|
| 37978805 | The ethics of using COVID-19 host genomic information for clinical and public health decision-making: A survey of US health professionals. | HGG Adv | 2024 |
| 36805407 | Brief Report: Challenges in Obtaining the Informed Perspectives of Stakeholders Regarding HIV Molecular Epidemiology. | J Acquir Immune Defic Syndr | 2023 |
| 37456713 | Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi. | J Law Biosci | 2023 |
| 36814524 | Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability. | Front Big Data | 2023 |
| 34383228 | Patients' Reactions to Letters Communicating Collateral Findings of Pragmatic Clinical Trials: a National Web-Based Survey. | J Gen Intern Med | 2022 |
| 36071689 | Ethics challenges in sharing data from pragmatic clinical trials. | Clin Trials | 2022 |
| 35149644 | Identifying Needs, Challenges, and Benefits Among Adults and Parents of Children With Hirschsprung Disease. | J Pediatr Gastroenterol Nutr | 2022 |
| 32700788 | Whether, when, and how to communicate genetic risk to minors: 'I wanted more information but I think they were scared I couldn't handle it'. | J Genet Couns | 2021 |
| 33810790 | A scoping review of genetics and genomics research ethics policies and guidelines for Africa. | BMC Med Ethics | 2021 |
| 34600345 | Identification and management of pragmatic clinical trial collateral findings: A current understanding and directions for future research. | Healthc (Amst) | 2021 |
| 34329595 | Patients' perspectives on the derivation and use of organoids. | Stem Cell Reports | 2021 |
| 34006365 | Multiple, independent, common variants at RET, SEMA3 and NRG1 gut enhancers specify Hirschsprung disease risk in European ancestry subjects. | J Pediatr Surg | 2021 |
| 34357113 | Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation. | J Pers Med | 2021 |
| 32568103 | Family Communication Patterns and Challenges of Huntington's Disease Risk, the Decision to Pursue Presymptomatic Testing, and Test Results. | J Huntingtons Dis | 2020 |
| 34667872 | Stakeholder perspectives regarding pragmatic clinical trial collateral findings. | Learn Health Syst | 2020 |
| 31896322 | Ethics and Collateral Findings in Pragmatic Clinical Trials. | Am J Bioeth | 2020 |
| 32815061 | Patients' Views About the Disclosure of Collateral Findings in Pragmatic Clinical Trials: a Focus Group Study. | J Gen Intern Med | 2020 |
| 30994065 | What is a Medical Information Commons? | J Law Med Ethics | 2019 |
| 31140611 | Early experiences of independent advocates for potential HIV+ recipients of HIV+ donor organ transplants. | Clin Transplant | 2019 |
| 30994075 | The Role of Participants in a Medical Information Commons. | J Law Med Ethics | 2019 |
| 30994073 | BRCA1/2 Variant Data-Sharing Practices. | J Law Med Ethics | 2019 |
| 28932961 | Enrolling Genomics Research Participants through a Clinical Setting: the Impact of Existing Clinical Relationships on Informed Consent and Expectations for Return of Research Results. | J Genet Couns | 2018 |
| 29967967 | Perspectives on Genetic Testing and Return of Results from the First Cohort of Presymptomatically Tested Individuals At Risk of Huntington Disease. | J Genet Couns | 2018 |
| 30393972 | Risk perception before and after presymptomatic genetic testing for Huntington's disease: Not always what one might expect. | Mol Genet Genomic Med | 2018 |
| 29724118 | Perceptions, motivations, and concerns about living organ donation among people living with HIV. | AIDS Care | 2018 |
| 28541278 | Sharing data under the 21st Century Cures Act. | Genet Med | 2017 |
| 29868184 | Constraints on gene patent protection fuel secrecy concerns: a qualitative study. | J Law Biosci | 2017 |
| 28272539 | Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease. | Eur J Hum Genet | 2017 |
| 29230253 | Barriers to clinical adoption of next-generation sequencing: a policy Delphi panel's solutions. | Per Med | 2017 |
| 28650924 | Comparison of Approaches for Notification and Authorization in Pragmatic Clinical Research Evaluating Commonly Used Medical Practices. | Med Care | 2017 |
| 27153269 | Developing context-specific next-generation sequencing policy. | Nat Biotechnol | 2016 |
| 27668172 | Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel. | Appl Transl Genom | 2016 |
| 27800531 | Patients' Views Concerning Research on Medical Practices: Implications for Consent. | AJOB Empir Bioeth | 2016 |
| 27417953 | Physicians' perspectives regarding pragmatic clinical trials. | J Comp Eff Res | 2016 |
| 25825819 | Demographic differences in willingness to provide broad and narrow consent for biobank research. | Biopreserv Biobank | 2015 |
| 23660530 | Public preferences regarding informed consent models for participation in population-based genomic research. | Genet Med | 2014 |
| 25251809 | Informed consent for exome sequencing research in families with genetic disease: the emerging issue of incidental findings. | Am J Med Genet A | 2014 |
| 25299915 | Development of the clinical next-generation sequencing industry in a shifting policy climate. | Nat Biotechnol | 2014 |
| 24854226 | Public preferences for the return of research results in genetic research: a conjoint analysis. | Genet Med | 2014 |
| 24388172 | Patients' attitudes toward the donation of biological materials for the derivation of induced pluripotent stem cells. | Cell Stem Cell | 2014 |
| 23560882 | Attitudes about regulation among direct-to-consumer genetic testing customers. | Genet Test Mol Biomarkers | 2013 |
| 22402755 | Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study. | Genet Med | 2012 |
| 22538255 | Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients. | Genet Med | 2012 |
| 22278220 | Risky business: risk perception and the use of medical services among customers of DTC personal genetic testing. | J Genet Couns | 2012 |
| 19346960 | Veterans' attitudes regarding a database for genomic research. | Genet Med | 2009 |
| 19878915 | Public opinion about the importance of privacy in biobank research. | Am J Hum Genet | 2009 |
| 19833988 | Public perspectives on informed consent for biobanking. | Am J Public Health | 2009 |
| 18189289 | Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion. | Am J Med Genet C Semin Med Genet | 2008 |
| 19011407 | Subjects matter: a survey of public opinions about a large genetic cohort study. | Genet Med | 2008 |
| 19061108 | Public expectations for return of results from large-cohort genetic research. | Am J Bioeth | 2008 |