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Author Details

Stephanie O M Dyke
Montreal Neurological Institute, McGill University
2004
36
19
PMIDPaper TitleJournal TitlePublished Year
36520344Consent Codes: Maintaining Consent in an Ever-expanding Open Science Ecosystem.Neuroinformatics2023
34003431The C-BIG Repository: an Institution-Level Open Science Platform.Neuroinformatics2022
34192666Open science datasets from PREVENT-AD, a longitudinal cohort of pre-symptomatic Alzheimer's disease.Neuroimage Clin2021
35072136GA4GH: International policies and standards for data sharing across genomic research and healthcare.Cell Genom2021
34820660GA4GH Passport standard for digital identity and access permissions.Cell Genom2021
34820659The Data Use Ontology to streamline responsible access to human biomedical datasets.Cell Genom2021
34748551Return of individual research results from genomic research: A systematic review of stakeholder perspectives.PLoS One2021
33240528Communicating science: epigenetics in the spotlight.Environ Epigenet2020
30293992Variant data sharing by clinical laboratories through public databases: consent, privacy and further contact for research policies.Genet Med2019
31792275Benefits and barriers in the design of harmonized access agreements for international data sharing.Sci Data2019
30894680Publisher Correction: Federated discovery and sharing of genomic data using Beacons.Nat Biotechnol2019
31122281Points-to-consider on the return of results in epigenetic research.Genome Med2019
29537396Simplifying research access to genomics and health data with Library Cards.Sci Data2018
30069064Registered access: authorizing data access.Eur J Hum Genet2018
30062047Responsible sharing of biomedical data and biospecimens via the "Automatable Discovery and Access Matrix" (ADA-M).NPJ Genom Med2018
30586411BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2.PLoS Genet2018
28699299"Matching" consent to purpose: The example of the Matchmaker Exchange.Hum Mutat2017
28475856International Cooperation to Enable the Diagnosis of All Rare Genetic Diseases.Am J Hum Genet2017
29263842A community effort to protect genomic data sharing, collaboration and outsourcing.NPJ Genom Med2017
27082668An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health.Biopreserv Biobank2016
27990299Sharing health-related data: a privacy test?NPJ Genom Med2016
27677416Registered access: a 'Triple-A' approach.Eur J Hum Genet2016
27863233Are Data Sharing and Privacy Protection Mutually Exclusive?Cell2016
27990475Evolving data access policy: The Canadian context.Facets (Ott)2016
27460649Epigenetics ELSI: Darker Than You Think?Trends Genet2016
26796797Consent Codes: Upholding Standard Data Use Conditions.PLoS Genet2016
25904991Risk of re-identification of epigenetic methylation data: a more nuanced response is needed.Clin Epigenetics2015
26295439The Matchmaker Exchange: a platform for rare disease gene discovery.Hum Mutat2015
26720729Controlled Access under Review: Improving the Governance of Genomic Data Access.PLoS Biol2015
26185018Epigenome data release: a participant-centered approach to privacy protection.Genome Biol2015
24424120Managing clinically significant findings in research: the UK10K example.Eur J Hum Genet2014
24911490The International Cancer Genome Consortium's evolving data-protection policies.Nat Biotechnol2014
23520913Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC).Rev Derecho Genoma Hum2012
21955348Developing and implementing an institute-wide data sharing policy.Genome Med2011
19741685Prepublication data sharing.Nature2009
14729619Tumor cell-derived nitric oxide is involved in the immune-rejection of an immunogenic murine lymphoma.Cancer Res2004
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McGill University.
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Anthony A Philippakis
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Wellcome Sanger Institute
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Tomi Pastinen
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Kazuto Kato
Osaka University
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Ada Hamosh
Johns Hopkins University School of Medicine
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Samir Das
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Stephan Beck
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Paul Flicek
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Helen V Firth
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Susheel Varma
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Heidi J Sofia
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Katie M Saulnier
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