|
| 36528231 | Pediatric core outcome sets had deficiencies and lacked child and family input: A methodological review. | J Clin Epidemiol | 2023 |
| 37916282 | Sharing Pediatric Trial Results With Youth and Families: From Why to How. | Pediatrics | 2023 |
| 37548983 | Plain Language vs Standard Format for Youth Understanding of COVID-19 Recommendations: A Randomized Clinical Trial. | JAMA Pediatr | 2023 |
| 37777802 | Youth and family involvement in the development of a plain language trial results communication tool: CommuniKIDS. | Res Involv Engagem | 2023 |
| 37877001 | A framework for the definition and interpretation of the use of surrogate endpoints in interventional trials. | EClinicalMedicine | 2023 |
| 37641894 | Strengthening Reporting of Neonatal Trials. | Pediatrics | 2023 |
| 37641881 | Heterogeneity and Gaps in Reporting Primary Outcomes From Neonatal Trials. | Pediatrics | 2023 |
| 35748435 | Elevated regional cerebral blood flow in adults with 22q11.2 deletion syndrome. | World J Biol Psychiatry | 2023 |
| 37421995 | A multimethods randomized trial found that plain language versions improved parents' understanding of health recommendations. | J Clin Epidemiol | 2023 |
| 37146660 | Paper II: thematic framework analysis of registry-based randomized controlled trials provided insights for designing trial ready registries. | J Clin Epidemiol | 2023 |
| 37146658 | Paper I: Heterogeneous use of registry data for participant identification and primary outcome ascertainment is found in registry-based randomized controlled trials: A scoping review. | J Clin Epidemiol | 2023 |
| 37380118 | Definitions, acceptability, limitations, and guidance in the use and reporting of surrogate end points in trials: a scoping review. | J Clin Epidemiol | 2023 |
| 37244653 | Study Preregistration: Measuring What Matters: Development and Dissemination of a Core Outcome Set for Pediatric Anxiety Disorders Clinical Trials. | J Am Acad Child Adolesc Psychiatry | 2023 |
| 37439131 | Measurement Properties of Patient Reported Outcome Scales: A Systematic Review. | Pediatrics | 2023 |
| 37002464 | Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research. | Qual Life Res | 2023 |
| 36641457 | Knowledge mobilization activities to support decision-making by youth, parents, and adults using a systematic and living map of evidence and recommendations on COVID-19: protocol for three randomized controlled trials and qualitative user-experience studies. | Trials | 2023 |
| 36502816 | From participants to partners: reconceptualising authentic patient engagement roles in youth mental health research. | Lancet Psychiatry | 2023 |
| 33630468 | International Core Outcome Set for Acute Simple Appendicitis in Children: Results of a Systematic Review, Delphi Study, and Focus Croups With Young People. | Ann Surg | 2022 |
| 35698213 | Study protocol for developing, piloting and disseminating the PRISMA-COSMIN guideline: a new reporting guideline for systematic reviews of outcome measurement instruments. | Syst Rev | 2022 |
| 35487717 | Assessing the impact of mental health difficulties on young people's daily lives: protocol for a scoping umbrella review of measurement instruments. | BMJ Open | 2022 |
| 36403601 | How much is enough? Considering minimally important change in youth mental health outcomes. | Lancet Psychiatry | 2022 |
| 36512367 | Guidelines for Reporting Outcomes in Trial Protocols: The SPIRIT-Outcomes 2022 Extension. | JAMA | 2022 |
| 36511921 | Guidelines for Reporting Outcomes in Trial Reports: The CONSORT-Outcomes 2022 Extension. | JAMA | 2022 |
| 36207041 | Outcomes and outcome measurement instruments reported in randomised controlled trials of anxiety disorder treatments in children and adolescents: a scoping review protocol. | BMJ Open | 2022 |
| 36220321 | Protocol for the development of SPIRIT and CONSORT extensions for randomised controlled trials with surrogate primary endpoints: SPIRIT-SURROGATE and CONSORT-SURROGATE. | BMJ Open | 2022 |
| 33615640 | Effects of copy number variations on brain structure and risk for psychiatric illness: Large-scale studies from the ENIGMA working groups on CNVs. | Hum Brain Mapp | 2022 |
| 33130251 | Systematic Review: The Measurement Properties of the Children's Depression Rating Scale-Revised in Adolescents With Major Depressive Disorder. | J Am Acad Child Adolesc Psychiatry | 2021 |
| 34886877 | Correction to: Establishing a core outcome set for mucopolysaccharidoses (MPS) in children: study protocol for a rapid literature review, candidate outcomes survey, and Delphi surveys. | Trials | 2021 |
| 34789302 | Establishing a core outcome set for mucopolysaccharidoses (MPS) in children: study protocol for a rapid literature review, candidate outcomes survey, and Delphi surveys. | Trials | 2021 |
| 34521478 | Patient and family engagement in the development of core outcome sets for two rare chronic diseases in children. | Res Involv Engagem | 2021 |
| 34266901 | Core Outcome Sets for Medium-Chain Acyl-CoA Dehydrogenase Deficiency and Phenylketonuria. | Pediatrics | 2021 |
| 34312952 | Forks in the road: Definitions of response, remission, recovery, and other dichotomized outcomes in randomized controlled trials for adolescent depression. A scoping review. | Depress Anxiety | 2021 |
| 32015465 | Genetic contributors to risk of schizophrenia in the presence of a 22q11.2 deletion. | Mol Psychiatry | 2021 |
| 33310707 | Development of an international standard set of patient-centred outcome measures for overall paediatric health: a consensus process. | Arch Dis Child | 2021 |
| 31372989 | Core outcome set for children with neurological impairment and tube feeding. | Dev Med Child Neurol | 2020 |
| 31937333 | Outcomes in pediatric studies of medium-chain acyl-coA dehydrogenase (MCAD) deficiency and phenylketonuria (PKU): a review. | Orphanet J Rare Dis | 2020 |
| 31932362 | Neurodevelopmental outcome descriptions in cohorts of extremely preterm children. | Arch Dis Child Fetal Neonatal Ed | 2020 |
| 33126995 | Core Outcome Set Development for Adolescent Major Depressive Disorder Clinical Trials: A Registered Report. | J Am Acad Child Adolesc Psychiatry | 2020 |
| 32860976 | Response to "Trials for depressive disorder in adolescents: the emperor's new clothes," a letter to the editor by Alain Braillon, MD, PhD. | J Clin Epidemiol | 2020 |
| 32641085 | Outcome reporting recommendations for clinical trial protocols and reports: a scoping review. | Trials | 2020 |
| 32209556 | Guidance on development and operation of Young Persons' Advisory Groups. | Arch Dis Child | 2020 |
| 32561367 | Systematic scoping review identifies heterogeneity in outcomes measured in adolescent depression clinical trials. | J Clin Epidemiol | 2020 |
| 32450810 | Primary outcome reporting in adolescent depression clinical trials needs standardization. | BMC Med Res Methodol | 2020 |
| 32220402 | From Research to Practice: The Importance of Appropriate Outcome Selection, Measurement, and Reporting in Pediatric Mental Health Research. | J Am Acad Child Adolesc Psychiatry | 2020 |
| 29895892 | Large-scale mapping of cortical alterations in 22q11.2 deletion syndrome: Convergence with idiopathic psychosis and effects of deletion size. | Mol Psychiatry | 2020 |
| 31465843 | Training researchers in publication science: why, what, and how. | J Clin Epidemiol | 2020 |
| 30782729 | Outcomes reported in randomised clinical trials of major depressive disorder treatments in adolescents: a systematic scoping review protocol. | BMJ Open | 2019 |
| 30064532 | Neurocognition and adaptive functioning in a genetic high risk model of schizophrenia. | Psychol Med | 2019 |
| 31229181 | Counting What Counts: The Case for Harmonized Outcomes in Child and Youth Mental Health Research. | J Am Acad Child Adolesc Psychiatry | 2019 |
| 31395526 | Neurobiological perspective of 22q11.2 deletion syndrome. | Lancet Psychiatry | 2019 |