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Author Details

Kathleen A Knafl
University of North Carolina at Chapel Hill
1974
178
38
Sarah J Ratcliffe (CM4AI)
PMIDPaper TitleJournal TitlePublished Year
37929633Family adaptation in families of individuals with Down syndrome from 12 countries.Am J Med Genet C Semin Med Genet2024
36257899A Mixed Methods Analysis of Care Coordination Needs and Desirable Features of an M-Health Application to Support Caregivers of Children With Down Syndrome.J Pediatr Health Care2023
37864406Advancing Family Science Through Synthesis Research.J Fam Nurs2023
37696135Advancing family science and health equity through the 2022-2026 National Institute of Nursing Research strategic plan.Nurs Outlook2023
37921867Informed Consent among Clinical Trial Participants with Different Cancer Diagnoses.AJOB Empir Bioeth2023
37306169Predicting infant feeding intention and intensity in Oman using a path analysis approach.East Mediterr Health J2023
36639518Child and family factors associated with positive outcomes among youth born extremely preterm.Pediatr Res2023
36941039CROSS-CULTURAL ADAPTATION AND LINGUISTIC VALIDATION OF THE TRANSLATED ARABIC REVISED BREASTFEEDING ATTRITION PREDICTION TOOL.J Nurs Meas2023
34762511Perceptions of Weight Management: Interviews with Adolescents with Severe Obesity and Their Mothers.Child Obes2022
35728085Development of Training in Problem Solving for Caregivers of Childhood Brain Tumor Survivors.Cancer Nurs2022
35623186Caregivers' perception of the role of the socio-environment on their extremely preterm child's well-being.J Pediatr Nurs2022
35552750A Pragmatic Guide to Qualitative Analysis for Pediatric Researchers.J Pediatr Psychol2022
36449287Association of Perceived Benefit or Burden of Research Participation With Participants' Withdrawal From Cancer Clinical Trials.JAMA Netw Open2022
35141915Family members' experience of well-being as racial/ethnic minorities raising a child with a neurodevelopmental disorder: A qualitative meta-synthesis.Res Nurs Health2022
34872416Perceived Experiences of Korean Immigrant Mothers Raising Children With Disabilities in the United States.J Transcult Nurs2022
32366808Patterns of Parenting Confidence Among Infants With Medical Complexity: A Mixed-Methods Analysis.Adv Neonatal Care2021
33533322Thematic expansion: A new strategy for theory development.West J Nurs Res2021
33749353Tracing the Use of the Family Management Framework and Measure: A Scoping Review.J Fam Nurs2021
34374772Experiences of Patients After Withdrawal From Cancer Clinical Trials.JAMA Netw Open2021
34209506Care Coordination Needs of Families of Children with Down Syndrome: A Scoping Review to Inform Development of mHealth Applications for Families.Children (Basel)2021
34168034Timing, delays and pathways to diagnosis of endometriosis: a scoping review protocol.BMJ Open2021
33430335Family Variables and Quality of Life in Children with Down Syndrome: A Scoping Review.Int J Environ Res Public Health2021
33191861Mothers' and fathers' views of family management and health-related quality of life for young adult survivors of childhood brain tumors.J Psychosoc Oncol2021
33107642Inquiry into women's pathways to diagnosis of endometriosis: A qualitative study protocol.J Adv Nurs2021
33272069Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation.J Fam Nurs2021
32997835Quality of life in individuals with Down syndrome aged 4 to 21 years.Child Care Health Dev2021
32957023Parent-Reported Contribution of Family Variables to the Quality of Life in Children with Down Syndrome: Report from an International Study.J Pediatr Nurs2020
31046569Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors [Formula: see text].J Pediatr Oncol Nurs2019
30061085Parent perceptions of the impact of the Paediatric Intensive Care environment on delivery of family-centred care.Intensive Crit Care Nurs2019
31317823Understanding familial response to parental advanced cancer using the family management style framework.J Psychosoc Oncol2019
31287187The experience of adults with sickle cell disease and their HLA-matched adult sibling donors after allogeneic hematopoietic stem cell transplantation.J Adv Nurs2019
31418465Well siblings of children with chronic illness: A synthesis research study.Res Nurs Health2019
29140588Family management of childhood chronic conditions: Does it make a difference if the child has an intellectual disability?Am J Med Genet A2018
29698006Patterns of family management for adolescent and young adult brain tumor survivors.J Fam Psychol2018
29689127Concept Analysis and the Advance of Nursing Knowledge: State of the Science.J Nurs Scholarsh2018
29631487Development and Preliminary Testing of the Perceived Benefit and Burden Scales for Cancer Clinical Trial Participation.J Empir Res Hum Res Ethics2018
29395666"It's a Long-Term Process": Description of Daily Family Life When a Child Has a Feeding Disorder.J Pediatr Health Care2018
29153934Family-Centered Care From the Perspective of Parents of Children Cared for in a Pediatric Intensive Care Unit: An Integrative Review.J Pediatr Nurs2018
29172624Parenting behaviors and the well-being of children with a chronic physical condition.Fam Syst Health2018
27289068Pilot Randomized Trial of Active Music Engagement Intervention Parent Delivery for Young Children With Cancer.J Pediatr Psychol2017
28416079Management of Childhood Congenital Adrenal Hyperplasia-An Integrative Review of the Literature.J Pediatr Health Care2017
28267870Top 10 Tips for Undertaking Synthesis Research.Res Nurs Health2017
28320340Incorporating nonlinearity into mediation analyses.BMC Med Res Methodol2017
28144963Adaptive Modeling: An Approach for Incorporating Nonlinearity in Regression Analyses.Res Nurs Health2017
29199534Tips for Developing a Successful Family Research Proposal.J Fam Nurs2017
29046104How the Child's Gender Matters for Families Having a Child With Congenital Adrenal Hyperplasia.J Fam Nurs2017
28771930Parental management of adrenal crisis in children with congenital adrenal hyperplasia.J Spec Pediatr Nurs2017
27601073Feeding problems in infancy and early childhood: evolutionary concept analysis.J Adv Nurs2017
27596106The Nature of Family Engagement in Interventions for Children With Chronic Conditions.West J Nurs Res2017
25119067A novel Interactive Health Communication Application (IHCA) for parents of children with long-term conditions: Development, implementation and feasibility assessment.Inform Health Soc Care2016
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Collaborators

Janet A Deatrick
University of Pennsylvania.
Co-authored papers 34
Sarah J Ratcliffe (CM4AI)
University of Virginia
Co-authored papers 6
Christine Grady
National Institutes of Health Clinical Center
Co-authored papers 5
Connie M Ulrich
Huntsman Cancer Institute, University of Utah
Co-authored papers 5
Therese S Richmond
University of Pennsylvania School of Nursing
Co-authored papers 4
Qiuping Pearl Zhou
George Washington University
Co-authored papers 4
Wendy Hobbie
Children's Hospital of Philadelphia
Co-authored papers 4
Gwenyth R Wallen
National Institutes of Health Clinical Center
Co-authored papers 4
Jean O'Malley
OCHIN Inc.
Co-authored papers 3
Sue Ogle
Children's Hospital of Philadelphia
Co-authored papers 3
Thomas M O'Shea
Co-authored papers 3
Rebecca C Fry
Co-authored papers 2
Marilyn M Schapira
University of Pennsylvania
Co-authored papers 2
Victoria A Miller
Children's Hospital of Philadelphia
Co-authored papers 2
Mary D Naylor
NewCourtland Center for Transitions and Health at the University of Pennsylvania
Co-authored papers 2
Qiuping Zhou
George Washington University
Co-authored papers 1
Jill P Ginsberg
Perelman School of Medicine, University of Pennsylvania
Co-authored papers 1
Thomas Gordon
University of Massachusetts Lowell
Co-authored papers 1
Camille Hochheimer
Center for Innovative Design and Analysis, Colorado School of Public Health
Co-authored papers 1
Therese Richmond
University of Pennsylvania School of Nursing
Co-authored papers 1
Connie M Ulrich
University of Pennsylvania School of Nursing
Co-authored papers 1
Michael J Fisher
Co-authored papers 1
Deborah Tiller
The Wistar Institute
Co-authored papers 1
Mary Naylor
University of Pennsylvania School of Nursing
Co-authored papers 1
Jun J Mao
Memorial Sloan Kettering Cancer Center
Co-authored papers 1
Jun J Mao
Memorial Sloan Kettering Cancer Center
Co-authored papers 1
Christine Grady
National Institutes of Health, Clinical Center Department of Bioethics
Co-authored papers 1
Shigeko Izumi
Oregon Health & Science University
Co-authored papers 1
Susan M Perkins
Indiana University School of Medicine
Co-authored papers 1
Thomas F Gordon
University of Massachusetts
Co-authored papers 1
Release 1.2