating Framing in Authorization for Research Contact Programs.AJOB Empir Bioeth2021
34496156Creating a Research Ethics Consultation Service: Issues to Consider.Ethics Hum Res2021
33984519Cancer Health Assessments Reaching Many (CHARM): A clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations.Contemp Clin Trials2021
33945415Promoting Disclosure and Understanding in Informed Consent: Optimizing the Impact of the Common Rule "Key Information" Requirement.Am J Bioeth2021
33191058A decision aid for additional findings in genomic sequencing: Development and pilot testing.Patient Educ Couns2021
33150424Public attitudes toward an authorization for contact program for clinical research.J Am Med Inform Assoc2021
32208080Flexibility Required: Balancing the Interests of Children and Risk in Drug Development for Rare Pediatric Conditions.Am J Bioeth2020
32089547Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.Genet Med2020
32735337Assessing Parent Decisions About Child Participation in a Behavioral Health Intervention Study and Utility of Informed Consent Forms.JAMA Netw Open2020
32677869Reimagining the Goal of Informed Consent to Help Patients Make Decisions About Research.Am J Bioeth2020
31544673Justifying Investigator/Clinician Consent When The Physician-Patient Relationship Can Support Better Research Decision-Making.Am J Bioeth2019
31889771Access and Management: Indigenous Perspectives on Genomic Data Sharing.Ethn Dis2019
31557112Improving Care for Suicidal Patients While Protecting Human Subjects: Addressing Ethical Challenges in Mental Health Research Involving Emergency Medical Services Providers.Am J Bioeth2019
29313771The Emergence of Clinical Research Ethics Consultation: Insights From a National Collaborative.Am J Bioeth2018
30133189Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience.Mol Genet Genomic Med2018
30339074Research to Promote Longevity and Health Span in Companion Dogs: A Pediatric Perspective.Am J Bioeth2018
29601404Financial Incentives to Motivate Pediatric HIV Testing-Assessing the Potential for Coercion, Inducement, and Voluntariness.J Acquir Immune Defic Syndr2018
29733724Lessons Learned From A Study Of Genomics-Based Carrier Screening For Reproductive Decision Making.Health Aff (Millwood)2018
29621448Conflicts Between Regulations and Ethical Principles: Resolving Ambiguity in Favor of the Ethically Preferable Outcome.Am J Bioeth2018
29393779Defining the Scope and Improving the Quality of Clinical Research Ethics Consultation: Response to Open Peer Commentaries About the National Collaborative.Am J Bioeth2018
29250907Patient perspectives on the use of categories of conditions for decision making about genomic carrier screening results.Am J Med Genet A2018
29293279Patient actions and reactions after receiving negative results from expanded carrier screening.Clin Genet2018
27625314A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent.Clin Trials2017
30146866Research on Medical Practices (ROMP): Attitudes of IRB Personnel about Randomization and Informed Consent.IRB2017
30387977Research on Medical Practices: Why Patients Consider Participating and the Investigational Misconception.IRB2017
28661747Comprehension and Choice Under the Revised Common Rule: Improving Informed Consent by Offering Reasons Why Some Enroll in Research and Others Do Not.Am J Bioeth2017
27257125A comparison of institutional review board professionals' and patients' views on consent for research on medical practices.Clin Trials2016
25856617Precluding consent by clinicians who are both the attending and the investigator: an outdated shibboleth?Am J Bioeth2015
26479109Research Recruitment of Adult Survivors of Neonatal Infections: Is There a Role for Parental Consent?Am J Bioeth2015
26698590Research on Medical Practices and the Patient-Physician Relationship: What Can Regulators Learn from Patients?AMA J Ethics2015
14767830Dihydrofolate reductase mutations in Plasmodium vivax from Indonesia and therapeutic response to sulfadoxine plus pyrimethamine.J Infect Dis2004
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Collaborators

Benjamin S Wilfond
University of Washington School of Medicine.
Co-authored papers 31
Stephanie A Kraft
University of Washington School of Medicine
Co-authored papers 22
Tia L Kauffman
Kaiser Permanente Center for Health Research
Co-authored papers 12
Katrina A B Goddard
Center for Health Research, Kaiser Permanente Northwest
Co-authored papers 12
Sandra Soo-Jin Lee
Division of Ethics, Department of Medical Humanities and Ethics, Columbia University
Co-authored papers 7
Mildred K Cho
Center for Biomedical Ethics, Stanford University School of Medicine
Co-authored papers 6
Gail P Jarvik
University of Washington Medical Center
Co-authored papers 5
Barbara B Biesecker
and Translational Research Center
Co-authored papers 4
Laura M Amendola
Illumina Inc.
Co-authored papers 4
David Magnus
Stanford Center for Biomedical Ethics, Stanford University
Co-authored papers 4
Kathleen F Mittendorf
Vanderbilt-Ingram Cancer Center, Vanderbilt University Medical Center
Co-authored papers 4
Holly A Taylor
Clinical Center, National Institutes of Health
Co-authored papers 4
Diane M Korngiebel
Google
Co-authored papers 3
Kelly J Shipman
Seattle Children's Research Institute
Co-authored papers 3
Alexander M Capron
Gould School of Law & Keck School of Medicine, University of Southern California
Co-authored papers 3
Nanibaa' A Garrison
Institute for Society and Genetics, University of California los angeles
Co-authored papers 3
Jessica Ezzell Hunter
Kaiser Permanente Center for Health Research
Co-authored papers 3
Michael O Dorschner
University of Washington
Co-authored papers 3
Marion Danis
National Institutes of Health Clinical Center
Co-authored papers 3
Douglas S Diekema
Seattle Children's Hospital, University of Washington School of Medicine
Co-authored papers 3
Jeremy Sugarman
Johns Hopkins University, Berman Institute of Bioethics
Co-authored papers 2
Carolyn Sue Richards
Oregon Health & Science University (OHSU)
Co-authored papers 2
Heather Spencer Feigelson
Co-authored papers 2
Jennifer B McCormick
Penn State College of Medicine
Co-authored papers 2
Wylie Burke
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 1
Natasha T Strande
USA Autism and Developmental Medicine Institute
Co-authored papers 1
Robert C Green
Brigham and Women's Hospital, Broad Institute Ariadne Labs and Harvard Medical School
Co-authored papers 1
Seema M Jamal
Division of Clinical and Metabolic Genetics (R.K., The Hospital for Sick Children
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Jonathan S Berg
University of North Carolina
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Wendy K Chung
Boston Children's Hospital, Harvard Medical School
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Release 1.2