Skip to Main Content

Author Details

Jill O Robinson
Baylor College of Medicine.
2011
53
19
PMIDPaper TitleJournal TitlePublished Year
36341765Conducting clinical genomics research during the COVID-19 pandemic: Lessons learned from the CSER consortium experience.Am J Med Genet A2023
35435795Researcher Views on Changes in Personality, Mood, and Behavior in Next-Generation Deep Brain Stimulation.AJOB Neurosci2023
37456713Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi.J Law Biosci2023
37330169Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial.Brain Stimul2023
36814524Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability.Front Big Data2023
36595372Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.J Adolesc Young Adult Oncol2023
36755671Public mental health during and after the SARS-CoV-2 pandemic: Opportunities for intervention <i>via</i> emotional self-efficacy and resilience.Front Psychol2023
34309124Effects of participation in a U.S. trial of newborn genomic sequencing on parents at risk for depression.J Genet Couns2022
35707062Lessons learned and recommendations for data coordination in collaborative research: The CSER consortium experience.HGG Adv2022
35496073Researchers' Ethical Concerns About Using Adaptive Deep Brain Stimulation for Enhancement.Front Hum Neurosci2022
35571041Parental Attitudes Toward Standard Newborn Screening and Newborn Genomic Sequencing: Findings From the BabySeq Study.Front Genet2022
35926784Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost.Brain Stimul2022
35216680Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services.Am J Hum Genet2022
34658003Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.Patient2022
32990526How Biomedical Citizen Scientists Define What They Do: It's All in the Name.AJOB Empir Bioeth2021
34888063Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.J Clin Transl Sci2021
34429410Behavioral and psychological impact of genome sequencing: a pilot randomized trial of primary care and cardiology patients.NPJ Genom Med2021
34690676Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research.Front Neurosci2021
34424265Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial.JAMA Pediatr2021
34207141Pediatric Oncologists' Experiences Returning and Incorporating Genomic Sequencing Results into Cancer Care.J Pers Med2021
34112998Ask me later: deciding to have clinical exome trio sequencing for my critically ill child.Genet Med2021
34357113Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation.J Pers Med2021
33424563Researcher Perspectives on Data Sharing in Deep Brain Stimulation.Front Hum Neurosci2020
33948230Lessons learned about harmonizing survey measures for the CSER consortium.J Clin Transl Sci2020
33281581Researcher Perspectives on Ethical Considerations in Adaptive Deep Brain Stimulation Trials.Front Hum Neurosci2020
30581014Agents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families.Patient Educ Couns2019
30209271Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project.Genet Med2019
31186522Responsibility, culpability, and parental views on genomic testing for seriously ill children.Genet Med2019
30994063Genomic Data-Sharing Practices.J Law Med Ethics2019
30600265Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project.Pediatrics2019
30482469Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents.Patient Educ Couns2019
29300387Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project.Genet Med2018
30278047Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique.PLoS Biol2018
29497922Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium.J Genet Couns2018
29565423Short-term costs of integrating whole-genome sequencing into primary care and cardiology settings: a pilot randomized trial.Genet Med2018
28654958The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial.Ann Intern Med2017
29749861Portero versus portador: Spanish interpretation of genomic terminology during whole exome sequencing results disclosure.Per Med2017
28993792The price of whole-genome sequencing may be decreasing, but who will be sequenced?Per Med2017
28949844When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing.AJOB Empir Bioeth2017
28926626Do privacy and security regulations need a status update? Perspectives from an intergenerational survey.PLoS One2017
26080898Are physicians prepared for whole genome sequencing? a qualitative analysis.Clin Genet2016
27329739Return of individual genomic research results: what do consent forms tell participants?Eur J Hum Genet2016
27019659Patients' perceived utility of whole-genome sequencing for their healthcare: findings from the MedSeq project.Per Med2016
26928896Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing.J Empir Res Hum Res Ethics2016
25642274'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeq Project.Per Med2015
27774218It depends whose data are being shared: considerations for genomic data sharing policies.J Law Biosci2015
24616359Pediatric data sharing in genomic research: attitudes and preferences of parents.Pediatrics2014
23639901Experiences and attitudes of genome investigators regarding return of individual genetic test results.Genet Med2013
24077424Returning genetic research results: study type matters.Per Med2013
24169421Participants' recall and understanding of genomic research and large-scale data sharing.J Empir Res Hum Res Ethics2013
  • 1 - 50 of 53

Recommended Authors

Icahn School of Medicine at Mount Sinai
Career Start Year 2015
Number of shared co-authors 14
Kaiser Permanente Washington Health Research Institute
Career Start Year 2015
Number of shared co-authors 12
Biomedical Ethics Program, Mayo Clinic
Career Start Year 2014
Number of shared co-authors 5
Indiana University Center for Bioethics.
Career Start Year 2012
Number of shared co-authors 4
Invitae Corporation
Career Start Year 2012
Number of shared co-authors 10
Google
Career Start Year 2012
Number of shared co-authors 11
McGill University
Career Start Year 2011
Number of shared co-authors 6
Center for Bioethics and Social Science in Medicine, University of Michigan ann arbor
Career Start Year 2011
Number of shared co-authors 2
Terry Fox Research Institute.
Career Start Year 2011
Number of shared co-authors 9
Center for Genetic Medicine, Feinberg School of Medicine, Northwestern University
Career Start Year 2010
Number of shared co-authors 17
Biomedical Ethics Research Program, Mayo Clinic
Career Start Year 2008
Number of shared co-authors 4
Penn State College of Medicine
Career Start Year 2006
Number of shared co-authors 14
Career Start Year 2005
Number of shared co-authors 3
Case Western Reserve University
Career Start Year 2005
Number of shared co-authors 11
University of Washington School of Medicine
Career Start Year 2005
Number of shared co-authors 26
University of Melbourne
Career Start Year 2004
Number of shared co-authors 5
Invitae Corporation
Career Start Year 2004
Number of shared co-authors 3
McGill University.
Career Start Year 2003
Number of shared co-authors 8
College of Arts & Sciences, University of Cincinnati
Career Start Year 2003
Number of shared co-authors 11
Pennsylvania State University, University Park
Career Start Year 2002
Number of shared co-authors 10
Center for Biomedical Ethics and Society, Vanderbilt University Medical Center
Career Start Year 2001
Number of shared co-authors 10
Stanford Center for Biomedical Ethics (SCBE), Stanford University
Career Start Year 2000
Number of shared co-authors 32
Biomedical Ethics, Mayo Clinic and Foundation
Career Start Year 1999
Number of shared co-authors 32
University of Washington
Career Start Year 1998
Number of shared co-authors 9
University of Pennsylvania, Department of Medical Ethics and Health Policy
Career Start Year 1997
Number of shared co-authors 10
Northwestern University, Center for Genetic Medicine
Career Start Year 1996
Number of shared co-authors 11
Norton Children's Research Institute, University of Louisville School of Medicine
Career Start Year 1992
Number of shared co-authors 6
Center for Biomedical Ethics, Stanford University School of Medicine
Career Start Year 1985
Number of shared co-authors 14
Harvard Medical School, Vanderbilt University, Yale University Yale Law School
Career Start Year 1985
Number of shared co-authors 39
University of North Carolina-Chapel Hill
Career Start Year 1981
Number of shared co-authors 30

Collaborators

Baylor College of Medicine.
Co-authored papers 47
Baylor College of Medicine.
Co-authored papers 17
Brigham and Women's Hospital, Broad Institute Ariadne Labs and Harvard Medical School
Co-authored papers 15
Harvard Medical School, Harvard Pilgrim Health Care Institute
Co-authored papers 12
Baylor College of Medicine
Co-authored papers 8
University of California-San Francisco.
Co-authored papers 7
Texas Children's Cancer Center, Texas Children's Hospital
Co-authored papers 6
Texas Children's Hospital
Co-authored papers 6
Co-authored papers 5
Broad Institute of MIT and Harvard
Co-authored papers 5
Harvard Medical School
Co-authored papers 5
Center for Medical Ethics and Health Policy, Baylor College of Medicine
Co-authored papers 5
University of North Carolina at Chapel Hill.
Co-authored papers 4
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 4
Center for Medical Ethics and Health Policy, Baylor College of Medicine
Co-authored papers 4
Center for Medical Ethics and Health Policy, Baylor College of Medicine
Co-authored papers 4
University of California-San Francisco.
Co-authored papers 4
Boston Children's Hospital
Co-authored papers 3
Center for Cancer Research, National Cancer Institute
Co-authored papers 3
Department of Medicine Brigham and Women's Hospital and Harvard Medical School
Co-authored papers 3
and Translational Research Center
Co-authored papers 3
University of California san francisco
Co-authored papers 3
Norman Fixel Institute for Neurological Diseases, University of Florida
Co-authored papers 3
Harvard Medical School
Co-authored papers 3
Institute for Health Equity Research, Icahn School of Medicine at Mount Sinai
Co-authored papers 3
Baylor College of Medicine, Texas Children's Hospital
Co-authored papers 3
Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 3
Yale School of Medicine
Co-authored papers 3
University of Washington School of Medicine
Co-authored papers 3
University of California San Francisco
Co-authored papers 3