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| 37544393 | Biopsychosocial Factors Associated With Pain and Pain-Related Outcomes in Adults and Children With Sickle Cell Disease: A Multivariable Analysis of the GRNDaD Multicenter Registry. | J Pain | 2024 |
| 36094289 | Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center. | Pediatr Blood Cancer | 2023 |
| 37738155 | A multilevel mHealth intervention boosts adherence to hydroxyurea in individuals with sickle cell disease. | Blood Adv | 2023 |
| 37728977 | Feasibility of Implementation of a Mobile Digital Personal Health Record to Coordinate Care for Children and Youth With Special Health Care Needs in Primary Care: Protocol for a Mixed Methods Study. | JMIR Res Protoc | 2023 |
| 37639303 | Outcomes of End-User Testing of a Care Coordination Mobile App With Families of Children With Special Health Care Needs: Simulation Study. | JMIR Form Res | 2023 |
| 37456969 | Burden of Aging: Health Outcomes Among Adolescents and Young Adults With Sickle Cell Disease. | Hemasphere | 2023 |
| 37057750 | Infertility and treatment-seeking practices among females and males with sickle cell disease in the Sickle Cell Disease Implementation Consortium registry. | Pediatr Blood Cancer | 2023 |
| 37184905 | Developing an Implementation Blueprint for the NIH HEAL Initiative GRACE Trial: Perspectives on Acupuncture and Guided Relaxation for Chronic Sickle Cell Disease Pain. | J Integr Complement Med | 2023 |
| 36925803 | Evaluating the implementation of a multi-level mHealth study to improve hydroxyurea utilization in sickle cell disease. | Front Health Serv | 2023 |
| 36852100 | Hybrid effectiveness-implementation trial of guided relaxation and acupuncture for chronic sickle cell disease pain (GRACE): A protocol. | Contemp Clin Trials Commun | 2023 |
| 36917171 | Predicting Pain in People With Sickle Cell Disease in the Day Hospital Using the Commercial Wearable Apple Watch: Feasibility Study. | JMIR Form Res | 2023 |
| 36599744 | Intrahepatic cholestasis in sickle cell disease: A review of diagnostic criteria, treatments, and case reports. | J Natl Med Assoc | 2023 |
| 36355805 | Pharmacokinetics, pharmacodynamics, safety, and efficacy of crizanlizumab in patients with sickle cell disease. | Blood Adv | 2023 |
| 36096903 | Evaluating Associations between Average Pain Intensity and Genetic Variation in People with Sickle Cell Disease: An Exploratory Study. | Pain Manag Nurs | 2023 |
| 36382420 | Characterising the prevalence of overweight and obese status among adults with sickle cell disease. | Br J Haematol | 2023 |
| 34189962 | Severe Persistent Pain and Inflammatory Biomarkers in Sickle Cell Disease: An Exploratory Study. | Biol Res Nurs | 2022 |
| 35708641 | Early Initiation of Sub-Anesthetic Ketamine Infusion in Adults with Vaso-Occlusive Crises Is Associated with Greater Reduction in Sickle Cell Pain Intensity: A Single Center's Experience. | Pain Med | 2022 |
| 35737453 | Improving Pain Assessment Using Vital Signs and Pain Medication for Patients With Sickle Cell Disease: Retrospective Study. | JMIR Form Res | 2022 |
| 35700397 | Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals. | J Pediatr Hematol Oncol | 2022 |
| 35467435 | Usability and Acceptability of the QuestLeukemia Mobile Application: A Pilot Study for An Educational and Psychological Intervention for Children with Chronic Illnesses. | J Pediatr Hematol Oncol Nurs | 2022 |
| 35445915 | An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model. | Qual Life Res | 2022 |
| 36240004 | Impact of the COVID-19 Pandemic on the Implementation of Mobile Health to Improve the Uptake of Hydroxyurea in Patients With Sickle Cell Disease: Mixed Methods Study. | JMIR Form Res | 2022 |
| 35928515 | Careful considerations for mHealth app development: lessons learned from QuestExplore. | Mhealth | 2022 |
| 36113859 | A clinician's view of voxelotor. | Br J Haematol | 2022 |
| 35320302 | Perspectives of individuals with sickle cell disease on barriers to care. | PLoS One | 2022 |
| 35191358 | Real-world effectiveness of voxelotor for treating sickle cell disease in the US: a large claims data analysis. | Expert Rev Hematol | 2022 |
| 35142007 | Pregnancy outcomes with hydroxyurea use in women with sickle cell disease. | Am J Hematol | 2022 |
| 32892996 | Adherence to Iron Chelation Therapy with Deferasirox Formulations among Patients with Sickle Cell Disease and β-thalassemia. | J Natl Med Assoc | 2021 |
| 36618444 | Sickle cell disease is a global prototype for integrative research and healthcare. | Adv Genet (Hoboken) | 2021 |
| 33830035 | Assessing the Feasibility of a Novel mHealth App in Hematopoietic Stem Cell Transplant Patients. | Transplant Cell Ther | 2021 |
| 33829067 | Dissemination of Evidence-Based Recommendations for Sickle Cell Disease to Primary Care and Emergency Department Providers in North Carolina: A Cost Benefit Analysis. | J Health Econ Outcomes Res | 2021 |
| 33796238 | Voxelotor: alteration of sickle cell disease pathophysiology by a first-in-class polymerization inhibitor. | Ther Adv Hematol | 2021 |
| 33686891 | The impact of vaso-occlusive crises and disease severity on quality of life and productivity among patients with sickle cell disease in the US. | Curr Med Res Opin | 2021 |
| 33877274 | Effect of Poloxamer 188 vs Placebo on Painful Vaso-Occlusive Episodes in Children and Adults With Sickle Cell Disease: A Randomized Clinical Trial. | JAMA | 2021 |
| 33624987 | Symptom Monitoring in Children With Life-Threatening Illness: A Feasibility Study Using mHealth. | ANS Adv Nurs Sci | 2021 |
| 33712836 | Seriously ill pediatric patient, parent, and clinician perspectives on visualizing symptom data. | J Am Med Inform Assoc | 2021 |
| 33595963 | Patient Perspectives of Sickle Cell Management in the Emergency Department. | Crit Care Nurs Q | 2021 |
| 33705373 | Can subjective pain be inferred from objective physiological data? Evidence from patients with sickle cell disease. | PLoS Comput Biol | 2021 |
| 33856439 | ELIPSIS: developing tools to better understand VOC in SCD. | Blood | 2021 |
| 34611900 | Long-term biological effects in sickle cell disease: insights from a post-crizanlizumab study. | Br J Haematol | 2021 |
| 34632830 | Awareness and Use of the Sickle Cell Disease Toolbox by Primary Care Providers in North Carolina. | J Prim Care Community Health | 2021 |
| 34544765 | A Needs Assessment of Persons With Sickle Cell Disease in a Major Medical Center in North Carolina. | N C Med J | 2021 |
| 34509600 | A reanalysis of pain crises data from the pivotal l-glutamine in sickle cell disease trial. | Contemp Clin Trials | 2021 |
| 34714833 | Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium. | PLoS One | 2021 |
| 34623335 | An Innovative Undergraduate Interdisciplinary Research Course: Development, Implementation, and Student Perspectives. | Comput Inform Nurs | 2021 |
| 33988517 | Comparing the Effectiveness of Education Versus Digital Cognitive Behavioral Therapy for Adults With Sickle Cell Disease: Protocol for the Cognitive Behavioral Therapy and Real-time Pain Management Intervention for Sickle Cell via Mobile Applications (CaRISMA) Study. | JMIR Res Protoc | 2021 |
| 34265788 | Severe Pain Profiles and Associated Sociodemographic and Clinical Characteristics in Individuals With Sickle Cell Disease. | Clin J Pain | 2021 |
| 34337614 | Pain Intensity Assessment in Sickle Cell Disease Patients Using Vital Signs During Hospital Visits. | Pattern Recognit (2021) | 2021 |
| 33034793 | Effective Recruitment Strategies for a Sickle Cell Patient Registry Across Sites from the Sickle Cell Disease Implementation Consortium (SCDIC). | J Immigr Minor Health | 2021 |
| 32889040 | "Pain is Subjective": A Mixed-Methods Study of Provider Attitudes and Practices Regarding Pain Management in Sickle Cell Disease Across Three Countries. | J Pain Symptom Manage | 2021 |