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Author Details

Malin Berghammer
The Queen Silvia Children's Hospital
2006
43
15
PMIDPaper TitleJournal TitlePublished Year
35901014Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS.Eur J Cardiovasc Nurs2023
35351230"The only thing I wonder is when I will have surgery again": everyday life for children with right ventricle outflow tract anomalies during assessment for heart surgery.Cardiol Young2023
35546569"The only thing I wonder is when I will have surgery again" - Everyday life for children with right ventricle outflow tract anomalies during assessment for heart surgery - CORRIGENDUM.Cardiol Young2023
35470715Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries.J Am Heart Assoc2022
35799462Young children's voices in an unlocked Sweden during the COVID-19 pandemic.Scand J Public Health2022
32524857Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life.Eur J Cardiovasc Nurs2021
33576374Development of an international standard set of clinical and patient-reported outcomes for children and adults with congenital heart disease: a report from the International Consortium for Health Outcomes Measurement Congenital Heart Disease Working Group.Eur Heart J Qual Care Clin Outcomes2021
33875322Literature Review: Evidence-Based Health Outcomes and Perceptions of the Built Environment in Pediatric Hospital Facilities.J Pediatr Nurs2021
33568120Phenotypes of adults with congenital heart disease around the globe: a cluster analysis.Health Qual Life Outcomes2021
33611356Enablers and barriers for being physically active: experiences from adults with congenital heart disease.Eur J Cardiovasc Nurs2021
34693273To be or not to be vaccinated against COVID-19 - The adolescents' perspective - A mixed-methods study in Sweden.Vaccine X2021
33460605Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS).Am J Cardiol2021
32739453Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries.Can J Cardiol2021
32961334Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study.Heart Rhythm2021
31529991Health behaviours reported by adults with congenital heart disease across 15 countries.Eur J Prev Cardiol2020
31790832Implantable cardioverter-defibrillators and patient-reported outcomes in adults with congenital heart disease: An international study.Heart Rhythm2020
32784898Children's Anxiety and Factors Related to the COVID-19 Pandemic: An Exploratory Study Using the Children's Anxiety Questionnaire and the Numerical Rating Scale.Int J Environ Res Public Health2020
32493367Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries.BMC Health Serv Res2020
31030969Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation.Am J Cardiol2019
31813510Prevalence and Effects of Cigarette Smoking, Cannabis Consumption, and Co-use in Adults From 15 Countries With Congenital Heart Disease.Can J Cardiol2019
30077534Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe.Int J Cardiol2019
31443808Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study.J Psychosom Res2019
30714326Education as important predictor for successful employment in adults with congenital heart disease worldwide.Congenit Heart Dis2019
30808198Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance.Eur J Cardiovasc Nurs2019
28980341Do not forget the parents-Parents' concerns during transition to adult care for adolescents with congenital heart disease.Child Care Health Dev2018
30139525Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease.Am J Cardiol2018
30511012Geographical variation and predictors of physical activity level in adults with congenital heart disease.Int J Cardiol Heart Vasc2018
29752846It's like balancing on a slackline-A description of how adults with congenital heart disease describe themselves in relation to physical activity.J Clin Nurs2018
29457362A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation.Congenit Heart Dis2018
29107358Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors.Int J Cardiol2018
27167242Comparison of participants and non-participants in patient-reported outcome surveys: the case of Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study.Cardiol Young2017
28399861Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based survey.BMC Health Serv Res2017
28341902Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS Substudy.Pediatr Cardiol2017
29129255Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective.Am Heart J2017
28669511Illness perceptions in adult congenital heart disease: A multi-center international study.Int J Cardiol2017
28747022Patient reported outcomes are associated with physical activity level in adults with congenital heart disease.Int J Cardiol2017
27173035Quality of Life of Adults With Congenital Heart Disease in 15 Countries: Evaluating Country-Specific Characteristics.J Am Coll Cardiol2016
27726192Is being physically active the key to a good quality of life for patients living with Fontan circulation?Acta Paediatr2016
25130369Decline in self-reported health (EQ-5D) over time after surgical reconstruction of the right ventricular outflow tract: a longitudinal cohort study of 103 patients.Congenit Heart Dis2015
25464481Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS): rationale, design, and methods.Int J Cardiol2015
25564938Committed to Life: Adolescents' and Young Adults' Experiences of Living with Fontan Circulation.Congenit Heart Dis2015
22051437Self-reported health status (EQ-5D) in adults with congenital heart disease.Int J Cardiol2013
16226816Young adults experiences of living with congenital heart disease.Int J Cardiol2006
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Collaborators

Philip Moons
KU Leuven - University of Leuven
Co-authored papers 28
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Co-authored papers 23
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Co-authored papers 22
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Co-authored papers 1
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UT Southwestern Medical Center
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Boston Children's Hospital
Co-authored papers 1
Gerard R Martin
Lundquist Institute for Biomedical Innovation
Co-authored papers 1
Laila Akbar Ladak
The Aga Khan University at Karachi
Co-authored papers 1
Sarah Whittaker
Co-authored papers 1
Amy Basken
Co-authored papers 1
Luis Antonio Garcia
Kardias A.C. Foundation
Co-authored papers 1
Amy Verstappen
University of Maryland School of Medicine in Baltimore
Co-authored papers 1
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